I am writing a new post because I have lined out pretty much most of the "multiple" complications I was having (finding a pump so on so forth) and am having a bit of a new problem.
My boy's medical condition is sort of complicated but basically their body does not recognize the hormone in their bodies that regulates sodium (salt) and so they waste it out through their urine. Because of this they have to take heavy doses of sodium in order to not have their sodium fall to critically low levels.
So the only way to take this medication is oral and it has to be diluted or else... well you can just imagine trying to get a baby to drink down a syringe full of heavily concentrated salt water.
Before they were taking it 3 times a day but that has now been changed because their sodium level was fluctuating too much doing that way. So now they have them taking it at every feed, which is every 3 hours. So far this is doing the trick and keeping their sodium at normal levels.
So today we tried mixing different amounts of breastmilk with the sodium and 20ml seems to be the smallest amount we can mix with it and the boys still be able to drink it. 15 ml was too concentrated and caused them to vomit.
By the time you get their medication down them they are exhausted poor little guys and I so far have not had much success on getting them to nurse after this, but I of course HAVE to give them the medication first or else I run the risk of them not taking it all and it is very, very important they take it all.
So thoughts??? Even if you have no advice just a word or two of encouragement would really be helpful at this point, it is sometimes hard not to get a little down and discouraged by the situation.
My boy's medical condition is sort of complicated but basically their body does not recognize the hormone in their bodies that regulates sodium (salt) and so they waste it out through their urine. Because of this they have to take heavy doses of sodium in order to not have their sodium fall to critically low levels.
So the only way to take this medication is oral and it has to be diluted or else... well you can just imagine trying to get a baby to drink down a syringe full of heavily concentrated salt water.
Before they were taking it 3 times a day but that has now been changed because their sodium level was fluctuating too much doing that way. So now they have them taking it at every feed, which is every 3 hours. So far this is doing the trick and keeping their sodium at normal levels.
So today we tried mixing different amounts of breastmilk with the sodium and 20ml seems to be the smallest amount we can mix with it and the boys still be able to drink it. 15 ml was too concentrated and caused them to vomit.
By the time you get their medication down them they are exhausted poor little guys and I so far have not had much success on getting them to nurse after this, but I of course HAVE to give them the medication first or else I run the risk of them not taking it all and it is very, very important they take it all.
So thoughts??? Even if you have no advice just a word or two of encouragement would really be helpful at this point, it is sometimes hard not to get a little down and discouraged by the situation.
