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Any CF Mamas out there?

post #1 of 3
Thread Starter 
My neice was born 2 weeks ago and has been in the NICU since birth with a meconium ileus, now has a colostomy bag. Her genetic testing just came back positive for cystic fibrosis today. I am devastated, as is my sister. Anyone BTDT with remotely positive stories?
post #2 of 3
I know there is at least one mama on here with a daughter with CF and they are doing well. I know there have been a lot of strides made in treating CF and the life expectance has increased a whole lot. Hug hugs to your sister and your whole family navigating.


ETA- here is a link
http://www.mothering.com/discussions...ystic+fibrosis
post #3 of 3

Just wanted to say that I had a childhood friend with CF; she's now my age (36) and doing pretty well, though still has many health issues. All the very best to your niece and your family

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