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Biggest misconceptions....

post #1 of 23
Thread Starter 
OK, so dd is on the spectrum and I have noticed that there are alot of misconceptions about ASD. I am sure that is the same with many many other special needs. So, I figured it might be nice to have a thread where we can write out the biggest misconception about our sn kids....

So for me to start..

People think that dd can't have Asperger's because she is so talkative and smiles.

OOOH and this one

People think that her behaviors will stop if I just spank her for them (things like meltdowns when she is overwhelmed).
post #2 of 23
Misconception: autistic people want to be like neurotypical people. We should work to fix/help our autistic kids to be like us so that they fit in.
post #3 of 23
That being legally blind means he can't do all the fun things that other kids do.
The one that bugs me the most is that because he's legally blind he will never be a fully functioning adult. Um... Hello?! I'm a fully functioning adult and legally blind!
post #4 of 23
I thank the creators of multiple tv shows for this one:

Being a great genius means you have ASD.

The corollary, of course, is that having ASD means you're gifted.
post #5 of 23
That children with Down Syndrome are all sweetness and light.
post #6 of 23
(Not the biggest, but the most annoying)

That deaf babies can read lips....Seriously? She's 18 months, do you think she can read lips? Can you imagine trying to learn Chinese from the TV, with it muted! No, she can't read lips.

(And now the biggest)

Deaf means unable to hear anything. There is a HUGE variation in the ability to hear among people with a hearing loss. It can range from mild to near complete loss, and anything and everything in between.

Also, just because she wears hearing aids does NOT mean she speaks. And in reverse, just because we sign does NOT mean she does not hear and speak. Yes, hear. Deaf children CAN hear.
post #7 of 23
He can't be autistic...he can speak.
He can't be autistic...he has friends.
He can't be autistic...he's just spoiled.
He can't be autistic...he's just immature, he'll grow out of it.

And then for my other son gifted with a learning disability:
But he's so smart, how can he have a learning disability.
He doesn't have a learning disability, he's just lazy.
post #8 of 23
His behavior is due to my non-violent parenting
he can't be autistic unless he behaves like dustin hoffman in Rainman
post #9 of 23
Sensory Processing Disorder isn't real.
Sensory Processing Disorder is really ADD/ADHD, ASD or bad parenting.
He would "be normal" if I hit him. Or sent him to school.
He will outgrow his sensory issues.
Medication will fix him. Therapy is a "scam."
I just need to "make him" sit still/ be quiet/ not cry when something is loud etc etc etc.
He's too smart to have special needs.
He's too "special" to be smart.
He doesn't really have food sensitivities and allergies. I am just a mean health Nazi.
post #10 of 23
Its in a thread somewhere here, but copied from my blog (in part, edited down obviously, lol) from this year's Autism Awareness month:
Quote:
Misconception #1: There are no Autistic Adults. Also: Autistic Adults can’t be loving, or have families.

The truth: There are several Autistic adults with families all around you. They are loving and have the same type of “family life” that other families have. Autistic adults also have jobs and thrive at those jobs bringing diversity and unique skills into the workforce and our society.

Misconception #3: Autistics can’t express themselves, communicate and don’t recognize emotions or show emotions. Or: Autistics only have 2 emotions, or no emotions.

The Truth: Autistics show their emotions differently and communicate differently. It may not be the same communication NTs are used to, but Autistics do communicate. Autistics have and show emotions, again, they may be different, but they are there.

Misconception #4: If an Autistic person can speak or function, they have High Functioning Autism.

The Truth: High Functioning Autism is not a recognized diagnosis on the DSM. Its also not fair to label someone high functioning or low functioning based on their ability to conform to society or communicate as others communicate. Its also not fair to label someone as high functioning or low functioning based on IQ scores, IQ test are highly inaccurate when used on individuals who’s brains work differently. They are designed for Neurotypicals, not Autistics.
(I edited because I just noticed I had some "neurodiversity misconceptions" in that too and I'll keep it to just the ASD portion, lol.)
post #11 of 23
Quote:
Originally Posted by Petie1104 View Post

People think that dd can't have Asperger's because she is so talkative and smiles.
That one is probably the one I hear the most and is probably top on my list! When they find out my son has Autism they say "But he can talk".. uh, yeah, he can.
post #12 of 23
DD will not "grow out of it". Nor is she likely to "catch up". While I appreciate the sentiment it tells me you didn't ever really look into her condition.
post #13 of 23
She's autistic because we cosleep, or because we're too lenient with her. She's not autistic because she can speak. She's just lazy or shy or cautious.

Oh, and I love the people who tell me that labels are meaningless and that my DD is the same kid regardless of her Dx. No kidding. You think I haven't been told that before? Did it make you feel better? Cuz it really does nothing for me or any parent of a SN child to be told that.

I really do love that line, "If you've met one autistic kid, you've met one autistic kid."

My friend and I both have kids on the spectrum and our kids are polar opposites. Everything she struggles with, he excels at. Everything she does well, he struggles with. We sometimes remark on how amazing it is that both our kids have the same Dx when they really have not one thing or symptom in common.
post #14 of 23
Most people I talk to have no idea that children with an ASD smile, can be social, or want to be social.

My dd will tell you she has friends if you ask her. She'll say she has a lot. Ask her how many and she'll tell you that she has "billions." The real problem being.. she doesn't know what a real friend is and has no way to discriminate something like "friendship." Its that same thing that keeps her from being able to decide if something is a "big deal" or a "little deal." (someone bleeding=big deal. Dropping her fork=little deal. Both cause her to scream, cry, flap, hyperventilate, etc.)

I can't tell you how many people see a snapshot of her day. 5 minutes at the store. The first meeting with a new therapist, etc.. and they are shocked to hear she has Asperger's. Nevermind the Anxiety Disorder and ADHD. They see a moment and they judge her for "normal" and then I'm left to prove something. I used to feel awkward. Almost like I was pretending. Clearly I was wrong. Here sat a quiet, polite child. Where was the one that screams and flaps and repeats words over and over while pacing and jumping on my couch? Where is the one that stares off into space and shuts down verbally? ... Eventually I learned to use the words, "Good office presence" so that other knew she can fake it for a short period of time. Instead of convincing people, I only have to say.. Give it time.
Remembering that its not possible for people outside my home, to see my childs entire behavior. Its only a snapshot! A small piece in time. When she was younger it was easier. Her behaviors were more predictable. Now that she's older, she really doesn't want to lose control and have a meltdown. She wants people to like her. She has such anxiety about people finding out that she acts like that, that she is capable of trying to hold it together. Every year at school it gets harder and harder for her though.

Oh, and btw.. yes. She is pretty. Yes its still possible that she has autism, even if she is pretty. I find that to be a very ridiculous assumption.
post #15 of 23
Quote:
Originally Posted by beachcomber View Post
.

Oh, and I love the people who tell me that labels are meaningless and that my DD is the same kid regardless of her Dx. No kidding. You think I haven't been told that before? Did it make you feel better? Cuz it really does nothing for me or any parent of a SN child to be told that.

I really do love that line, "If you've met one autistic kid, you've met one autistic kid."

My friend and I both have kids on the spectrum and our kids are polar opposites. Everything she struggles with, he excels at. Everything she does well, he struggles with. We sometimes remark on how amazing it is that both our kids have the same Dx when they really have not one thing or symptom in common.


Can't give enough thumbs up! It really makes me upset when people try to steer me away from a label. Probably because we had a school psychologist that said for 4 years, "...well lets wait and see.. as long as she gets the help she needs, the label really doesn't matter... " Boy, wasn't I the idiot new special needs parent of the year huh?! I fell for that one. And her services she "got" at school was a social skills group. The end. They cut OT, they cut Speech, she got NOTHING. Unless you count the lost recesses and detentions, and sitting in the principals office in K, 1st and now 2nd grade "help" that she needed. Pfft.
We are headed back in for another IEP on the 16th to finally RECLASSIFY! And now she can get the services she needs back. Why? Because I was so horrible that I allowed her to get a "label."
post #16 of 23
I'm really sad at the number of people who have been told that all they need to do is hit their child to "fix" them. My Mom insists he needs the occasional swat on the tush too. It hurts my heart more than I can say. No child was ever fixed/helped/changed with violence.

I get "but he looks so normal". I usually will respond with "appearance has nothing to do with the neurological challenges my son faces"
post #17 of 23
Quote:
Originally Posted by Nature View Post

Oh, and btw.. yes. She is pretty. Yes its still possible that she has autism, even if she is pretty. I find that to be a very ridiculous assumption.
I know right?! In my son's diagnostic paperwork I found that they actually wrote in the paper that he was a handsome child and that should help to his advantage. Um, huh?
post #18 of 23
People assume that ASD + academically advanced = Aspergers, not autism.

(DS is academically advanced, but processing verbal language is a major challenge, so he has a diagnosis of autism, NOT Aspergers.)

People, even some professionals, assume that Hyperlexia means reading (decoding) without any comprehension.

(No, hyperlexia is early reading combined with poor verbal language and poor social skills. Yes, DS can read - decode - text far above his comprehension level. He can fluently and accurately decode college-level texts. But his reading comprehension level tests at a high-second grade/early third grade level. He is in first grade, so he is comprehending above grade level.)

People think DS can't have albinism because he does not have white hair and pink eyes.

(There are many forms of albinism. Some involve a total lack of pigment; others involve greatly reduced pigment. DS does have some pigment. He has light blue eyes, yellow hair, and cannot tan. He does have the visual problems characteristic of albinism, but to a milder degree than most people affected by the disorder.)
post #19 of 23
Quote:
Originally Posted by Lollybrat View Post
People assume that ASD + academically advanced = Aspergers, not autism.

(DS is academically advanced, but processing verbal language is a major challenge, so he has a diagnosis of autism, NOT Aspergers.)

Even Asperger's doesn't mean advanced academically/gifted. *Some* Aspies are very bright, but they're still a minority, and most are measurably of average intelligence. A lot of people assume they're part and parcel, which is beyond annoying. And yep, thinking kids with autism can't be bright is another one for sure.
post #20 of 23
Thread Starter 
Quote:
Originally Posted by ErinYay View Post
Even Asperger's doesn't mean advanced academically/gifted. *Some* Aspies are very bright, but they're still a minority, and most are measurably of average intelligence. A lot of people assume they're part and parcel, which is beyond annoying. And yep, thinking kids with autism can't be bright is another one for sure.
I know that people think it's amazing that dd has a dx of Asperger's. They assume that because she has a borderline IQ that she can't have a diagnosis of Asperger's.
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