Did your baby have surgery as soon as he or she was born?
Congenital heart defects are the NUMBER 1 birth defect and many babies who have them do not live to see their first birthday. I know that sounds harsh, but is the reality. My son was born with one and I have learned a lot since his birth. He needed open heart surgery at 3 months old. I WISH I had known before he was born so i could have researched and maybe came to terms with it more. Finding out when he was 1 day old after a traumatic 36 hour labor/birth was the hardest moment in my life.
Just a different perspective. I knew about my baby's TOF and it pretty much ruined my entire pregnancy. I was sick with fear and grief the entire time :( I agree that it was nice to know so that she was born in the appropriate place, but the knowing before hand was not helpful at all in helping to prepare me. I know everyone is different though.
Yes. and then again at 5.5 months. I am glad we knew because she was born at the right hospital (if we hadn't known I probably would have had her at a community hospital and she would have had to be transferred - leaving me at a different hospital). But It was really hard going through the pregnancy knowing we were facing newborn heart surgery. I really thought she was going to die :( and so I had a hard time loving her (we didn't know the sex until after she was born, though). I had plenty of time to google all the worst case scenarios (even the though ped cardiologist specifcally told me not to go home and look stuff up on the internet - ha!). I have a couple of friends who didn't know about their baby's heart condition - and they wished they did know. I think it probably always seems better the other way.