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needing guidance

post #1 of 5
Thread Starter 
I'm familiar with all the basics: IgE, intolerances, TED, ED, ect. but then I fail. As a back story my ds had a million issues, reacted to everything and slept about 15 minutes to an hour at a time until he weaned. He stills has too many issues and has a very limited diet. The GI only said he had multiple food protein intolerance and never went further. I starved and was terrified to eat because I needed sleep. I got pregnant with dd, weaned ds and started eating better, but avoided dairy (I react).

So, now where we are DD is 2 months and has been reacting to things in my diet from the first few days. At first I just avoided eggs, soy, dairy, and chocolate. It was obvious she had reflux, but as long as she was upright, she slept fine. I cut out all reflux triggers that I knew of. Things improved, but she began to scream horribly, got rashes and the vomiting grew worse again.She's always gone potty tons, but I thought all the dirty diapers just meant she was getting plenty to eat. I got depressed and started eating only rice, lamb, goat, red delicious apples, almond butter and millet. I was trying to rotate the grains and added buckwheat. It became obvious rice made her vomit. Cut the rice, perfect baby. Still very gassy. Then two days ago I was too hungry and decided to eat about 3 apples, cashews, tons of almond butter, a bagel, some enjoy life chocolate chips, buckwheat, goat, and some blueberries. Holy cow! Terrible!! Her rash came back (but looks good today), she was up constantly and screaming. I could hear the gas and she was choking while refluxing. The carseat made the reflux even worse. I skipped a family activity and just sent ds and dh. Last night was better for her, but this morning, starting around 4:30am, she was crying, arching her back, I could feel the gas, ect. I'm sure I'm missing a ton. I'm tired! Last night ds kept getting up till 3, then dd started in. It's very difficult tolerating my 3 yo ds and the constant crying when I'm exhausted Oh, and the pooping increased again.

So, what guidance do you all have? I feel like its something about me that's causing this. This has torn our lives apart for 3 years and I was hoping things would not be the same this time so all we had to worry about was ds and getting him more foods. Instead I'm not eating and dh eats fast food 3X a day, and ds has a terrible example for eating properly. Besides, I can't trial foods with him for fear he won't sleep. FWIW, dd is overall a happy baby who sleeps all the time and smiles lots when she's awake, she just doesn't like me eating
post #2 of 5
That is a lot to deal with! My heart goes out to you and your kiddos, they are lucky to have a mom that cares so much about their health.

Have you ever been tested for food sensitivies? Or you kids? We pass so much on to our kids there is probably a lot that both bothers you and the kids the same.

Have you ever tried digestive enzymes? That would be where I would start until you can sort out more exactly what they react to! The enzymes help to digest the proteins and everything they may be reacting to. Probiotics is good as well. I like a product by Home First called Betten Aid, it has enzymes and probiotics in a good tasting chewable.

Chiropractor adjustments could probably really help your babe (and everyone else too). That was key for my dd when she was 6 days old we took her in for her first adjustment. It really helped her with digestive troubles.

Then there is rescue remedy you might try just to help calm them down. It can be rubbed on their body anywhere, but injested as well. I would rub it on the problem area at the time.

Hope some of that is helpful mama! I hope you get some sleep soon!!
post #3 of 5
Thread Starter 

I was tested for allergies, but I was always told they didn't have a way to test for sensitivities. I was diagnosed as lactose intolerant when I was 2, but I disagree with that from all I've learned. My parents tried to keep lactose from me, but it didn't work. People always gave me dairy anyway. Then I craved dairy (except straight milk, that instantly made me sick). Chiropractic helps (never fixed), but my current chiropractor doesn't do kids and I don't like him anyway. In January its back to my favorite! I've never tried digestive enzymes, sounds interesting. My ds reacted to every probiotic I tried even if they said no dairy, soy, corn, ect. so now I'm scared to try more. Any suggestions? Top 8 free + corn free and no sugar or additives (Ha! dreaming, huh?)

 

I'm feeling so weak and shaky. I think my blood sugar is low. Most days I'm only eating one full meal and something small for one other. I tried another allergy board, but they think I'm over reacting and should just put dd on reflux meds. I'm so lost and feel so lonely because of this, but I know it could be so much worse! I'm blessed to have healthy growing children with mild reactions.

post #4 of 5

Immunolaboratories does a panel with 115 different sensitivities,  I think they do an awesome job. I think there website is www.immunolabs.com The probiotic/enzyme supplement I like is by www.homefirst.com and I'm almost certain there are no allergens in it. Maybe you could also try probiotic rich foods like sauerkraut, kombucha?

post #5 of 5
Thread Starter 

thank you! the first link doesn't seem to be working right, but I'll try again sometime. I think I'll also ask the nutritionist we're meeting about testing me. I know they have it available.

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