Originally Posted by tsfairy
I haven't said much to DH since we left last night except for stuff concerning the kids. He's acting like nothing happened, which is really making me mad. Of course I know we can't/don't need to hash this out in front of the kids so we won't get a chance to talk until at least tonight.
Anyway once we get that eval and a dx, the standard recommendation for ASD kids IS gfcf so how can anyone argue with that?? I just can't see how they can just outright dismiss our positive results so far... DS used to be SO aggressive. While he's still a bit tough to deal with sometimes, that aggression and crazy stuff is mostly gone (though I think the holidays are not helping.) As for me... I used to be in CONSTANT pain, everywhere. I took 400-800mg of ibuprofen just to get out of bed in the morning. Now I'm mostly pain free and my vision has even improved. How can that not be a good thing? How can they ask me to just put myself in pain and suffer for the sake of not hurting someone's feelings? I've trialled wheat before and it was not pretty. I will not intentionally do that to myself again.
It's just ridiculous, and I'm just so angry with DH for not standing up to them and letting me be the bad guy in all this.
2 quick comments: okay, actually 3. 1--depending on how evals are done, you may want to add in the offending foods so that you don't get a "he doesn't really have enough symptoms for ____ " ... 2--I'm not sure regular doctors actually recommend GFCF, Deb once mentioned that behavioral therapy was all that was suggested, but you could clearly fudge that, and what was 3? Oh, re: DH. My DH and I communicate a lot better than we used to, but it's taken a while (okay, several years). When I can step back and figure out why I'm reacting strongly to something, or I can think about why he's reacting particularly strongly, or why I'm really, really annoyed with his reaction, things work out better. We had one of those discussions just last weekend, it was a hot-button issue that in the past has really irked me, but by stopping and really thinking about why, emotionally, I was feeling the way I was, I could explain how I felt better to DH and then he a) understood where I was coming from, and b) me being more rational helped him explain himself better. Instead of one of those bad downward spirals, where person A is pissed and the person B gets defensive and pissed, and then A is defensive and even more pissed, it turned into a nice upward spiral. So if you can get yourself to the best place, emotionally, that you can, well,
Oh, and I figured out something interesting--at least I think I did. Kids and I are back on an ALA round, same dosage as usual for them, higher for me but I seem fine. DD's reactions, her issues with all this, tend to be on the emotional end of behavioral, not head-banging or spinning or anything, and neither has rashes or whatnot. But I think DD's discontentedness is a reaction, I'm thinking it's generally a liver stress thing. By that I mean--nothing's good enough, she wants more, she can be demanding of time or attention. I didn't really recognize it when I was dealing with it earlier in the day, but when DH was giving them a bath, and he ended up giving her the same discussion about nothing we do is ever "enough" then it clicked. I've seen it come and go in the past, and I know it's probably a good idea to work on concrete stuff like gratitude--I'm thinking a round table thing at dinner with everyone sharing something they are grateful for, maybe I can even be creative and make a paper tree or something, and we add leaves or boughs of a pine tree or something. It's a good season for that and generally important anyway, but I think that the intensity of what I'm seeing in her has, in part, a physical cause.
Anyway, I need to go to bed. Got a nap today, that was good (kids were great during naptime, I was shocked), but I still need more sleep.