or Connect
Mothering › Mothering Forums › Baby › Life With a Baby › Xantac mamas - please help!!!!
New Posts  All Forums:Forum Nav:

Xantac mamas - please help!!!! - Page 2

post #21 of 43
Quote:
Originally Posted by gradstudentmommy View Post
Tellera-Hmm, in retrospect, maybe we should have gone for the Tucker Sling for the crib. We co-sleep though so I thought the wedge would be better. I was told I could then put the wedge in the crib later once we move him to the crib (though like you said, I can't adjust the angle).

I've never had good luck elevating the mattress. I tried that when my DD had colds and like your LO, she'd just end up facing the wrong way or scrunched at the bottom.
Yeah, the tucker wedge or other wedge type thing is great for co-sleeping. Sounds like you made the right choice if you plan to continue to co-sleep for awhile. We did that with the nap nanny. I knew though, that ultimately we would not be co-sleeping, and I was ok with moving her to the crib at the time we were purchasing the sling, so we went ahead with the crib sling. We continue to sleep in the same room with her, though.

Yes, the elevation without sling is irritating. I'm hoping for a quick cold recovery so we can trial a flat mattress. I want to develop a bedsheet made of the soft side of Velcro, then a sleep sack that has the hook/loop side of velco on the back and sides. but that also doesn't make a lot of noise. lol.
post #22 of 43
Thread Starter 
Tellera, thanks for sharing your wisdom about all this. DD clearly does not have as severe a problem as your LO, but I wish I'd had someone there in the early days pointing out things that I now realize were clear signs of reflux. As a new mom, everything was difficult. We had difficulties with breastfeeding, with the birth, so the sleeping and feeding problems just seemed par for the course. The hiccups - Bea always, always had the hiccups. And she slept in her car seat for 3 months. Sigh. I wish I'd known sooner. Now that I DO know, I think I will take your advice and try to get her an appt with a GI specialist. I'm worried about damage that may have occurred because we waited so long to treat her reflux. I didn't realize the wait might be so long.

Tellera or gradstudentmommy, do either of yours have a cough? I feel like DD's cough has gotten much worse since starting on Zantac, which seems odd, since that's the symptom that made our new ped suspect reflux in the first place.
post #23 of 43
Quote:
Originally Posted by newmamalizzy View Post
So, did your ped diagnose your LO by testing for reflux, or was the diagnosis through symptoms? My ped seems to take a "if it works, that was the problem" approach, and I'm not sure I like it, especially when DD ends up taking something as awful as Zantac just to see if it works. Thing is, she has other symptoms that don't really fit reflux, and we pulled her off of solids because ped thought she might not be tolerating them yet. But how could she possibly tolerate a menthol/chemical concoction like Zantac when she can't manage something as innocuous as rice cereal? Argh.
I went in to the office after telling her about the problems and he pretty much cried the entire time. She tried feeding him a bottle herself and observed him and said she thought he had reflux. She told me to start on the Zantac, but she warned me it probably wouldn't work but that the insurance companies want to see you try a cheaper medication first before you switch to a more expensive medication. After 10 days we switched to Prevacid which is amazingly easy to dispense. Its a solutab. We put it in a syringe, slurp up some formula with it, and shake to disolve. After that, we squirt it in his mouth and he's happy as a clam.
Quote:
Originally Posted by newmamalizzy View Post
I'm worried about damage that may have occurred because we waited so long to treat her reflux. I didn't realize the wait might be so long.

Tellera or gradstudentmommy, do either of yours have a cough? I feel like DD's cough has gotten much worse since starting on Zantac, which seems odd, since that's the symptom that made our new ped suspect reflux in the first place.
Don't be worried! You know what, we do what we can for these little tyrants who demand so much from us and yet don't tell us what they want. Its okay that you went a little while without getting help, sometimes we just don't realize something is a problem, we think all the crying is normal or all the hiccuping is normal.

My baby ha a cough with Zantac. He also had wheezing. It was the reason we upgraded to Prevacid. You should definitely express your problems with Zantac to your doctor.
post #24 of 43
Quote:
Originally Posted by gradstudentmommy View Post
I was happy to see this post. My DS was just prescribed Zantac and I can't get him to take it. I tasted it. It's NASTY. My ped says it's wintergreen flavor. Why on Earth would they flavor it mint?

I'm sort of wondering if it's making DS's reflux worse. He's only been on it two days but last night was just awful. He couldn't sleep at all. I know Zantac gives me insomnia. Maybe it's giving him insomnia too?

I want to try an elimination diet in case there's something in my breastmilk bothering him and also try positioning him in a recline for sleeping to see if that helps.
Our pediatrician actually told me that mint is terrible for acid reflux. He also said it does nothing to "aid" digestion. He said this is a myth but so many buy into it. Our little one's reflux got markedly better after she was on Prevacid and you could tell it after one/two melty tablets. She takes 15mg. 1/2 in the morn and 1/2 in the evening. Zantac was horrible and made baby's reflux sooooo much worse. I also breastfeed and really if baby has true reflux, elimination diets while good to improve, won't remedy the whole issue. The esophogeal tract is immature and it doesn't allow for the (dare I say it?) sphinter to close and not let stomach acid back into the tract. My daughter refluxes back into her nasal passages if not on something. Hope this helps.
post #25 of 43
"I went in to the office after telling her about the problems and he pretty much cried the entire time. She tried feeding him a bottle herself and observed him and said she thought he had reflux. She told me to start on the Zantac, but she warned me it probably wouldn't work but that the insurance companies want to see you try a cheaper medication first before you switch to a more expensive medication. After 10 days we switched to Prevacid which is amazingly easy to dispense. Its a solutab. We put it in a syringe, slurp up some formula with it, and shake to disolve. After that, we squirt it in his mouth and he's happy as a clam." Orginally posted by SeattleRain


I have to say I have had this experience too with the Prevacid! It is the best stuff! The solutab is perfect. We would disolve in a bit of water, suck it up with a syringe but then we found dd could take the solutab even at 3 months in her mouth with a chaser of water. She did just fine!
post #26 of 43
Quote:
Originally Posted by SeattleRain View Post
After 10 days we switched to Prevacid which is amazingly easy to dispense. Its a solutab. We put it in a syringe, slurp up some formula with it, and shake to disolve. After that, we squirt it in his mouth and he's happy as a clam.

Don't be worried! You know what, we do what we can for these little tyrants who demand so much from us and yet don't tell us what they want. Its okay that you went a little while without getting help, sometimes we just don't realize something is a problem, we think all the crying is normal or all the hiccuping is normal.

Newmamalizzy - a big "yeah that" to SeattleRain above- don't worry, don't feel guilty - we do what we can with the information we have, and then do different things when we know more. With my first, no one would listen to me, the ped I had at the time refused to even consider anything beyond a low dose of zantac - no referral, no other meds, told me it was all in my head basically, and I didn't know better and had no support on this, and he went unmedicated after a horrible short trial on zantac. I felt really badly in retrospect. He cried nearly all the time for the first year, was "high needs", and slept just horribly that year. While he clearly was not as bad off as my daughter, I would even call it mild compared to hers, he still would have had a better quality of life had I been able to appropriately manage his symptoms. But you know what, he is 4 1/2 now and is just fine.

I was lucky with DD - I KNEW something was wrong, I had a very smart and sympathetic ped who'd been through this herself and had no problems trying different things and giving me a referral to the specialist, and the post-partum doula I hired was a retired pediatric nurse and was adamant that she had a really awful case of reflux and really helped me. Having that support was key. Plus getting in to the GI early due to a cancellation was a lifesaver.

As far as coughing on zantac, mine didn't cough more than normal, if I recall. She did have wheezing, but I chalked it up to the reflux.

And, the solutabs, yes, they are amazing! We can't use them as she's lactose intollerant and just happens to be that rare case that can't even handle the tiny amount of lactose in them. But while we tried them it was so easy. A note about the compound (if you can't do the solutabs for whatever reason) it's stable in the fridge for only 2 weeks. Most pharms are aware of this, but some still try to fill you a full month at a time. You just need to make sure they fill it half at a time so you refill every two weeks. It loses potency quickly.



This is a difficult thing to handle, reflux. Support is hard, I find folks you talk to often say "oh yeah, mine had that, he/she spit up a lot" (no discomfort or other symptoms) and many don't really understand the extent to which yours is having problems.

Anyway, I have to run, but know it WILL get better, and be easy on yourself.
post #27 of 43
My little guy doesn't cough but he sneezes and wheezes.

He is MARKEDLY better on the Zantac. He's a different baby. So I guess it does work for some babies.

Does anyone know how much Prevacid costs (both with and without insurance)? My LO isn't on insurance yet so I'm worried about the cost if we need to switch.

Also, the grape flavoring has made a big difference. DS doesn't like the Zantac but he no longer cries when I give it to him.

I just read a great book on infant reflux and it said it's actually pretty rare for infant reflux to cause permanent damage.
post #28 of 43
Quote:
Originally Posted by gradstudentmommy View Post
My little guy doesn't cough but he sneezes and wheezes.

He is MARKEDLY better on the Zantac. He's a different baby. So I guess it does work for some babies.

Does anyone know how much Prevacid costs (both with and without insurance)? My LO isn't on insurance yet so I'm worried about the cost if we need to switch.

Also, the grape flavoring has made a big difference. DS doesn't like the Zantac but he no longer cries when I give it to him.

I just read a great book on infant reflux and it said it's actually pretty rare for infant reflux to cause permanent damage.
So glad the grape flavor helps, and that the zantac is working great for your son! If it's working, stick with it.

I only know prevacid with insurance, we get the generic in a compound, and it's $30 a month (I pay the $30 once for 2 weeks, then come back and don't pay for the refill for the next 2 weeks). I think the solutabs were $40 a month, but I can't remember for sure. I do remember they were more expensive than the compound.

It's comforting to hear that perm. damage is rare.

Not sure what book you read, but you triggered my memory - this is also a good one on reflux: http://www.amazon.com/Colic-Solved-E...8532143&sr=8-2
post #29 of 43
Quote:
Originally Posted by schoolmom07 View Post
Our pediatrician actually told me that mint is terrible for acid reflux. He also said it does nothing to "aid" digestion. He said this is a myth but so many buy into it. Our little one's reflux got markedly better after she was on Prevacid and you could tell it after one/two melty tablets. She takes 15mg. 1/2 in the morn and 1/2 in the evening. Zantac was horrible and made baby's reflux sooooo much worse. I also breastfeed and really if baby has true reflux, elimination diets while good to improve, won't remedy the whole issue. The esophogeal tract is immature and it doesn't allow for the (dare I say it?) sphinter to close and not let stomach acid back into the tract. My daughter refluxes back into her nasal passages if not on something. Hope this helps.
Yeah the book I read said the Zantac just blocks acid production some so the reflux symptoms are less painful and it protects the esophagus since there's less acid going back up. Prevacid blocks the pumps from pumping acid so it's more effective. It's my understanding from the book that neither of these meds "cure" acid reflux, they just help manage the symptoms and protect the esophagus until the LO outgrows it. (A small portion of kids never outgrow it and need long term treatment and/or surgery).
post #30 of 43
Tellera-Yikes! Prevacid is expensive. That's what I was worried out. I had to pay $45 (full out of pocket price) for generic Zantac. I'm guessing the Prevacid will be well over $100.

My DH never put my son on his insurance. He was waiting for the social security card, which took 6 weeks. When we got the card he went to add my son and it said you had to add him within 31 days. I was soo mad at DH because I had asked him several times to call the insurance and he kept saying, "I need the social security card." So who knows if we can even add him. I'd pay anything to help my son but if we can hold off until we have insurance, that would be preferable. We'll get Medicaid if we can't get him on DH's insurance.

That's the book I read! I loved it. I thought it explained everything really well. He said Zantac is repulsive and stops working after a while for some unknown reason. But it does work for some and is a reasonable place to start. He usually goes straight to Prevacid though.

I'm supposed to call the ped Tuesday or Wednesday to check in and we have a 2 month visit in less than 2 weeks. I think it's reasonable to keep trying the Zantac since it seems to be working. My ped said she had another child with the exact same presentation as mine who is doing great on the Zantac. Maybe we just lucked out.
post #31 of 43
Quote:
Originally Posted by gradstudentmommy View Post
Tellera-Yikes! Prevacid is expensive. That's what I was worried out. I had to pay $45 (full out of pocket price) for generic Zantac. I'm guessing the Prevacid will be well over $100.

My DH never put my son on his insurance. He was waiting for the social security card, which took 6 weeks. When we got the card he went to add my son and it said you had to add him within 31 days. I was soo mad at DH because I had asked him several times to call the insurance and he kept saying, "I need the social security card." So who knows if we can even add him. I'd pay anything to help my son but if we can hold off until we have insurance, that would be preferable. We'll get Medicaid if we can't get him on DH's insurance.
That sucks! I'm so sorry. I feel lucky, our insurance would add our kids without the SSN. Otherwise I believe we would have been in your situation. I really hope they can add him. What is the insurance company saying, is there any leeway, or do you have to wait a full year until "open" time?
I believe both the compound and the solutabs were generic, for us. For the compound, you would need to find a compounding pharmacy, and I'd call a few to see what they would charge. The generic name for prevacid is Lansoprazole. You might check with Walmart for the solutab, to see how much they charge for it. I also strongly recommend contacting the makers of Prevacid and explaining your situation, and see what support they can offer, with coupons, or even assistance.
That's the book I read! I loved it. I thought it explained everything really well. He said Zantac is repulsive and stops working after a while for some unknown reason. But it does work for some and is a reasonable place to start. He usually goes straight to Prevacid though.
That's right, I forgot about the zantac losing effectiveness... that may have been a decision in us just phasing it out (that it probably wasn't helping at all). My brain is fuzzy.
I'm supposed to call the ped Tuesday or Wednesday to check in and we have a 2 month visit in less than 2 weeks. I think it's reasonable to keep trying the Zantac since it seems to be working. My ped said she had another child with the exact same presentation as mine who is doing great on the Zantac. Maybe we just lucked out.
Yeah, just go with it. But, at your appt. it wouldn't hurt to talk about a plan just in case it does start to lose effectiveness. On that influx reflux board I posted earlier in the thread, a few moms were told they could give mylanta for flair ups. We didn't go that route - no need as the prevacid keeps things in control very well. But, anyway, if it does lose effectiveness, it could help bridge rough episodes until something else kicks in, e.g., prevacid.
.
post #32 of 43
Tellera-We DIDN'T need to wait for the ss card. My DH just ASSUMED we did! He never called or looked online. Grrrrrr. I'm not sure what will happen. He faxed in the form Friday and we're waiting to hear. Maybe they won't notice?! Open enrollment isn't until July.

Contacting the makers of Prevacid is a great idea if we go that route. Thanks!
post #33 of 43
Quote:
Originally Posted by gradstudentmommy View Post
Tellera-We DIDN'T need to wait for the ss card. My DH just ASSUMED we did! He never called or looked online. Grrrrrr. I'm not sure what will happen. He faxed in the form Friday and we're waiting to hear. Maybe they won't notice?! Open enrollment isn't until July.

Contacting the makers of Prevacid is a great idea if we go that route. Thanks!
Yikes! Keeping fingers crossed that it works out!
post #34 of 43
We had to 'fail' at Zantac before the insurance would do Prevacid for my newest babe. Failing was exactly what you described-choking/gagging/spitting enough out that we couldn't accurately dose.

Prevacid comes in solutabs that you stick in their cheek, and it dissolves in seconds! It's awesome, makes dosing her MUCH easier and the results are fantastic!
post #35 of 43
Well our ped's nurse called back and said we could try Prevacid. She prescribed the liquid compound, which I've read goes bad after 5-14 days (depending on who you ask). I called the pharmacist with my concerns and they said they give you two bottles, one for each 15 days. She said it's the air (from opening and closing the bottle) that makes it go bad. But from what I've read on the internet, it's the fact that the medication breaks down without its protective beads and has nothing to do with air. But I suppose it can't hurt to keep the second bottle airtight until we need it. I've also read that flavoring can make it break down faster if it contains citric acid. The pharmacist had never heard of this but I got it unflavored just to be safe. And there are many stories of people who said their compound lasted all month just fine. I don't know what to think. My head is swimming.

It's $108 since we don't have insurance! I believe the Solutabs are even more expensive. I figure we'll try this for a few weeks. Hopefully by the end of the month we'll have some sort of insurance and I can ask my ped about the Solutabs. We have an appointment in 2 weeks so I can talk to the ped face to face instead of having to talk to nurse and have her relay information. Don't you hate that?

She prescribed 2.5 ML once a day but I don't know what that is in terms of mg. Maybe that dose is too low to use the Solutabs?

And our Tucker Sling will be here tomorrow.

Last night was just AWFUL. The Zantac seemed to work beautifully for 2-3 days and then stopped working (either that or it just doesn't last through the night). I really wanted to switch to Prevacid anyway since by all accounts, it's a more effective drug with less side effects.
post #36 of 43
Quote:
Originally Posted by gradstudentmommy View Post
Well our ped's nurse called back and said we could try Prevacid. She prescribed the liquid compound, which I've read goes bad after 5-14 days (depending on who you ask). I called the pharmacist with my concerns and they said they give you two bottles, one for each 15 days. She said it's the air (from opening and closing the bottle) that makes it go bad. But from what I've read on the internet, it's the fact that the medication breaks down without its protective beads and has nothing to do with air. But I suppose it can't hurt to keep the second bottle airtight until we need it. I've also read that flavoring can make it break down faster if it contains citric acid. The pharmacist had never heard of this but I got it unflavored just to be safe. And there are many stories of people who said their compound lasted all month just fine. I don't know what to think. My head is swimming.

It's $108 since we don't have insurance! I believe the Solutabs are even more expensive. I figure we'll try this for a few weeks. Hopefully by the end of the month we'll have some sort of insurance and I can ask my ped about the Solutabs. We have an appointment in 2 weeks so I can talk to the ped face to face instead of having to talk to nurse and have her relay information. Don't you hate that?

She prescribed 2.5 ML once a day but I don't know what that is in terms of mg. Maybe that dose is too low to use the Solutabs?

And our Tucker Sling will be here tomorrow.

Last night was just AWFUL. The Zantac seemed to work beautifully for 2-3 days and then stopped working (either that or it just doesn't last through the night). I really wanted to switch to Prevacid anyway since by all accounts, it's a more effective drug with less side effects.
Sorry about last night. Maybe it was just one hard night?

2.5 ml, the dose depends on what the compound is. You'll be able to see it on the script label on the bottle. Ours is 3mg/ml. So if yours is that, then it would be 7.5 mg once per day. With the solutab, I believe those can come in 15 mg each, so you would split the solutab in half and give the half. I've heard of some compounds being 5mg/ml.

So, from our experience:

As far as dose timing. We have a refill every 14 days and that is fine. I noticed no increase in symptoms after a week, so for us it works. Our pharmacy only mixes it that way, too. Meaning, the script is for a month, but they fill half. Wait for me to call back 14 days later, then they make the rest of the compound. They, the pharmacists, at our pharm, say that it is not stable in the fridge past that long. However, I did not ask specifics about it being from opening the bottle or the med breaking down.

As far as flavoring, our pharm refuses to flavor, they say that it makes the compound less stable as well, but they did not specify that it was the citric acid specifically.

The GI spec we have has us split our dose, so we do it once in the morning and one at night. Did your ped give you that option, to split your dose? Our ped had us doing it just once per day (and a much lower dose, like, .5 ml but I can't remember exactly), when we saw the GI, she kicked it up to 1.5ml, twice per day - you may want to ask about that. I think the spaced dosings may work better for some babies as babes metabolize it fast, so it's helpful to do a two dose deal, am and pm. But, that said, I've also read about babies doing excellently on a single dose per day. It is all trial and error.

For us, it did take a full 2 weeks, close to 2 1/2 for us to see a difference. In fact, there was one point where I was breaking down, thinking at the two week mark, oh my god, this is as good as it's going to get (and it felt very very bad), and commiserating with my pp doula about it (crying mostly), and then 2 nights later, bam, she started sleeping inthe nap nanny. Others, however, have seen differences a whole lot faster! In just days!

I hope that your insurance kicks in SOON. $108 is hefty.

Are you also trying a milk and soy elim diet at the same time, or will you try that later, after 2+ weeks on prevacid? Just curious.

Just to share... I was off milk prods, eggs, all soy prods, and gluten, and she still did so much better on nutramagen. So much so, that after I was at work and she started getting mostly nutramagen instead of breastmilk, I had to stop giving her my freezer stash when I realized just how badly she was reacting over and over to a bottle of that vs a bottle of nutramagin. Anyway, if the prevacid alone isn't helping, elim diet might.

I'm so sorry you are going through this. Just know it will get better. It will take some time getting the right meds, the right sleeping arrangements (I have high hopes for the tucker sling!), foods, etc., but it will. I was told that she would most likely no longer need the meds at a year, and that it would resolve by then, and that by 6 or 7 months things would start getting better. I thought they were crazy. But you know, I realized one day, around 7 1/2 months or so, that holy sh!t, I have only had to change my shirt 2 times today (instead of 6 or 7). And it felt like every week got better. I have even tried to lower the dose of her meds once, but it didn't work. I tried going down by a mg in the morning, but she started having bad days again, so we went back to 6 mg (2ml) in the morning. The GI suggested we wait until March to start weaning again, saying that it may be best to keep her on it through the cold and flu season, as being sick can cause reflux to get a lot worse. I can see that, i'm glad she is still on the meds right now. But, I may try weaning earlier than March (she would be 13 months then). I might try January or February. Just going slowly.

Do you have any IRL support?
post #37 of 43
Tellera,

Well good news. My husband heard from HR and they agreed to add my baby. He should be on the insurance in a few days. Phew!

I talked to a different pharmacist (intern actually) who said, "Sometimes it goes bad after 2 weeks so let us know if it becomes less effective." She said, "For some people it's fine, for others it stops working." Huh? I said, "If it's likely to go bad, why not just give me 2 weeks?" She said, "Well it's easier for you to only come once a month." ARrrrgh.

I asked if I could just buy 2 weeks now and she said, "No" since they already filled it and was made just for my baby."

But at least I know that in the future, if we stay on this, I can pick it up every two weeks.

But I'm going to ask my ped about the solutab. I looked and my dosage is 3 mg/ml as well. My appointment is in 2 weeks.

His symptoms are worst at night so maybe taking it at night in one dose will be OK. Ugh, two weeks to see a symptom improvement?

Last night was bad and the night before. And in retrospect, even on the good nights, I had to have him sleeping on my arm. I'd rather get to the point where he can sleep on his back on his own. And I just couldn't get him to keep the Zantac down. He tolerated the Prevacid a lot better just now.

I gave up dairy but not soy. I was waiting to see if dairy made a difference first.

I have some IRL support but it's nice to talk to people who have been through it themselves.

Thanks for all of the support and advice!
post #38 of 43
Our MD has us giving the split dose of Prevacid, she's on one tab at night and a half tab in the morning. Since overnights is the worst, that's when she gets the bigger dose. Once a day, according to our MD, isn't enough to keep it in her system on an ongoing basis, without a med level dip.

She's MSPI as well, so that makes a difference.
post #39 of 43
My DD is on Zantac for reflux and it does work for her. We tried weaning her off of it last month and things went downhill.

At first we had the same issues of her hating it. She didn't scream, she just spit it out. We had to aim it way back in her throat so she'd swallow by reflex.

Now... now it's different. Now she sees the bottle, smiles, and opens her mouth. Basically she started to LIKE taking it at about the same time she started eating solids.
post #40 of 43
gradstudentmommy - so sorry you are having to deal with this!! Glad the insurance worked out and that at least a few nights have been better (indicating if nothing else some of the issues are treatable!).

I can't figure out if my LO has reflux or not -- he has a few symptoms, but ped asked if it could be intestines, and I wasn't sure. I'm going to read up on the links posted here to try and figure it out. In the meantime, I'm on dairy/soy free diet and will be starting him on probiotics, as per ped.

(BTW, you can edit the post title by choosing the advance edits option from the edit page.)
New Posts  All Forums:Forum Nav:
  Return Home
  Back to Forum: Life With a Baby
Mothering › Mothering Forums › Baby › Life With a Baby › Xantac mamas - please help!!!!