The unpredictability of my DS's moods is so hard to deal with. I feel like everyday I have to walk on eggshells around him. I never know how he's going to react to certain experiences or what will set him off.
The constant touching, clinging, jumping on me, leaning on me, rolling on me, rubbing, licking, scratching, pulling my hair 24/7!! I love him, but geesh, I need some breathing room every now and then!
We have NO support. All our family lives out of town...our friends try to understand but don't really. We are isolate and alone. We don't know anyone else personally who has a child with ASD.
The guilt! The guilt that I'm not doing enough, looking at the stack of books on ASD on my table and feeling guilty for not having read all of them yet. Worrying that something that I'm not doing now will adversely affect him in the future. Worried that my neurotypical dd is going to feel like her brother gets all the attention and that we don't love her as much.