Our NAET experience: eggs, dairy, tree nuts, shellfish

[Aletheia]

I know there has been a lot of interest about NAET here, and my very good friend's little girl was recently cleared of egg and dairy allergies after 3 appointments, so we have begun going.

So far, we have had seven appointments. They have costed $65 each... unless a clearing hasn't "held," and then he doesn't charge us to redo them. Here is a brief summary of what the appointments are like, and then of the ones we have had so far. If he is cleared of milk eventually, I will sing it from every roof top as a downright miracle.

Appts last 20 minutes. I hold my four year old on my lap, my left hand around his hand. My right hand is out, my thumb pointed down, my fingers straight; D. pushes on my arm to try to get it down. Nothing happens, I feel strong. Practitioner (D.) puts vial in his little hand; neither of us see it. He muscles tests again. It is VERY OBVIOUS when we are holding something that weakens my son. I cannot, simply cannot hold my hand up anymore. The egg and casein trials were amazingly, amazingly obvious. It is startling.

While I am still holding the vial and making skin contact with my son, D. massages my back from top to bottom very strongly while I by turns hold an inhale, hold an exhale, pant like a runner, and breathe normally. He repeats this. Then he muscle tests again. In every case, I've been able to hold my arm up with no problem.

He then does some acuprressure on me with a buzzy thing in 10 different points on my arms and legs. I sit, still making skin contact with my son, and usually put the vial in his sock, and we read a book for 20 minutes. I rub my hands together, and that's it.

1. BBF-- not sure what this is, but apparently everyone reacts to it and it is a good place to start.
2. Eggs-- my son no longer had a contact reaction to egg white, so we've been feeding it to him for the past year. however, he hates egg, and only eats it when it is baked into things. we completely failed the muscle test, so were treated for it.
3. Eggs and BBF- it did not hold, so we were treated for these in combination. it held. my son's bowl movements are now somewhat formed. after both egg treatments, he was a sobbing mess on the floor (not like him, at least not in public) and his mild to moderate behind-knee eczema went away.
4. Milk mix- this is the big one. he reacts to all dairy products even if he touches where they once were. he is not anaphylactic shock reactive, but he does have respiratory, skin, and GI symptoms.
5. Actual milk- the clearing did not hold, so my practitioner asked us to bring in a jar of actual milk to do it again, at no charge.
6. Calcium citronate- did not hold, and our practitioner reportedly called nambudripad to ask what she would advise- we are now going through 10 different components of milk, and my son was weak on the muscle test for 8 of them.
7. Calcium gluconate- calcium citronate held, now on the gluconate...
8. Albumin- held
9. Lactic acid- held
10. "calcium mix"

Planned:
11. Casein
12.
13. cheese

Little one is awake; more later...

UPDATE, 12/16/10

We're still at it.  We did all the various components of milk, including breastmilk.  He held with most of the clearings after each one.  Our practitioner than rubbed some whole milk which I provided on O's wrist-- within 30 seconds there was a red rash with white itchy bumps in it.  In short, we probably have now cleared just whole milk four or five times...with a little progress.  But some progress!  O now can have milk on his skin and it does not bother him at all.  (!)  When he drinks it, he no longer gets respiratory symptoms.  But it does still make his mouth itch and burn.

The weird thing is, the muscle test for milk is strong now, every time.  But he is still reacting to it.  Our practitioner was stumped, and today I suggested that we go back and do the basic 15.  We had skipped them-- it's not clear to me why, but our practitioner seemed sure that in cases where there is a very pronounced allergy, it is ok to skip the basic 15 and begin treating the prominent allergy.

Well, the basic 15 revealed a pronounced muscle weakness to sugar... and lactose is a sugar.  The treatment was very revealing, as well.  In the first 5 minutes my son went from bright and alert to having a hard time keeping his eyes open, breathing deeply, and asking to quit reading our book to just lay down in my arms.  At the office.  I know you would have to know my child to know why this is significant, but trust me-- it is.

The crazy thing is is that after Halloween, we had taken to having a sweet treat every day at what we call tea time- our afternoon snack.  In the last couple of months, O has been dead on his feet by 5:30 pm.  With the same shiners and sleepy breathing that I observed today in the office.

So I think we might be onto something.  

Edited by Aletheia - 12/16/10 at 7:14pm

[changingseasons]

3 visits?!? For an actual IgE allergy?!

Well, I will definitely be following your progress, as we are also doing NAET right now. (I have a big huge thread on it a few pages back.)

I'm really curious about your treatments so far. From what I've read and been told, you are supposed to do at LEAST the 5 basic treatments (egg mix, calcium, vitamin C, B complex, sugar), but preferably the basic 15 treatments, before treating for individual food items. Maybe your milk mix is actually the calcium treatment??

DD's had 8 treatments so far, and we're not noticing any major improvements (although I haven't tested any foods directly yet, like eggs; it was recommended that because her allergies are so severe that we wait until at least the 5 basic treatments cleared.)

Like you mentioned, DD often has meltdowns after the treatment. It's pretty interesting how it affects her. So I know it's doing something...

[Aletheia]

Hi changingseasons- yes, I was watching your thread with interest.

Our practitioner was clear that the program recommends the basic 15 first, but he said he often has results without going through them. We did test for the basic five, and all were fine except egg mix, which we are now clear of.

And yes, my friend K's little girl had an allergist appt two weeks before her first NAET treatment, and her skin wheals were larger than they were 6 months previously. Her son took 6 appts but is now also eating gluten again. He continues to be seen for mood issues though.

[scsigrl]

I really hope this works for you. Truly, I do.

That said, every time I hear/read/see something about NEAT I just cringe. If this is such an amazing treatment that cures all these allergies WHY do those who do it charge such astronomical amounts? If they are doing such good, why say 15 visit at $65 a pop (which is actually cheap compared to what we have here which is about $150-200 per visit!)

I know that I would do anything to change these allergies and I just do not get how you are going to change an actual IgE allergy like this. I am all about natural treatments and all that but honestly, this just make me scratch my head.

So if you are "cleared" of nuts are you actually going to try them with your child? Was your child ana. to nuts? I just am not sure that even if someone day "Ok, you are cleared!" that I would trust that and give my kid something the are ana. to. Maybe it's just me...

[changingseasons]

Wow- that's amazing!

Aah- skipping the basics makes more sense since you passed them initially. We've failed every one so far (both DD and I), so we've had to do each one.


eta: xposting- I was also going to say that $65 seems pretty cheap! And yeah... I'm not sure I'm that confident to just try foods either, even if we pass muscle testing. For the major ones, I'll probably get skin testing done first. For egg (when we test it), I will just put some on DD's skin because she is contact reactive.

[changingseasons]

How's it going? Have you had any more appointments?

[Aletheia]

Going well so far.

It is expensive. But our practitioner has made me a deal: I pay nothing unless O is cleared of his dairy allergy. We're about $250 into this, in theory, but I don't pay that unless he is drinking milk with no problem.

He's never had an ana. shock reaction to anything. And since he has a contact allergy to milk, it's easy to start there. I rub a pinkie dipped in milk on his forearm, and 1 minute later there is a rash there. If that doesn't happen, I feel braver about moving on to consumption.

I know this is not quantifiable, but he looks different. His face has a better color, and his cheeks seem fuller. He has started making formed stools (consistently- this is a huge first for us) and it only takes him a moment. We could get through half of the Richard Scarry goldbug bug book before he could finish a bm before NAET.

It's crazy. If I wasn't there, being the one muscle tested, I would think it is a crock. But I can FEEL the difference in my arm between a "strong" test and a "weak" one. And if O gets off my lap, I can suddenly be strong on a test for which we had just been, together, weak. So explain that. I have no idea what is going on, but I have that little empirical fact to lean on, and while I've tried to be speculative about his physical changes, I cannot deny that something has happened.

I sort of wonder if he has always just been allergic to my breastmilk, though. I've been keeping him off the breast for the 25 hours after each appointment, so he is nursing way less than he used to. Maybe he's just allergic to breastmilk, or to something we have never figured out and which I am eating. That is a real possibility. We'll have to wait to see. He has informed me that he intends to nurse until he is "at least 6".

If it does prove to be a problem with the breastmilk... well, that will be ironic. I never thought I'd be nursing a 4 year old, but have continued for the ease of having at least one "safe" option for him no matter where we are.

[changingseasons]

WOW- that is a good deal!! You practitioner is obviously very confident in this treatment- that's really encouraging.

And I totally agree with you on the muscle testing. It blew my mind the first time I had it done. I was trying with all my strength to hold my arm up, and I just couldn't. It was insane. Then take the vial out of my hand, and I have no problem holding up my arm.

I'm curious- have they tested you with any of the substances, or just done the muscle testing through you for DS? It turns out that I'm failing just as many things as DD, which makes a lot more sense why she had so many reactions through my breastmilk!