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Unsure what to do...

post #1 of 11
Thread Starter 
My daughter is 4 and just started preschool. It has been an interesting experience.
She originally started at a Waldorf style preschool. It was a flop. She started throwing tons of tantrums, lots of screaming.

We pulled her and switched her over to the state preschool (we are low income and qualify for preschool through the school district) It has been great for her. No tantrums or screaming. She is doing well on all fronts, behaviorally, academically, and socially.

She is being evaluated for a speech delay, but they are not sure if she qualifies, the teacher said that there is something odd but they are not sure if it is a speech delay.

We are also working with a behavioral specialist through SELPA, but we are having our last meeting we her on Friday because my daughter is doing well as far as the negative behavior goes. The behavioral specialist has said that she thinks that my daughter has SPD and is on the autism spectrum. This sound right to me, my best guess as a mother is SPD or Aspergers. My husband thinks that OCD is also a possibility.

Her teacher has also commented that she sees behavior that is odd from her. Routines are huge for her. And they are often in groups of 3's. For example when she enters that classroom she has to circle the tables 3 times before she goes to wash her hands. She has to say goodbye to me three times before I leave and she says good bye to the teacher three times before she leaves at the end of the day. For like a month she had to give the teacher a hug every day at the end of class. She is also very attached to these routines, and is very resistant to change. She also demands a routine in the classroom, on days when the schedule is different she is prone to problems.

I have also noticed that she has started flapping her hands, always in groups of three times.

So I am not sure what to do. My husband and I think she might need a 504 plan as she enters school, but I don't know how to get a diagnosis, this stuff is only visible when you spend time with her and she relaxes. And right now she is doing great so she doesn't need one. But everything that happened with the first preschool made me realize how easily and quickly things fall apart when she is in the wrong environment. And that makes me want to be prepared in case things fall apart again.

I just don't know what to do here, and quite honestly I have no one to really talk to about this is real life. And I really need someone to talk to.
post #2 of 11
It could be that she has established a routine and is thriving with it - it could be OCD or something else. It seems like you need to bring in a professional (developmental pediatrician, neuro-psychiatrist, etc.).

{{{hugs}}}
post #3 of 11
Thread Starter 
I agree I need to bring in a professional. I just don't know who? What type of specialist? Last time I tried to get her ped to refer her she laughed at me and said that she was fine. We have a new ped now but I am not counting on support from the ped.

I have spent the last 4 years knowing that something was going on and no one else has ever seen it. I was once told that "the only thing wrong with her is me". I am very nervous about this. No one has ever believed me until now.

The behavioral specialist suggested OT for her but an evaluation is really expensive and not covered by insurance and we can't afford long or short term OT for her either. We don't have good insurance right now. And she doesn't really qualify for services through the school district at this point because she does not have any educational deficit.

Maybe I should just drop it and hope everything works out ok. again. Maybe it is just me.
post #4 of 11
Pretty - your instincts are there for a reason. They are there to tell you when something isn't quite right. Never doubt them - they have no ulterior motives - they will never steer you wrong. If your gut is telling you that something isn't quite right, then something isn't quite right.

I'd go for a developmental pediatrician to start. Be prepared to wait for an appointment. You may also want to look into a pediatric psychologist or neuro-psychologist.
post #5 of 11
I agree that a developmental pediatrician is the place for you to start. If the evaluation is not covered by your insurance it will be a bit expensive as well, but you will have the word of a *magical* MD that your dd has X issues and needs X services.
post #6 of 11
Thread Starter 
So a developmental pediatrician.

But I thought that developmental pediatricians were for developmental delays, which my daughter does not seem to have. They help with behavioral stuff too? I was thinking she needed some sort of psych.

I was going to ask for a letter from the behavioral specialist that has been observing her. Is there anything else that might help me show the doctor what is going on? Generally someone has to be around my daughter for several hours or days before they notice the oddness. I am worried that the doctor wont see the problems.
post #7 of 11
Thread Starter 
Quote:
Originally Posted by Emmeline II View Post
you will have the word of a *magical* MD that your dd has X issues and needs X services.
This is our goal. This is what she needs. I just need to figure out how to get it.
post #8 of 11
Behavior is part of development. Pediatricians are generalists; developmental pediatricians are specialists.

My ds has similar behaviors and has an ADHD diagnosis and possibly Asperger's as well; he also has some sensory issues. We are waiting on an appointment with a DP at our children's hospital.

Ds does have a psychiatrist but we went that route first (well, 2nd after the family therapist) because Kindergarten was hell and we will be waiting 9-12 months for a DP appointment (we also did an OT eval); ds is now on medication and has cognitive behavioral therapy weekly. The medication resulted in an immediate improvement in school behavior (ds is in a different school this year) and the therapy seems to finally be showing some results with improvement in school behavior. Ds had a 504 plan within two weeks of the start of school.

Developmental Pediatrician

Look up the issues you think she has SPD, Asperger's, OCD, etc. and make a list of her behaviors that fit those criteria.

Sensory Processing Disorder Checklist
post #9 of 11
i agree with a trip to the dev. ped. now, if she has no social problems, i really wouldn't suspect asperger's. i have a 4 yr old dd with AS, and social deficits/delays are the *core* problem. as far as the routine stuff, it does certainly sound like possible ocd. asperger's kids like routine, but there's so much more to it, as well.
as far as the docs not seeing what you see, i would make a very detailed list before your visit. tell them exactly ehat you see in your daughter, when it started, etc. i was lucky in that the team really listened to me, and knew that brief glimpses of my daughter wouldn't paint the whole picture.
i have to say (just in my experience), the world of behavioral/social stuff for girls is more confusing to medical folks. read, research, be an advocate. i've heard "the mislabeled child" is a good start for kids who are tough to label... good luck!
post #10 of 11
I would take her to a neuropschy specialist for the evaluation.

When my DSS was evaluated it took almost 8 hours, he went in on tow different occasion so that she could see him at various times and get a better sense of him. Also, all the parents and primary teachers answered a long evaluation about him.

It was the piece we needed to be able to get an IEP, which if she has a diagnose is what you will need (it's like the next step beyond a 504 and better for a lot of reasons).

We felt better after the evaluation- it helped name what was happening and give us a direction to go in.
post #11 of 11
Thread Starter 
Quote:
Originally Posted by nayma View Post
i agree with a trip to the dev. ped. now, if she has no social problems, i really wouldn't suspect asperger's. i have a 4 yr old dd with AS, and social deficits/delays are the *core* problem. as far as the routine stuff, it does certainly sound like possible ocd. asperger's kids like routine, but there's so much more to it, as well.
as far as the docs not seeing what you see, i would make a very detailed list before your visit. tell them exactly ehat you see in your daughter, when it started, etc. i was lucky in that the team really listened to me, and knew that brief glimpses of my daughter wouldn't paint the whole picture.
i have to say (just in my experience), the world of behavioral/social stuff for girls is more confusing to medical folks. read, research, be an advocate. i've heard "the mislabeled child" is a good start for kids who are tough to label... good luck!
She does have social issues, its just that in comparison to the other issues right now they are relatively mild. She has a hard time with kids her age and plays well with children who are more non-verbal or a year younger than her. Also her friendships seem very one sided with her friends caring more about her then she does them.

Her routines and language issues are worse. They are the issues that are affecting her ability to function.

She is a toe walker (all the time! she has still not grown out of it at 4) and had multiple other developmental red flags for autism. Her language development has been very odd, and has involved loosing language for periods of time.

She is currently being evaluated for speech therapy and from what I understand the speech therapist thinks that there is something odd with her speech, they are unsure if it is a delay and if she is going to qualify for services but there is still something off about her use of language/speech.

I could be wrong and she could have OCD, but it just seems like there are so many arrows pointing to something on the autism spectrum and we will most likely find our answers there.

But I am not a doctor, unfortunately.
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