My daughter had undiagnosed hypothyroidism for a few months as an infant, and it was diagnosed just before her 1st birthday (she's 2 now). We had tests done recently to find out if it was congenital or autoimmune (her first doc wouldn't do the tests); it is definitely autoimmune. I am trying to find out more, but I feel like the more I learn, the less I know. I've read things, spoken extensivley with her endocrinologist and pediatrician; I've had a phone consult with a naturopath, but I can't afford to see her! Everyone is amazed by her. They say "I've never seen a child this young develop hypothyroidism" and "her levels were off the charts". Okay, so then, why don't you take a freaking interest in her and try to find out WHY this is happening.
I just want to know what I can do to help her. The old endo said treat her like a "perfectly healhty child" as long as she's on synthroid. The new doc said no soy. We are trying to avoid soy, but I don't really know why. It seems like no one knows freaking anything about this! They've upgraded her syntrhoid again...she started at 50mcg, now it's 75. I mean, I don't want to just keep giving her more and more medicine. I thought maybe you guys could point me in the right direction. Any help would be appreciated. I'm so tired of reading and thinking I'm doing the right thing, only to find out it's wrong. I want her to be healed. Aside from a miracle, I don't know if that's possible. I'm afraid that they're going to just keep upping her meds and they'll get to the maximum dose and that won't work. I don't know if tha'ts possible, but it's how I feel.
If you have book, website, any sort of recommendations, I'll take it. I'm burnt out on doing research, but I have to find out more for my daughter. Thanks.