Would love some support as I'm feeling pretty sad/let down/exhausted/disappointed. Anyone else in the same boat? I love nursing and my baby is thriving... but I wish there were some end in sight to my pain issues.
After five months of treatment after treatment (some of them quite expensive!) and protocol after protocol (many time-consuming and complicated)... the specialist breastfeeding doctor I've been seeing for the past five months has thrown up her hands and declared my breastfeeding pain untreatable. She said she has never seen anything like this in her work, that it's a very rare case. (Before her I saw several lactation consultants and my midwife and I've also seen a rheumatologist to eliminate possible inflammatory issues).
I have what looks like thrush (though a culture showed it was a much rarer and more resistant fungal infection) accompanied by frequent painful vasospasms of the nipple (and spasms in my breasts both during and between nursing or pumping sessions). My nipples are bright pink and they change color during the spasms.
Baby and I have been through every thrush and anti-fungal treatment and protocol under the sun, from mild to aggressive--oral and topical medications and all the associated sterilizing and other protocols and Dr. Jack's protocols and other recommendations--and nothing has made even the slightest improvement. I've also been on several treatments for vasospasm, including nifedipine and prednesone--nothing. Tried fluconozole, clotrimazole, itraconazole, and others... The pain varies in intensity (it's worst during pumping sessions) but sometimes I have to grit my teeth and sometimes I cry.
I thought it was bad seven weeks in when I was still having issues--little did I know I'd have no improvement 5 months later!
I plan to nurse the baby for at least 2 years total, and I was hoping I might get to experience pain-free nursing someday, but it looks like I'm out of luck. I am relieved to not go through any more treatments, though--would have been worth it if they helped, but they were all useless and just got my hopes up.
Oh well. I'm trying to look on the bright side. My baby is thriving--she's healthy and growing great and in the 90th percentile. And formula is not an option for me for so many reasons... I LOVE nursing her except for the pain--love the cuddles, love the way she looks at me and how happy it makes her. She barely takes bottles at all, even with expressed milk. And she's dairy and soy allergic (even the smallest amount of those items in my diet gave her intestinal bleeding).
Yeah, so... anyone else? I know it sounds crazy but I still love breastfeeding, even after all this.