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SPD support thread

post #1 of 3
Thread Starter 
Haven't seen one of these in a while, but if there is one already going, let me know.

Ds is 6 and recently received the dx of SPD - mild-moderate. He's got a lot of seeking tendencies.

Sometimes we can go weeks when things actually run smoothly and I think, "Ah, this is what a normal household is like." I LOVE ds and his spirit and passion, but I am pushed to my breaking point frequently.

We've started OT, and hopefully we can get into a more regular schedule again now that we're changing clinics. It has helped. Also, in a couple of weeks, we're going to start Therapeutic Listening, which I have high hopes for, especially for his emotional regulation. When he gets upset or irritated over something (even little), the emotional disappointment or upset overcomes him and everything after that just goes downhill. He reacts with extreme - "I don't even want it anyway!!" and throws "it" in the trash, or just absolute defiance of every. single. direction afterward. Now, my family and others all say behavior modification techniques - but I know that those don't work very well with ds or many SPD kids. They are responding at a different level. I DO instill consequences and I try to keep them logical, but I also try to understand where he's coming from. But other times...well, I have many bad mama moments yelling at my poor ds who is just a little boy, but who is also acting absolutely "defiantly" (I use the word because he begins making choices that are the exact opposite of what I say or what needs to be done. (Please don't flame - I carry enough guilt over getting angry - I know.) Don't get me wrong, I don't try to control his every move - there are just certain things that are expected behaviors and need to be done (for example, getting up and dressed, teeth brushed, hair combed...). He is perfectly capable and has all kinds of systems in place to support him, including generally kind and gentle and very loving parents to help him along.

So how do other people deal with the emotional regulation?

I'd love to read other people's stories and hear how things are going.
post #2 of 3
Hi! Thanks for bringing back a support thread for SPD.

My DD (nearly 5) has SPD, an articulation disorder, low tone, mild fine and gross motor delays and social issues/anxiety. I think we're on the road to a high-functioning autism dx, but we're still finding pieces of the puzzle....

Like your DS, DD has very little emotional regulation. I don't have many answers...it's something we struggle with daily. I could really identify with your post, especially the part about your own reaction. It's HARD. I KNOW DD reacts to my anxiety, negativity and overall inability to cope. DD's meltdowns trigger those things for me and things spiral out of control, ending with me yelling and feeling guilty. It's a BIG reason I decide to put DD into a 5 day a week Prek and to pick up a part time job. I wasn't coping well AT ALL and something had to change.

Have you tried reading social stories to your DS? Our EI coordinator gave us some (mostly to deal with anxiety)...DD also has a key chain with laminated cards with pictures/phrases (hers are what to do when another child grabs from you...a big issue for DD...options like walk away, take turns, tell a grown up, etc....something we can visually look at together and discuss instead of, hopefully, yelling or crying.)

We did Therapeutic Listening last year, mostly to help with sound sensitivity. It really seemed to help. Not sure it helped with any other aspects (I kept weekly logs about behavior, etc. and it really was hit or miss....). . It was hard to get her to listen for 20 minutes 2X a day...we resorted to a sticker chart and calling it 'homework' for her OT. I hope your DS has success with it.

Look forward to connecting with fellow SPD mamas. It helps keep me sane.
post #3 of 3
Thread Starter 
Hi Beachbaby! Thanks for the support. It's so true that he reacts to my feelings and I react to his actions/meltdowns, and it all spirals downward. Glad I'm not alone, but I need to find the stop for that.

Yes, we do social stories and the Superflex and Your a Social Detective programs with him. I need to get better about pulling them out consistently, though.

I asked him today - when we were having a nice, relaxed afternoon - what he thought we should do to help him and me when we get angry. I suggested that I need to give myself a mini-"timeout" when I feel myself getting mad. He said maybe if I gave him a little hug that would help squeeze all the tears out when he's mad. I told him I liked that idea too and that I'd like a hug, too. So....we're going to try hugging when we feel ourselves getting angry. Could work.

We'll see how the TL goes for him. He usually really likes music, but he's listened to it a couple of times at the OT and didn't love that it sounded "scratchy." Plus, after the first session when he used it, he was in SUCH a bad mood later I was really wondering if it had triggered something. The second time, though, he was fine, so I'm hoping it was just coincidence. As I guess is true of most SPD kids, he's extremely sensitive to things - therapy, music, medication, activity... Always has been.

Hope this thread gets going. It's nice to know I'm not alone.
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