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please talk to me about SPD!

post #1 of 8
Thread Starter 
dh and i suspect that our almost 5 yo dd may have SPD. she has always been "high-need" since the day she was born. as she's gotten older, she has developed some behaviors that are, may i say, spastic and infuriating.

here's a description of some of her behaviors and personality. it's a bit stream-of-consciousness though:

she is highly intelligent, very intuitive and energetic. she stopped napping at 8 months old. she chews on everything. she chewed the ends of her long hair off and i had to cut it. she has almost zero impulse control when it comes to certain things. on the other hand, she is very trustworthy and can be the greatest joy! she is a fantastic artist. seriously. her drawings are amazing. i can say that tim burton would love them. but she falls apart if she can't get something to look right or find the right color. she is sensitive to seams, tags etc.,. she makes animal noises. like grunting and babbling. she talks to herself all.day.long. she screams bloody murder way too often. she is so twitchy. she was never a cuddly baby. she is very sensitive in ways that it would take me so long to explain in this post. yet, she tells everyone everyday many times that she loves us. her memory is uncanny. but so is her timing, without fail she almost always does THE WORST thing at THE WORST time. example: she's laying on the floor for 15 min drawing. i walk by with a huge load of laundry. she chooses that moment to POP up, bonk her head and scatter my clean laundry all over, while running on the laundry into another room and then running back to lay down and draw. so she popped up FOR NO REASON WHATSOEVER and caused a huge mess and commotion. happens all.day.long. she cries constantly. just completely falls apart. what works one time for a situation won't work next time for the same exact situation.

here's a quick rundown of outside influences: our days are rhythmic, she is healthy, we eat well, mostly organic, NO junk. lots of pure water. no chemicals in our home or clothing. we live in the mountains, very little pollution here. no vaxes. she was homebirthed joyfully. breastfed for almost 3 years. we read everyday, play everyday. we un-school. she is "ahead" academically, like i said she is HIGHLY intelligent, possibly gifted, but she hasn't been evaluated, as we don't feel it's been necessary yet. we do time-outs, natural consequences, discussion. baths and stories/cuddling when she gets out of control of herself. we have firm/strict boundaries, and fair expectations, but we also have mostly happy fun days. no abuse has happened - we are EXTREMELY careful with our kids and she has only been away from us a handful of times with 2 select people we trust explicitly. i don't know what else................

where can we start? what should i know? books to read? i have looked on the SPD website, and found some things of help, but i'm not really sure about this.......it's all new territory. i've read highly sensitive child and highly spirited child and they helped some, but there really never is a "cure-all" you know? anything you have to give will be helpful at this point! thank you
post #2 of 8
I am of the opinion that all kids should be treated as if they have sensory issues and need to be allowed to sensory seek and should have a well balanced "sensory diet". I don't think it should be something to worry about unless it limits her day to day life and sensory promoting activities aren't helping with behaviors and coping. (I was a pre-k teacher for 10 years and found this approached helped a LOT!)

Check out the Out of Sync child and The Out of Sync Child Has Fun. Both are great books! I also think books that focus on transition ideas can help sensory kids too.
post #3 of 8
Kristine, that's a great idea, because sensory activities are fun for NT and SPD kids alike.

Here's some ideas for creating a sensory diet.

http://sensorysmarts.com/sensory_diet_activities.html

I have some inexpensive ideas on my blog for kids sensory diets

http://raisingsmartgirls.wordpress.c...-diet-at-home/

Sensational Kids by Lucy Jane Miller is another great book.

And, I can't stress this enough, plenty of one-on-one attention. Lots of times the SPD child needs YOU to self regulate her/himself.

My 5 year old was very similar...as well as being underfoot at the wrong moments.
post #4 of 8
Quote:
Originally Posted by Miss Information View Post
Kristine, that's a great idea, because sensory activities are fun for NT and SPD kids alike.
Hopefully more agree with you, Ive been working on a preschool lesson plan book that would encompassas the entire year and a lot based on a good sensory balance so that it would be ideal for both NT and Spectrum preschoolers.
post #5 of 8
Sounds like lots of sensory and self-regulation issues have come up for her. Definitely also recommend "Sensational Kids" as a must read. A sensory diet will help her a lot if you can work one out for her. Consider a weighted blanket (you can use a heavy blanket folded into a quarter size to lay over her to see if this helps) or having her carry heavy things (milk jugs work) to help her with the deep connection between muscles and brain. Also make sure to give her a variety in the diet. Big busy outdoor activity, rolling her into a blanket or rug for the full body compression, playing in rice or pudding for tactile, make different densities of play dough adding sand or other tactile things to some to help there.

When I first realized my DD's SPD, I went to a billion web sites and read everything I could. I had this instinct to go out and buy every OT gadget on the market to help her with her various sensitivities. I since realized that 90% of it can be made or used right at home. Flour, sand, dirt, shaving cream, pudding, rice, cornstarch and water mixed, a sink full of suds, water are all wonderful tactile tools. A big wool blanket has worked wonders for us to roll her into to get that compression DD craves. Same blanket folded up goes on her bed at night to help her calm her body for sleep. I let her help with baking and food prep to help with fine motor and tactile experiences. A paint brush and a bucket of water and she is off to paint the side of the shed or the fence. We have a swing and she plays on it regularly. I'm looking into getting a chair style hammock to put right into her bedroom as well. I'm also looking at one of those exercise mini-trampolines as well. We play endless games of tag, catching the ball, riding bikes around our cul de sac., etc. to get her physically tired.

Once you figure out what her sensitivities are, make sure to address them in the diet and vary them so she doesn't get bored with it.

It goes on and on ...
post #6 of 8
Thread Starter 
Quote:
Originally Posted by Kristine233 View Post
I am of the opinion that all kids should be treated as if they have sensory issues and need to be allowed to sensory seek and should have a well balanced "sensory diet". I don't think it should be something to worry about unless it limits her day to day life and sensory promoting activities aren't helping with behaviors and coping. (I was a pre-k teacher for 10 years and found this approached helped a LOT!)

Check out the Out of Sync child and The Out of Sync Child Has Fun. Both are great books! I also think books that focus on transition ideas can help sensory kids too.
thank you. i am learning about the sensory diet. there are several things we already do, but i found a ton of suggestions that we feel would be very helpful. and i will check to see if i can get those books from our library.

Quote:
Originally Posted by Miss Information View Post
Kristine, that's a great idea, because sensory activities are fun for NT and SPD kids alike.

Here's some ideas for creating a sensory diet.

http://sensorysmarts.com/sensory_diet_activities.html

I have some inexpensive ideas on my blog for kids sensory diets

http://raisingsmartgirls.wordpress.c...-diet-at-home/

Sensational Kids by Lucy Jane Miller is another great book.

And, I can't stress this enough, plenty of one-on-one attention. Lots of times the SPD child needs YOU to self regulate her/himself.

My 5 year old was very similar...as well as being underfoot at the wrong moments.
i bookmarked your blog page - great stuff there! i will check for your book suggestion at our library as well. i agree about the one-on-one. it seems that many times during the day when she's having a tough time, holding her and giving her some reassurance and kind words makes ALL the difference with her mind set.

Quote:
Originally Posted by beachcomber View Post
Sounds like lots of sensory and self-regulation issues have come up for her. Definitely also recommend "Sensational Kids" as a must read. A sensory diet will help her a lot if you can work one out for her. Consider a weighted blanket (you can use a heavy blanket folded into a quarter size to lay over her to see if this helps) or having her carry heavy things (milk jugs work) to help her with the deep connection between muscles and brain. Also make sure to give her a variety in the diet. Big busy outdoor activity, rolling her into a blanket or rug for the full body compression, playing in rice or pudding for tactile, make different densities of play dough adding sand or other tactile things to some to help there.

When I first realized my DD's SPD, I went to a billion web sites and read everything I could. I had this instinct to go out and buy every OT gadget on the market to help her with her various sensitivities. I since realized that 90% of it can be made or used right at home. Flour, sand, dirt, shaving cream, pudding, rice, cornstarch and water mixed, a sink full of suds, water are all wonderful tactile tools. A big wool blanket has worked wonders for us to roll her into to get that compression DD craves. Same blanket folded up goes on her bed at night to help her calm her body for sleep. I let her help with baking and food prep to help with fine motor and tactile experiences. A paint brush and a bucket of water and she is off to paint the side of the shed or the fence. We have a swing and she plays on it regularly. I'm looking into getting a chair style hammock to put right into her bedroom as well. I'm also looking at one of those exercise mini-trampolines as well. We play endless games of tag, catching the ball, riding bikes around our cul de sac., etc. to get her physically tired.

Once you figure out what her sensitivities are, make sure to address them in the diet and vary them so she doesn't get bored with it.

It goes on and on ...
thank you for the ideas. i try to incorporate her into most of the activities and daily chores you mentioned, but there is definitely room for improvement there! we have a hammock outside and she loooves it. it has helped her very much this past summer. dh and i discussed purchasing a hammock chair for inside the house for her for the winter time.

she is such a sweet girl and a joy to be around when she's "on". when she is "off" she is much like a crazed animal. she is not destructive or mean, thank goodness, but her eyes glaze over and she just absolutely cannot connect. it breaks our hearts. for her and for us. we just want to help her in any way we can.

thank you all again so much. i would love to hear even more ideas, feedback, suggestions and resources, if there's anything else. i will update soon with what we're doing and what effect it's having on her.
post #7 of 8
The off days are hard on us here, too. For all the same reaons. It's like DD just goes somewhere inside her head and we can't reach her there. Since we started the OT therapy and sensory diet, it has improved, if that helps at all. She is "off" much less often than before.
post #8 of 8
I agree...treat every kid as if they have SPD. Can't hurt. My son still has a lot of sensory issues and he is 7. At one time or another he has been "diagnosed" with mild autism, apergers, general developmental delays, speech delays, ADD, SPD, tourettes, dyspraxia, etc. We haven't really stuck with any labels, as now, it appears that with OT and therapy he will overcome most of the issues. His school IEP has dyspraxia and speech noted, and will soon have ADD noted as well, but his label is "other health impaired". I hate to keep labels and IEPs, but at the same time, they will protect him in the future, since he attends public school.

As I write, I can hear him screaming and jumping up and down in his room. He does this every day when he gets home, at least once. When he does it, it is hard to get his attention. He jumps while flapping his hands or flicking his fingers, barely touching his toys...pushing them around a bit, making grunting sounds and screams...jumping on his toes, rocking forward...it's therapeutic for him, I suppose. It's like creative play, but he internalizes it instead of making the toys do it...if that makes sense.

I really want him to learn to ride a bike and with the sensory issues (still goes down the stairs two feet on each step) it is quite a struggle. He gets really mad when I make him try, but I know once he learns, it will be a sense of freedom and he will love it...and maybe he will finally meet some friends! I am a lot like him. I have tried skiing several times and absolutely can't figure it out. I never learned to rollerskate either. I think I have sensory issues too or dyspraxia or ADD too...can't easily follow directions, thoughts are all over the place (obviously), uncoordinated, poor time management, easily frustrated, toe walker...still, and was pulled out of class for "special gym" which was basically what they called OT for kids in the 70's at my school before there was OT. I really want him to learn to skate. I will have to pay a babysitter or get my husband to take him skating this week when his school goes for a fundraiser. I don't want him to end up like me. I want him to be able to take his kids to do fun things! Besides, his favorite thing in the whole world is TV, and I can't stand that! He needs to do something active! He hates every sport we have tried! He doesn't do well in group activities..probably because he can't keep up with the other kids physically, and because of his ADD or SPD...just can't deal with too much stimulation for more than a minute. He can't focus when the coach is telling the kids what to do...he is staring into space...sitting in the middle of the field, humming to himself, talking to other kids...anything but paying attention. If it's something he's interested in, now that's a different story, but sports he hates! He likes swimming...but on his own terms...doesn't like being told what to do, like in swimming lessons!

The ADD seems to be the worst of his problems as far as school is concerned. He seems to like to annoy other kids too (sensory or impulse control issue). He has a vivid imagination and worries a lot sometimes, and that doesn't help in school either.

I think OT will help you, and I too recommend the SPD books. Another good one is Sensational Kids, I believe by the same author. I find books on Autism to be very helpful as well, since there are a lot of similarities...especially asperger's books, now that he is older.

Sounds like you are doing everything right with the reading, homeschooling, no junk etc. It can be very challenging having a child who fits a lot of these "labels", and all that you are doing will help a great deal. I can't even tell you how (the occasional) food coloring effects my son! Keep up the good work!
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