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Nimbly Gnoshing our way through November Chat! - Page 4

post #61 of 886
Quote:
Originally Posted by mamafish9 View Post
That's totally true, Shannon - we just use the drops, so I tend to think of those first - I think most of the sublinguals get swallowed with our kiddos (DH finds the sublinguals compare well with the drops for effectiveness, but he holds them under his tongue until they dissolve).

OK, MIL rant. She's been playing these dumb dress-up games on the computer with DD, which we decided wasn't a battle worth fighting. Last night, I walk in on her showing DD how to use google, and how to type in URLs, and writing down a list of dress up games URLs for her.

So I calmly explained to DD that the internet was a big place, not all of it OK for 7 year olds. That just like always, she needed DH or I with her if she was going to use Google, and that she could only visit sites we set her up an icon for (we create desktop shortcuts to sites she can visit). MIL's looking all mutinous, so after DD goes to bed, I show her some of the contents of the sites she put on DD's list (from lady gaga & paris hilton stuff to a game called "how far will you let him go". yeah.) And then I showed her some of the fun sites you get to searching on "dress up games" (I took my adult filters off to make a point). Her response "she's hardly going to get in any real trouble, it's only the internet". So she's banned from giving DD internet lessons now, and all bitter.

I get that she's probably clueless about the internet, and the perils of letting a very computer savvy, curious, and naive kid loose on the Google without supervision. But I also know the reason she was teaching DD how to do this and how to get to the dress up sites is because her mama doesn't let her do anything fun and girlie (the modern equivalent of sneaking her candy, I guess). Sigh. 3 more days. DH is ready to make her walk home.
Sucks. Hugs.. HOpe you make it.
post #62 of 886
Hugs mamafish. I hope the rest of the visit is uneventful.
post #63 of 886
Thanks everyone! It makes a difference .

Quote:
Originally Posted by whoMe View Post
You know you can exclude certain people (or lists of people) on fb?
Yeah, but I'd manage to screw it up at some point .

Quote:
Originally Posted by JacquelineR View Post

I hope I am less of a control freak as I age.
I keep telling myself, "remember not to do this to your kids..."

So back in allergy forum topic areas, DS has been playing with his Halloween candy (squishing it, lining it up, stacking it). He broke into one of the chocolate bars by accident last night. I don't think he ate a lot of it, but some. This is my hugely reactive to chocolate kid. And then he slept through the night. Go figure! Maybe he just didn't get much, but I'll have to trial him on chocolate ice cream or something. I'll do it the last night MIL is here ... <insert evil laugh>
post #64 of 886
Quote:
Originally Posted by mamafish9 View Post
I'll do it the last night MIL is here ... <insert evil laugh>


DD slept HORRIBLE last night. No clue why. We're going to see the GI tomorrow and re-discuss all our options for figuring things out. I feel like we're really stagnant and I need some direction. Wish us luck that we get some.
post #65 of 886
Quote:
Originally Posted by changingseasons View Post


DD slept HORRIBLE last night. No clue why. We're going to see the GI tomorrow and re-discuss all our options for figuring things out. I feel like we're really stagnant and I need some direction. Wish us luck that we get some.
Luck. I hope someone thinks of something new. I hope its a clear choice.

I feel stagnant too. I'm just frozen with indecision.
post #66 of 886
We are three days into reintroducing beef to our diet, which is the first thing we picked to reintroduce. We eat 100% grassfed organic beef. This evening DS broke out in hives. I honestly cannot figure out if it is beef or not however, because overall his eczema never really got better during the 4 week ED (in fact I think it may have gotten worse!) and I have never seen a reaction to beef before. We are going to see the allergist in the morning and I gave him a dose of Benadryl not thinking of the appointment, so now I am not sure if they will be able to do any testing!!

Plus as a bonus I weighed myself this morning and I am really scared at how little I weigh. I have had trouble keeping on weight while nursing DS and was finally putting on some weight before the ED, but since we started it I have lost 12 lbs and I am scary skinny. I don't know how to balance DS needs (to do the ED to maybe identify a cause of the eczema -even though I don't feel it is working) versus my need to keep on some lbs. I feel like I am at the end of my rope and we are just starting (but I think this is also because I am hungry all the time).
post #67 of 886
OM freakin G. That KitKat was SOOOOO not worth this. I have multiple new itchy patches - if I had an established relationship with a dermatologist, I would so be getting this stuff biopsied for dermatitis herpteformis. Sorry, all I can do is whine right now.
post #68 of 886
Quote:
Originally Posted by Poodge View Post
We are three days into reintroducing beef to our diet, which is the first thing we picked to reintroduce. We eat 100% grassfed organic beef. This evening DS broke out in hives. I honestly cannot figure out if it is beef or not however, because overall his eczema never really got better during the 4 week ED (in fact I think it may have gotten worse!) and I have never seen a reaction to beef before.
Often, when you take a food out of your diet for a while and then reintroduce it, the symptoms will be a lot more pronounced. Although it does seem strange that it would take 3 days before the hives showed up. No new foods today?

Quote:
Originally Posted by deditus View Post
OM freakin G. That KitKat was SOOOOO not worth this. I have multiple new itchy patches - if I had an established relationship with a dermatologist, I would so be getting this stuff biopsied for dermatitis herpteformis. Sorry, all I can do is whine right now.
Oh, that sucks. If it makes you feel any better, my eczema has suddenly reappeared after a 2 year hiatus (although I'm nowhere near as miserable as you ), which means I'll probably have to give up all the delicious food I've been eating. Again. sigh. Big hugs.


I think DD is reacting to avocados now too. She slept REALLY bad last night- I think about 4 hours of tossing and turning, wide awake (and waking me up every time she moved.) Tonight, she slept a whole 1/2 hour before waking up crying. Should be another fun night. Tomorrow is our appointment with the GI, so we'll see how that goes. Oh- speaking of.... I'm trying to put together a list of questions to ask. Here's what I have so far; give me some ideas to add to my list!
- What are the possible scenarios that we're looking at (for why DD continues to lose foods and why she can't digest grains/starches/etc.): low stomach acid, lack of digestive enzymes, lack of gut bacteria....?
- What would cause each of those things? (thyroid, zinc definiciency, parasites, etc)
- Are there markers (blood/stool/urine) that we can look for that might point to one of these causes?
- If we do agree to the scopes, what exactly will you be looking for? Give me some examples of what you might find.
- Given those examples, what would we do in each scenario (medication, nutrition, etc.)?
post #69 of 886
cs and Emily! I keep shooting myself in the foot, too, knowing that it's a bad idea to eat something but rationalizing and doing it anyway. My issue is that the worse I feel, the more I rationalize
Quote:
Originally Posted by Poodge View Post
We are three days into reintroducing beef to our diet, which is the first thing we picked to reintroduce. We eat 100% grassfed organic beef. This evening DS broke out in hives. I honestly cannot figure out if it is beef or not however, because overall his eczema never really got better during the 4 week ED (in fact I think it may have gotten worse!) and I have never seen a reaction to beef before. We are going to see the allergist in the morning and I gave him a dose of Benadryl not thinking of the appointment, so now I am not sure if they will be able to do any testing!!

Plus as a bonus I weighed myself this morning and I am really scared at how little I weigh. I have had trouble keeping on weight while nursing DS and was finally putting on some weight before the ED, but since we started it I have lost 12 lbs and I am scary skinny. I don't know how to balance DS needs (to do the ED to maybe identify a cause of the eczema -even though I don't feel it is working) versus my need to keep on some lbs. I feel like I am at the end of my rope and we are just starting (but I think this is also because I am hungry all the time).

First, EAT MORE! Of whatever you can, just eat more. Losing weight can release toxins, and those toxins can go in milk and cause eczema.
Second, I've caused eczema in my not-eczema-prone dd on various elimination diets, due to nutrient deficiencies. Are you getting plenty of folate, b6, b12, molybdenum, magnesium? And by getting plenty, I mean supping for all of those, save maaaaybe folate? Those nutrients are common deficiencies and are necessary for decent detoxing. Eczema is a symptom of clogged detox pathways.
post #70 of 886
<-- me right now.

I've spent the day (when the kids have let me) reading all over the allergy forums and I'm so overwhelmed. I feel like I need a doctorate in chemistry to understand everything!

I just realized all of us have midline defects. No wonder we have so many issues! DS1 had a severe tongue-tie (clipped at 6 & 8 weeks) complete with the v-shaped front teeth, high arched palate and cleft chin. DH has the exact same issues, plus possible hypospadias as an infant (which had to be surgically corrected.) I have a high arched palate and I never realized until today, but I'm tongue-tied too! DS2, who was the first with food intolerances, amazingly has a completely normal palate and tongue, but a tight lip frenum (that he keeps splitting ) and his front teeth came in with a big space between them, just like my dad.

So... it's no wonder we're so messed up. I think we're making a good start, but I want to do more, quickly. I did get DH to finally start taking some of the same supplements I'm taking right now - B12, D, mag, C, bioplasma & a cheap multi. I know we both need more. What else should we add? I talked his ear off for like an hour tonight about all this stuff. He's very receptive.

DS1 is refusing to take any supplements now. He won't even swallow the melatonin he was taking so well last week. He will let us put it in his milk, but it doesn't dissolve well. He wants gummy vitamins. I told him I'd see what I could find lol. The good news is, he's been very even-keeled the past 2 days, except this morning when we had blood sugar and potty issues (he is very bad at "listening to his body" and often refuses to use the bathroom for hours after he wakes up) and we both had a little meltdown. Oops. Once we got those issues straightened out, the rest of the day was fantastic.

The highlight of my day today was DS's cartwheel performance, set to the Pogues on CD.

Quote:
Originally Posted by deditus View Post
OM freakin G. That KitKat was SOOOOO not worth this. I have multiple new itchy patches - if I had an established relationship with a dermatologist, I would so be getting this stuff biopsied for dermatitis herpteformis. Sorry, all I can do is whine right now.
Sorry. I ate some cheese sticks from Sonic about a month ago; I guess I was in denial about the wheat... yeah I paid for it - spent days HURTING, depressed and itchy. (Gluten causes all over body pain and major mood issues for me, plus the dreaded DH rash.)
post #71 of 886
Quote:
Originally Posted by changingseasons View Post

- What are the possible scenarios that we're looking at (for why DD continues to lose foods and why she can't digest grains/starches/etc.): low stomach acid, lack of digestive enzymes, lack of gut bacteria....?
- What would cause each of those things? (thyroid, zinc definiciency, parasites, etc)
- Are there markers (blood/stool/urine) that we can look for that might point to one of these causes?
- If we do agree to the scopes, what exactly will you be looking for? Give me some examples of what you might find.

Be really specific about this question. When I saw the GI doctor for DD it sounded more like they were going to go on a fishing expedition more than anything else. Meaning, there was no real smoking gun they were looking for that you probably couldn't figure out in another way.

- Given those examples, what would we do in each scenario (medication, nutrition, etc.)?
Hugs. This is so hard. I hope you get some answers. It's a terrible place to be.
post #72 of 886
We had bad sleep here too last night. DD3 woke up with cramps and gassy. Still trying to calm her tummy. I hope it will happen soon. She's so bloated that it feels like we are back to step one.
post #73 of 886
So sorry CS - wish we can help relieve the stress.

Mamafish - your MIL sucks.

want to update about the baby and cool/not cool things I'm seeing with regard to allergies - but don't have time now.
Forgot how hard it is to get baby to sleep and stay asleep with little ones around.
post #74 of 886
Quote:
Originally Posted by chlobo View Post
Be really specific about this question. When I saw the GI doctor for DD it sounded more like they were going to go on a fishing expedition more than anything else. Meaning, there was no real smoking gun they were looking for that you probably couldn't figure out in another way.

Hugs. This is so hard. I hope you get some answers. It's a terrible place to be.
Thanks. And yeah... that's what I'm afraid of. That the report will come back and say, "we found damage in her intestinal track." Well, yeah. Duh. That doesn't really help me much. But at least this GI is pretty nice, and willing to listen to my questions.

eta: thanks m2s. Can't wait for the updates! Hoping that there's more cool than not cool...
post #75 of 886
Thread Starter 
Quote:
Originally Posted by changingseasons View Post
Thanks. And yeah... that's what I'm afraid of. That the report will come back and say, "we found damage in her intestinal track." Well, yeah. Duh. That doesn't really help me much. But at least this GI is pretty nice, and willing to listen to my questions.

eta: thanks m2s. Can't wait for the updates! Hoping that there's more cool than not cool...
try pming karen for better ideas how to be more specific. scout recently had a "fishing trip" scope. i think

eta: shoot just called her, hoping to give her a heads-up to look here, but I think she's at work. she has so much going on with Scout too right now.
post #76 of 886
Hi all, not much time to chat but wanted to pop in and say my rash is still getting worse, I'm miserable, not sure what to do but go back to the ER today. It's still spreading, I still can't sleep well, it's like being covered in poison ivy that just keeps spreading.
post #77 of 886
Quote:
Originally Posted by True Blue View Post
Hi all, not much time to chat but wanted to pop in and say my rash is still getting worse, I'm miserable, not sure what to do but go back to the ER today. It's still spreading, I still can't sleep well, it's like being covered in poison ivy that just keeps spreading.
Sorry to hear that. Did you stop taking all your supplements?
post #78 of 886
Quote:
Originally Posted by True Blue View Post
Hi all, not much time to chat but wanted to pop in and say my rash is still getting worse, I'm miserable, not sure what to do but go back to the ER today. It's still spreading, I still can't sleep well, it's like being covered in poison ivy that just keeps spreading.
(not knowing much about rashes)
It's got to be some sort of detox at this point, no? Some sort of continual exposure to something, which makes me guess the supps you're trying to fix it with? Maybe take another close look at those?
post #79 of 886
The only one I've been taking is the Thorne prenatal, which I started after the reaction. Still spreading. It's crazy.
post #80 of 886
True Blue,

Are you doing bentonite clay, vit C, Epsom salt baths, anything topical?

Link to the list of ingredients in the prenatal?

did you stop the probiotics?

do you want to post photos of the rash? Where is is located, originating? How does it spread (with scratching, at night, with heat, )?

What new environmental exposures? soaps, shampoo, laundry, cleaning chemicals...

Pat
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