He sleeps with my husband, our baby and I so I know he didn't get into anything. (Our medications are kept in a cabinet that he is incapable of reaching and the only chemical he could have had access to is bleach. However, I offered a drug screen if she wanted to rule out the remote possibility that he had gotten into something...she agreed that it was extremely unlikely and mentioned that the way he was "rebounding" only reinforced "postictal"...she brought in a neurologist who agreed.
My son had a seizure. In his sleep. I was so scared when we arrived at the doctor that this news seemed relieving...until now.
We have been to two hospitals, had blood work, an EEG and an appointment scheduled with another pediatric neurologist in a big city hospital (2.5 hours away) for the following weeks.
Our pediatrician was wonderful...honest, well informed, very black and white and very reassuring. She said she did not think he was in any danger. She told me to watch him carefully, explained what to do if he had a Grand Mal seizure. She said he may not seize again for years...months...weeks or days. Of course, the opposite is also true. She didn't expect the EEG to find anything abnormal and said many kids have normal results between several seizures. However, we're going to meet with the pediatric neurologist for a thorough appointment at her recommendation.
I can handle this...but I'm scared. I've been reading all night and I didn't sleep at all (I stared at my boy all night) I can handle seizures but I can't handle the unpredictability of this whole thing. Maybe it was a one time thing?! But why?? He isn't sick, he has NO other symptoms, and just as the doctor predicted he was completely normal by mid-day yesterday. Thankfully he was fine this morning as well.
Has anyone else experienced anything like this? What do I expect? Why would something like this occur one time, with no warning and never return?