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Untreatable breastfeeding pain, but no plans to stop nursing--anyone else? - Page 2

post #21 of 101
Quote:
Originally Posted by ShwarmaQueen View Post



 

The over-sensitive tongue thrust is a HUGE red flag for TT (incl posterior). Since the tongue can't explore the baby's mouth inutero it takes much longer to desensitize the mouth. DS just started being able to put solids in his mouth without gaging/puking/crying- I'd say he's at least 6 months delayed (behind DD). 
 

Buzzerbeater, how old is your DD2? Can you give her rice rusks or biter biscuits yet? I was told to give these as soon as possible to avoid DS having oral aversions, that the longer you wait to introduce 'hard' things the quicker the tonguethrust/gag reflex will go away. 



She's almost 7 months. I had thought about giving her something like biscuits so she could work on it more often. I wasn't going to give her grains of any kind but at this point I think that's not important. I'm just hoping dd continues to do well on ebf- I've got some dom ordered as my supply takes a huge hit around AF.   Did you ever have to supplement DS? I really really don't want to do that, and so far the ped hasn't mentioned her weight, she is a peanut.

post #22 of 101
Quote:
Originally Posted by Buzzer Beater View Post
Did you ever have to supplement DS? I really really don't want to do that, and so far the ped hasn't mentioned her weight, she is a peanut.


I was so so so close, really. If I hadn't had a extremely breastfeeding pedi reassuring me that a small lag behind and a few drops in growth percentile was not abnormal for our situation (meaning with all of our issues), I probably would have. She said as long as he was following along a curve (albeit dropping from the 95th percentile to the 30th before stabilizing) he was doing fine. But really, DS wouldn't have taken the bottle anyway, so I don't know if I would have had a choice anyway! All bottles make him gag, the only thing that didn't was my boob, assuming because it's soft and squishy? lol

 

Now he's actually gone back up to the 50th percentile, and I hope he'll keep steadily gaining. I take the opportunity to poke any healthy solids/fats into him when possible now that he'll eat them- fried egg yolks, whole milk yogurt, lentils and olive oil, hunks of cheese, oatmeal w/ butter, salmon, cheesy mashed potatoes, etc. I feel like my supply has decreased, but I'm not expecting him to nurse for several more years, my goal is to get to 18 months. :)

post #23 of 101
Thread Starter 

Thanks everyone for posting in this thread... It feels really good to know I'm not alone! I was really struggling with the pain this weekend as she's still chomping a lot due to her teething... I was having vasospasms like crazy, too. But my goal is still 2 years--just 18 months to go!

 

I definitely want to nurse her through next year's flu season, I found out at a checkup that she had actually had a stomach flu that's been going around this week but the pediatrician said it barely affected her thanks to her being breastfed--she had just a bit of extra spitup and a few looser diapers instead of a full-blown flu.

post #24 of 101

I can relate! I saw so many specialists and had so many test and so many treatments etc etc with DS1!! It was 6 months of HORRIBLE pain - then somehow it eased off...one day when he was around 7-8 months old I just realized it didn't hurt anymore! The only thing I changed was trying to keep warmer while nursing (I was getting vasospasms too) and I also jsut think his mouth grew! I went on to nurse him until he was 3 (right through a pregnancy -which the pain came back briefly in the beginning of the pregnancy and right after giving birth, but, much of the pregnanyc did not even hurt) and it was so worth it!

 

ALSO- I think a "good" latch is what's comfortable for mom and baby - everyone's shape is unique...after following everyone's advice in the end we jsut did what worked for us!

 

I feel confident that things will get better for you...and it is so worth it!

 

post #25 of 101

LilMomma, I hope I'm in the same position as you someday. Maybe we will just "grow out of it" eventually.

 

For now, we are doing another round of nystatin, and continously working working working on DD's latch. Unfortunately, she is back to wanting to the boob while she naps, for the whole nap, and once she starts drifting off to sleep, her little mouth just slides backwards until she's just got the tippety tip of my nipple in  her mouth, which she hangs on to for dear life. Any attempt to remove my nipple from her mouth is usually met with frantic rooting and whimpering until I submit. And repeat, about a million times. All the on and off is causing so much soreness I can't even tell if this latest round of antifungals is accomplishing anything.

 

Today was a rough day for us.

 

post #26 of 101

Today, yesterday, and the day before have been horrible.  I think ds is nursing through teething or is nursing away a cold.  He's been nursing like mad, back to every two hours or less. 

 

Poor thing also has a rash on his bum, that isn't going away.  We have no other sign of yeast, so maybe it's teething related.  Both of us are getting frustrated.  He wants to nurse and I want a break.  Once I think he's good and asleep, try popping him off he's frantic!  He's also a touchy nursling.  Love to claw at my breasts,  I try to have him hold somthing else and he'll let go and then back at clawing away.

post #27 of 101

Just wanted to say that with my first DO, I had pain for the entire first year.  It was excruciating for the first few months, then waxed and waned (but never went away) for at least a year.  We could never quite pinpoint the problem, despite brilliant LCs and even a very well respected MD LC.  In retrospect, I think there might have been some minor tongue tie issues that went undiagnosed, but I still don't know.  I just hung in there for the first year, and you know what, as he grew and my breasts really became more flexible and tough, it got better.  By about 14 months I believe the pain had totally subsided.  We went on to nurse until he self weaned at about 3.5.  I'm so glad I did it, and I feel it was the most challenging thing I have ever done in my life.  I'm not sure how I got through the pain, but we just did and it eventually subsided and we developed a perfect, lovely, harmonious nursing relationship.  

 

I wish I could offer some advice.  At least, though, I wanted to say I know what it's like, and hang in there!! You may either figure it out, or for whatever reason, it may eventually just pass...  And you will be so glad you were able to hang in there!

post #28 of 101

Just loving the stories where the situation has eventually just kind of passed, thanks for sharing mamas, it's super encouraging! Here's hoping this is us down the road   praying.gif

 

ETA: Anyone seen a speech path or PT for latch help? Helpful or no?

post #29 of 101

Yup, yesterday actually. No help at all. greensad.gif Waaaaaaaay too much time trying to focus on the cause of the bad latch... OMG her feet, are you SERIOUS? and no ideas for a fix we are willing to try. Frozen pacifiers? Nope.

post #30 of 101

Hey just wanted to add that some of my friends have taken their kids to chiropracters and it has improved their latch/helped them nruse better...I will definately try that if I have another baby that has trouble...

post #31 of 101
Quote:
Originally Posted by Buzzer Beater View Post

Yup, yesterday actually. No help at all. greensad.gif Waaaaaaaay too much time trying to focus on the cause of the bad latch... OMG her feet, are you SERIOUS? and no ideas for a fix we are willing to try. Frozen pacifiers? Nope.



Eek! Frozen!?!?!? What is the logic behind that???

 

Chiro, interesting . . . . Will have to look into that!

post #32 of 101
Quote:
Originally Posted by aphel View Post


Eek! Frozen!?!?!? What is the logic behind that???

 

 



Something about making her tongue go from side to side, rather than thrusting. We were referred to her for tongue thrust after my ped had a cow she's not eating, and we went thinking maybe she could help with latch. Maybe pinpoint a general problem with oral motor skills. She didn't know anything about latch, and just could not get past things I don't think matter for tongue thrust or bad latch.

 

I think I may look into the chiro as well... not sure if our insurance pays for it or not but I think it's time. The only problem I forsee is finding somebody who will have an expertise in babes.

post #33 of 101

I've been thinking about this a lot lately, and I feel like this is the safest place to discuss it.

 

Will the difficulty/hardship (trauma in my case) of nursing this baby make you limit having more children because of the likelihood of having the same problems, again? DS would have had major problems taking bottles too (because of his extreme oral weaknesses) so it's not just about possibly having to formula feed (we were very close). As a result, I'm seriously considering DS to be our last DC. :(

post #34 of 101

Shwarma - First of all  . . . .hug2.gif. I'm so sorry you're feeling this way. Although, i can relate in some ways. I still would like to have as large a family as I can have, and finances and health will allow (I have some fertility issues). But this experience has definitely made me fearful about what it will be like to have a newborn, in ways that I wish I didn't have to think about.

 

Before DD was born, I had nightmares about not being able to feed her, or "forgetting" to feed the baby and then having my milk dry up. When she was born, and unable to latch, it was literally like my bad dreams were coming true. I think some people really do not get the depth of the despair you feel when breastfeeding is so important to you, and you just simply cannot feed your child, or you can, but it is wrought with difficulty and pain. I'm very very afraid that my bf'ing issues will persist if I have more babies, but part of me also knows that I can succeed at breastfeeding given some pretty tough obstacles. I keep telling myself it's unlikely that the next LO will have the same latch issues, I'll know better how to deal with wounds, and that I'll know better how to avoid thrush, etc . . . . If I was able to breastfeed her, surely I will be able to do it again.

 

What about you shwarma? Is it likely that DS's issues are genetic and will reappear in future children? Or is it more just that there is just too much trauma and anxiety relating to breastfeeding in general?

post #35 of 101
Thread Starter 

Aw, ShwarmaQueen, big hugs! I have thought about this too... I wonder if/when this stupid fungal infection will EVER go away, especially since I plan to breastfeed my baby for at least 18 more months (she's 6 months now). And I wonder if the same thing will happen again with another baby, since I'm obviously susceptible to weird treatment resistant fungi. I do think that part of why this happened was that I got antibiotics during labor (because I tested positive for Group B Strep), which left me and baby vulnerable to infection.

 

So despite the awful ongoing pain... I still want at least one more baby in a few years. And I'll do whatever I can to see if I can avoid getting antibiotics in labor again!

post #36 of 101

There is a 50% chance (I guess) our future kids would have high palate/TT- but I'm not so sure on the oral motor weaknesses. I just don't know if I could do it again. I'm so committed to BFing, but it's hard to say if I could do this again. It has taken every ounce of my resolve to make it to a year - he still nurses (painfully) every hour or two! No bottle or sippy cups here. :( I just don't know, but I guess in any case I don't have to decide soon anyway. I know it's silly, that I could just formula feed and be done with it, but it's emotionally painful to think about doing that. 

post #37 of 101

ShwarmaQueen... hug2.gif

post #38 of 101

I found this thread while having a particularly hard night.  I'm sitting here sobbing because I'm very strongly considering weaning my older son and moving to exclusively pumping for my younger son.  My older son will be three in three months, and I have so many wonderful memories of nursing him.  We struggled in the beginning - he was tongue-tied, we had it clipped and he completely stopped latching.  I got nasty mastitis twice (admitted to the hospital to treat the second round).

 

My younger son's tongue-tie was posterior, has been clipped twice.  I'm in so much pain.  I don't want to nurse either of them.  DS1 is still asking to nurse just as often as the baby.  I have oversupply/overactive letdown that I can't even fathom how to get under control because the toddler will empty both breasts if I let him (i.e. if I can stand to nurse him as long as he'd like).

 

I think we have thrush - pretty certain I have a vaginal yeast infection, the baby obviously has a yeast diaper rash.  I've been washing diapers and treating all that all day (and have done this twice now - nipple pain got marginally better).

 

I'm at the end of my rope and hardly finding my kids enjoyable right now and starting to think weaning may well be the answer (never have felt this way before).

 

I'm heartbroken.  I'm not sure I even know how to mother my baby well without the breast.  It's the ultimate comfort.  It's the easy way.  It's what his brother got and I feel like I am denying him his birthright if I don't breastfeed him.

post #39 of 101
Quote:
Originally Posted by ILovePie View Post
I'm heartbroken.  I'm not sure I even know how to mother my baby well without the breast.  It's the ultimate comfort.  It's the easy way.  It's what his brother got and I feel like I am denying him his birthright if I don't breastfeed him.


Oh I so know how you feel. I really do. :( Have you tried pumping and bottlefeeding yet? I ask only because DS wouldn't even take any bottle, he gagged and became hysterical each time, even early on (5 wks)- before he would have a preference, due to his extreme oral motor weakness.

post #40 of 101
Quote:
Originally Posted by ShwarmaQueen View Post



Quote:
Originally Posted by ILovePie View Post
I'm heartbroken.  I'm not sure I even know how to mother my baby well without the breast.  It's the ultimate comfort.  It's the easy way.  It's what his brother got and I feel like I am denying him his birthright if I don't breastfeed him.


Oh I so know how you feel. I really do. :( Have you tried pumping and bottlefeeding yet? I ask only because DS wouldn't even take any bottle, he gagged and became hysterical each time, even early on (5 wks)- before he would have a preference, due to his extreme oral motor weakness.

Yeah.  He's disorganized and it's ugly.  I posted about it in my due date club awhile back.  But it's another way to get milk into him.  And all over him.
 

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