Originally Posted by gradstudentmommy
Well our ped's nurse called back and said we could try Prevacid. She prescribed the liquid compound, which I've read goes bad after 5-14 days (depending on who you ask). I called the pharmacist with my concerns and they said they give you two bottles, one for each 15 days. She said it's the air (from opening and closing the bottle) that makes it go bad. But from what I've read on the internet, it's the fact that the medication breaks down without its protective beads and has nothing to do with air. But I suppose it can't hurt to keep the second bottle airtight until we need it. I've also read that flavoring can make it break down faster if it contains citric acid. The pharmacist had never heard of this but I got it unflavored just to be safe. And there are many stories of people who said their compound lasted all month just fine. I don't know what to think. My head is swimming.
It's $108 since we don't have insurance! I believe the Solutabs are even more expensive. I figure we'll try this for a few weeks. Hopefully by the end of the month we'll have some sort of insurance and I can ask my ped about the Solutabs. We have an appointment in 2 weeks so I can talk to the ped face to face instead of having to talk to nurse and have her relay information. Don't you hate that?
She prescribed 2.5 ML once a day but I don't know what that is in terms of mg. Maybe that dose is too low to use the Solutabs?
And our Tucker Sling will be here tomorrow.
Last night was just AWFUL. The Zantac seemed to work beautifully for 2-3 days and then stopped working (either that or it just doesn't last through the night). I really wanted to switch to Prevacid anyway since by all accounts, it's a more effective drug with less side effects.
Sorry about last night.
Maybe it was just one hard night?
2.5 ml, the dose depends on what the compound is. You'll be able to see it on the script label on the bottle. Ours is 3mg/ml. So if yours is that, then it would be 7.5 mg once per day. With the solutab, I believe those can come in 15 mg each, so you would split the solutab in half and give the half. I've heard of some compounds being 5mg/ml.
So, from our experience:
As far as dose timing. We have a refill every 14 days and that is fine. I noticed no increase in symptoms after a week, so for us it works. Our pharmacy only mixes it that way, too. Meaning, the script is for a month, but they fill half. Wait for me to call back 14 days later, then they make the rest of the compound. They, the pharmacists, at our pharm, say that it is not stable in the fridge past that long. However, I did not ask specifics about it being from opening the bottle or the med breaking down.
As far as flavoring, our pharm refuses to flavor, they say that it makes the compound less stable as well, but they did not specify that it was the citric acid specifically.
The GI spec we have has us split our dose, so we do it once in the morning and one at night. Did your ped give you that option, to split your dose? Our ped had us doing it just once per day (and a much lower dose, like, .5 ml but I can't remember exactly), when we saw the GI, she kicked it up to 1.5ml, twice per day - you may want to ask about that. I think the spaced dosings may work better for some babies as babes metabolize it fast, so it's helpful to do a two dose deal, am and pm. But, that said, I've also read about babies doing excellently on a single dose per day. It is all trial and error.
For us, it did take a full 2 weeks, close to 2 1/2 for us to see a difference. In fact, there was one point where I was breaking down, thinking at the two week mark, oh my god, this is as good as it's going to get (and it felt very very bad), and commiserating with my pp doula about it (crying mostly), and then 2 nights later, bam, she started sleeping inthe nap nanny. Others, however, have seen differences a whole lot faster! In just days!
I hope that your insurance kicks in SOON. $108 is hefty.
Are you also trying a milk and soy elim diet at the same time, or will you try that later, after 2+ weeks on prevacid? Just curious.
Just to share... I was off milk prods, eggs, all soy prods, and gluten, and she still did so much better on nutramagen. So much so, that after I was at work and she started getting mostly nutramagen instead of breastmilk, I had to stop giving her my freezer stash when I realized just how badly she was reacting over and over to a bottle of that vs a bottle of nutramagin.
Anyway, if the prevacid alone isn't helping, elim diet might.
I'm so sorry you are going through this. Just know it will get better. It will take some time getting the right meds, the right sleeping arrangements (I have high hopes for the tucker sling!), foods, etc., but it will. I was told that she would most likely no longer need the meds at a year, and that it would resolve by then, and that by 6 or 7 months things would start getting better. I thought they were crazy. But you know, I realized one day, around 7 1/2 months or so, that holy sh!t, I have only had to change my shirt 2 times today (instead of 6 or 7). And it felt like every week got better. I have even tried to lower the dose of her meds once, but it didn't work. I tried going down by a mg in the morning, but she started having bad days again, so we went back to 6 mg (2ml) in the morning. The GI suggested we wait until March to start weaning again, saying that it may be best to keep her on it through the cold and flu season, as being sick can cause reflux to get a lot worse. I can see that, i'm glad she is still on the meds right now. But, I may try weaning earlier than March (she would be 13 months then). I might try January or February. Just going slowly.
Do you have any IRL support?