My neice was born 2 weeks ago and has been in the NICU since birth with a meconium ileus, now has a colostomy bag. Her genetic testing just came back positive for cystic fibrosis today. I am devastated, as is my sister. Anyone BTDT with remotely positive stories?
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post #2 of 3
10/29/10 at 12:34pm
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I know there is at least one mama on here with a daughter with CF and they are doing well. I know there have been a lot of strides made in treating CF and the life expectance has increased a whole lot. Hug hugs to your sister and your whole family navigating.
ETA- here is a link
http://www.mothering.com/discussions...ystic+fibrosis
ETA- here is a link
http://www.mothering.com/discussions...ystic+fibrosis
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11/15/10 at 9:31pm
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