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IGG Comprehensive Food Sensitivity Assay... 24 Allergies!!!?? please help

post #1 of 13
Thread Starter 

Okay so my daughter was on many antibiotics from the age of 7mo-11mo, for an ear infection, kidney infection, pneumonia and preventative antibiotics in between, then this year was on an antibiotic again for ear infection which she wasnt getting rid of naturally, then she had a pylinitol cyst lanced open, again anti, another month later a skin infection, turned out to be MRSA and a month later again, had a little infection on her leg which was again MRSA. so here we are she is now 2 1/2 and we had her bloodwork done per our Naturopath for the IGG Comprehensive Food Sensitivity Assay. She came back with 24 food allergies, Egg, Wheat, Yeast's, Cow's Milk (which she was off of anyways already) Rice, Green Beans, Cantaloupe, Pineapple, Coconut, Tomato, Oats, Almonds, Kidney Beans, Soy. Just to name a few major ones. She NEVER showed any physical signs of allergies to these when she ate them, on the scale of 0-4 the Egg was the highest at a 4 and she ate that everyday...??? I was so shocked by this and we are going in to see a MD Pediatrican at Childrens on January 7th about this for a 2nd opinion. After some things happened with our Naturopath the last visit I am not going to work with her any longer. Such as not calling back when my child(ren) are sick... Anyhow, I was wondering if anyone out there is familiar with this test and how accurate it truely is. I dont know much about this and am boggled still by this and concerned for her health. THey said because she was on so many antibiotics that it put holes in her gut and she is now becoming allergic to these foods. We have her on L-Glutamine supplement as well to heal the holes. We have started the diet as soon as we found out and she has now been sleeping thru the nite :) but I am just wondering about this test and such, it seems to be all her favorite foods that she is allergic to..?? I dont know, thanks for your input MOMS!!!!!

post #2 of 13

Well, if she wasn't sleeping through the night and now she is, that's one mystery solved. People show sensitivities to food differently than allergies, so not sleeping through the night is one symptom, lowered sensitivity to infections is another (my DD2 kept getting a skin infection on her butt, the name escapes me, whenever she ate corn, which was one of her intolerances), mood changes, stool changes, skin rashes/eczema, etc. Did they give you a rotational diet to follow, or do you just need to remove them all? If you look up in the resources, there's a link to a bunch of recipe threads and blogs (mine is broken but if you want help with recipes, just ask). We're dairy, gluten, soy, corn free plus a boatload of others. When my DS and DD2 came back with their intolerance tests, it was 30-40 foods for each, and not the same for both of them (except the common ones I just mentioned). Make sure that you learn all the names of all the foods; it's not always obvious on food labels. And look at all supplements too; lactose is a common filler in supplements, and it's almost always milk derived. If you go to an allergist, you will not find much (if any) support, because they don't usually believe in food intolerances. A GI doctor might believe in them. I didn't look to see where you're from, but someone might have advice about a doctor.

post #3 of 13
Thread Starter 

Thank you soooo much! okay, yes its little things like what you expereienced with your child(ren). another question i have is my husband doesnt belive 100% in the whole natural approach, not the way he was raised and so one of my questions is, is what about at Christmas time which is in a couple day and cookies...??? Can I allow her to have a cookie that has milk and egg and yeast and wheat in it?? I was going to make her some of her own somehow but, what about later on too like at birthday parties, cake? yes we are on a rotational diet as best as we can be at this time. I just went shopping for a LOAD of tons of different foods so. Thanks so much for your response! i greatly appreciate it! and yes if you wouldnt mind sending me some kid friendly recipes I would love that! THANKS!

post #4 of 13

That test can be helpful and misleading at the same time.  We had our son tested for that and he showed so many allergies.  We cut them out and it was horrible.  He wouldn't eat anything, he became scared to eat anything, we were struggling trying to do the diet correctly and our son actually started having issues that he didn't have before the diet.  That naturapath did tell me that what he eats most of will show up as high on the test.  He mostly ate milk, wheat and eggs and those are what showed up as highly reactive.  My tests also showed the things that I eat most often, but my younger daughter's showed only one allergy.

 

We talked with a different naturapath who said that the egg allergy will show up quickly.  Cut eggs out completely for a week and add egg one day...note what happens.  If it's not absolutely obvious, then you don't have an egg allergy.  The wheat allergy...our naturapath said that she thought he had celiacs disease based on that test. We could see no health benefits with cutting out wheat.  Finally, I had him genetically tested and he does not have either gene for Celiac's disease.  Cutting milk was the only thing that we could really see made a difference (he stopped snoring and stopped getting sick everytime we were exposed to something). 

 

I think you should use the test as a tool, but don't think of it as an absolute truth.  Your daughter probably does need some probiotics and raw vegetables (for enzymes...prebiotic).  Make some homemade blueberry soda (videos on youtube)  Make some kind of raw vegetable or fruit appetizer before meals, cut out any milk that's not cultured or cut milk out entirely (we love So Delicious coconut milk but maybe not for you). Add some raw apple cider vinegar to those raw vegetable appetizers.  Take each of those "allergenic" foods out one at a time and see if they truly help.

 

Seeing your list of allergens makes me wonder if you're a vegetarian.  Maybe these are things that your daughter gets exposed to often. The frequent exposure to these things makes them show up on the test.  So, you could have an allergy to them, or they could just be something that your child eats a lot.

 

Also, for those ear infections, have you tried Garlic mullein drops?  I treat ear infections with those drops and a decongestant and by cutting all citrus and dairy until the infection goes away.

post #5 of 13
Thread Starter 

wow! okay. Am I glad I heard from you! Well that makes me feel better, I do truely belive that she does have food 'sensitivites' which is why she is sleeping thru the nite now, I guess I just have to figure out what exactly is doing this to her. The egg alergy was so odd to me because she eats that every day for bfast along with all the other allergies, I did wonder if those came back as being allergic because those are the main things she eats. No we are not vegetarians either. We unfortunately dont have another Naturopath we can see in our area, as we drive 1.5 hours to see the one that we did. We are not going to see her anymore because of her lack in concern to my daughters health when she broke out in a horrible rash shortly after we changed her diet on the 10th of this month. I couldnt even get a callback after 2 days. I called again and could only talk to the receptionist... But thats besides the fact. So i should start to introduce these foods back to her one by one and see what happens?? Thanks so much!

post #6 of 13

Yes, that's a true way to test. My DS was also eating eggs all the time and I was skeptical, but when I took everything out of his diet, wow what a difference. For my DS, it meant sleeping through the night, no snoring, falling to sleep within minutes instead of hours, less tantrums, crankiness, clinginess, less scared-of-the-dark, and many other things. For us, we had a different test, and for the moderate and severe intolerances, we had to keep them out for at least 6 months, but we could rotate the mild sensitivities. And if I noticed a change at the beginning, it was because of those mild ones which were worse than we thought, or too much of the mild thing, which made more of a reaction. It was hard at first, but got easier. We've been doing it for 2.5 years now. We're very strict with it (as in, special cookies, birthday cakes, bring our own food to parties, etc.). Some of my DS's reactions are 10 days, and gluten takes a long time to get out of your system (sometimes a couple of months). So in the healing phase, I personally would give her as much of a chance as possible by not giving the "treats" or making an alternate. My DD2 is 5yo now and she's been restricted since she was 1yo, so yes, I've dealt with it at that age. We usually have different breakfasts, lunches (2 people in the family are unrestricted) and try to have a dinner that everyone can eat portions of. As in tonight is beef stroganoff. With regular noodles plus rice noodles. And peas and asparagus. And since DD2 can't have beef, she'll have a turkey burger. So everyone can eat together, but not exactly the same thing. For us it's hard because DD2 can't have beef, and DS can't have chicken, and he has to rotate pork and turkey. So we do what we can.

post #7 of 13

I'd like to add in that my daughter has IgG to wheat/gliadin/gluten, but I couldn't tell taking those out made a difference until I removed salicylates (her worst intolerance for which there is no test).  I added wheat back in recently thinking she was probably fine with it because I couldn't tell a difference before...and she isn't. She had the same behaviors start to come back (crying, hiding in closets when upset, tantrums, etc).  So, I don't think taking one item out a time is a good way to test whether or not it is a true intolerance!

post #8 of 13

It may be long enough to start introducing things just to look for a reaction.  I think that wheat takes a little longer to be gone from your system and the reaction may not be as noticeable as the egg allergy. 

 

I agree with the PP.  You may not get much from the pediatrician when it comes to nutrition and they tend to think that things such as sugar and food coloring don't cause problems.  I think that pediatricians and today's medicine beliefs are part of the problem with our kids' immune systems.  I can see why you want to see one though, with your daughter's issues.    Keep researching and trying different things to see what works.  The IgG test can be very helpful and I don't want you to dismiss it just because it wasn't that accurate for us.  It did help us cut milk and that helped a lot.  I'm sorry you haven't fallen in love with your naturapath though.  Was she one that can replace your pediatrician (prescribe drugs and order tests)?  You really have to find the right fit.  One that's not too weird for you and helps you really work things out in your own way.   I had one naturapathic dentist tell us that we had cavities because our meridians were blocked...which really doesn't fit with my ideas at all.  You've got your extremes I guess.  The doctors who want to drug you and vaccinate for everything and the natural/homeopathic doctors who want to fix your meridians.  It's hard to find that "just right" person.

 

I hope you can find something for your daughter though.  She's dealt with a lot in her short time so far.  I'd be digging around looking for alternatives too.  The right physician makes such a difference.

post #9 of 13

With all of her allergens out, adding wheat back in gave an obvious reaction within a couple days as her consumption increased.  Taking it out has shown a difference within days as well.

 

I do think you could probably start slowly testing things.

 

There are TONS of recipes out there.  www.adventuresofaglutenfreemom.com is one of my favorites, though you may still have to make some substitutions.  I also like Enjoy Life's Cookies for Everyone, all of their recipes are free of the top 8 allergens. I see she can't have rice either, but there are some substitutions out there for flours, etc.  It's taken me time and a lot of blog surfing to figure the ins and outs, but it's been worth it to have happy kids!

post #10 of 13

I'd take them all out and test them one at a time by putting them back in, not by taking them out one at a time, if that was suggested earlier, or what someone thought I said. Personally, I think that's the best way to test. When I did the original elimination diet for DD2, I kept taking out foods until she was "baseline" (symptom free) and then added the foods back in one by one to see which ones were actually bothering her. It took a while. But then I knew for sure. And kept a food journal the whole time with foods eaten (including supplements) and all symptoms, sleeping habits, bowel habits, etc. My DS couldn't have rice either (he just got it back on rotation after not having it for 2 years so most of my recipes don't rely on it.

 

No Egg, Wheat, Yeast's, Cow's Milk, Rice, Green Beans, Cantaloupe, Pineapple, Coconut, Tomato, Oats, Almonds, Kidney Beans, Soy...

 

www.buckwheatpete.com has recipes that use light buckwheat flour (no relation to wheat), and they don't use yeast or eggs either. I used his pita recipe for a long time as my pizza dough, and used to make the english muffins as well. It costs a little, but not much, for the recipes, and they worked, so I didn't mind. My DS can't do eggs, wheat, cow's milk, green beans, oats, almonds, soy (and a bunch of others) so I know that it's do-able. Were chickpeas tested? You can get chickpea flour and make zucchini (or other vegetable) fritters. My kids like those. And my DS liked curried chickpeas. My DD2 likes hers plain and unheated. You can also roast them for a nuttier flavor. There's still lots of fruits and veggies that aren't on the list. Though I can't think of a "milk" off hand that would work. You might be able to find a hemp milk that's safe, but you'll have to look closely at ingredients. One that I don't see on your list is corn, which is missed by a lot of tests (and salicylates, which other posters have mentioned). We make our own broth which is high in calcium and other minerals (since that's one of the things people ask first - where am I going to get my calcium?). My kids liked salmon pretty young and it's got good nutrients in it. What kind of recipes do you need? What are some things that she likes now that we can duplicate?

post #11 of 13
Thread Starter 

how long did you wait to start introducing foods back in?? we are a week and a half in, so not very long. As far as I know she can have chickpeas. And the naturopath and MD Pediatrician said not to have Corn b/c it inflames the gut. Sorry for all the questions, this is just so new to me and I feel like she's allergic to EVERYTHING that was in her diet and questioned before the other mom posted on here, could those have all came up positive b/c that was mainly her diet?? I understand the food sensitivites I just wonder how much truth there is behind that test. I belive some but others I'm not so sure about. Thanks so much for you and everyones help on this!!!

post #12 of 13

We didn't have that test, we had the ALCAT test, which tests for an inflammatory response to food, and for us it was accurate. If she is at baseline, as in no symptoms, you can trial her on a food. When I do a trial, I let them have one serving of it once that day and then wait 3 days and note any changes. Other people let the kid have a ton of it that day, and others do one serving one day, and two the next, and three the next, and see if there's any changes. So there are different ways to do it, and you can decide what you're comfortable with. For me, I figure if they're sensitive to it, they'll react to a small portion, and if they are sensitive, then it gets out of their system faster than if they've consumed a ton of it all day, but that's just me, and maybe not even the way the body works, but it works for us. It's true that corn is inflammatory, so that was good advice. It's the hardest one though because it's in everything... dextrose, maltodextrin, citric acid, etc. It's especially hard when looking for supplements. But again, it can be done. Start with simple meals. meat, potato or quinoa or sweet potato, a fruit, a vegetable, then work up from there.

post #13 of 13
Quote:
Originally Posted by carly0805 View Post

Okay so my daughter was on many antibiotics from the age of 7mo-11mo, for an ear infection, kidney infection, pneumonia and preventative antibiotics in between, then this year was on an antibiotic again for ear infection which she wasnt getting rid of naturally, then she had a pylinitol cyst lanced open, again anti, another month later a skin infection, turned out to be MRSA and a month later again, had a little infection on her leg which was again MRSA. so here we are she is now 2 1/2 and we had her bloodwork done per our Naturopath for the IGG Comprehensive Food Sensitivity Assay. She came back with 24 food allergies, Egg, Wheat, Yeast's, Cow's Milk (which she was off of anyways already) Rice, Green Beans, Cantaloupe, Pineapple, Coconut, Tomato, Oats, Almonds, Kidney Beans, Soy. Just to name a few major ones. She NEVER showed any physical signs of allergies to these when she ate them, on the scale of 0-4 the Egg was the highest at a 4 and she ate that everyday...??? I was so shocked by this and we are going in to see a MD Pediatrican at Childrens on January 7th about this for a 2nd opinion. After some things happened with our Naturopath the last visit I am not going to work with her any longer. Such as not calling back when my child(ren) are sick... Anyhow, I was wondering if anyone out there is familiar with this test and how accurate it truely is. I dont know much about this and am boggled still by this and concerned for her health. THey said because she was on so many antibiotics that it put holes in her gut and she is now becoming allergic to these foods. We have her on L-Glutamine supplement as well to heal the holes. We have started the diet as soon as we found out and she has now been sleeping thru the nite :) but I am just wondering about this test and such, it seems to be all her favorite foods that she is allergic to..?? I dont know, thanks for your input MOMS!!!!!



My DD and DS both had the US Biotek IgG test in June.  They too tested pretty high on both the egg yolk and egg whites (as well as other things).  Until that point, we ate  A LOT of eggs.  I was blown away; I'd never seen any signs or symptoms of issues with eggs, and now that we've had them out of out diet for 4 plus months, I still don't.  I'm finally going to reintroduce eggs this holiday break, and if we don't see obvious problems, then they are back in, in moderation, at least at first. They are just too nutritionally dense for us to go without any longer.

 

 I am not questioning the validity of the testing as a whole, only the egg one, mostly d/t the fact that the company that did our testing used conventional raw eggs (don't know about yours), and there is some debate as to whether the proteins are different raw vs. cooked.  I think I've been more than generous in the timeframe of elimination, and I'm pretty hopeful and optimistic that we'll add them back in with no problems!  praying.gif

 

Good luck!  I know that it can be challenging, but you can do it (especially with the help of the ladies here)! 

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