First let me say, my daughter is 14 months old, still breastfed, was born at home unassisted, has never received a vaccine, does not get "fake foods" like aspartame, food coloring, etc, and our entire family is gluten/casein free. She has also taken probiotics most of her life (started them for colic before we knew she had TSC or before the epilepsy began)
My daughter also has a genetic disorder, Tuberous Sclerosis Complex, in which benign tumors occur in different organ systems throughout the body. Her biggest problem at the moment is that she has countless benign tumors throughout her brain, causing intractible seizures. She began having infantile spasms, a devastating brain damaging form of seizure, at 4 months old. She has been on ACTH (strong coricosteroid), Topamax, Keppra, Sabril, and 100 mg/day of Vitamin B6. She has had relative success with staying seizure free, but after getting them stopped at 4 months old, they came back 2 months later, were stopped with meds, and then in October of this year she began having absence seizures, then complex partial seizures, and finally tonic clonic (grand mal) seizures. She is now on a new drug and will hopefully be getting off of Topamax soon, as i HATE that drug.
I am wanting to look into more natural options to cure her of her epilepsy but am not having much luck. Her neurologist, though good, is a typical MD and knows very little about natural cures for epilepsy, andi can't find any naturopaths in my area who are well versed in treating epilepsy, or they are not taking new patients. On all the websites i look at, they're only addressing epilepsy that's caused by eating gluten, or aspartame, or heavy metal toxicity from vaccines, or candida overgrowth...and they assume all epilepsies are caused by bad lifestyle choices. But my daughter does not fit into ANY of those categories. She's got lots of tumors in her brain that have been there since before birth, and they're likely not going away.
I still feel she can have success with natural methods, but I'm having a hard time finding answers. Any help is appreciated.
I had read that turmeric is good at relieving the cognitive-impairing side effects of the oxidation caused by AED's, but I cant find any info on HOW to administer it to my daughter, how much, etc.
Other options are things there's just no way i'm going to get down a 14 month old's throat. Someone mentioned taking a few tablespoons a day of coconut oil. I know coconut oil is a wonder food/drug, but how on earth do you get straight coconut oil down your baby's throat? Same goes with many of these other supplements.
As it is she is already taking 7 separate doses a day of medicine, and her seizures are still not stopped.
I dont want to put her on a ketogenic diet or atkins diet either (not that those are NATURAL necessarily, but they're a diet modification), because of the risk of kidney stones, and she's already at a high risk of kidney stones because she's on 175 mg/day of Topamax.
A friend whose son has similar problems found relative success for about a year with chiropractic and acupuncture, but beyond that, anything? We'll be moving in amonth back to Las Vegas and I know an acupuncturist and a good family chiropractor there, but beyond that i dont think there are any naturopaths.
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