Jumping January 2011 Chat Thread - Page 15

[momofmine]

Originally Posted by changingseasons 

Thanks Emily- that's encouraging.  DD has gotten a little better about it over the past year (like she now let's DP read her a bedtime story or pat her back until she falls asleep), but it's still a huge issue.  Another one of the meltdown situations is if DP tries to unbuckle her carseat to get her out of the car.  She will FLIP.OUT.  It's pretty ridiculous.  Toddlers...

So I was just thinking about all my stupid weird symptoms lately, and just put a connection together.  Between my last 2 vitamin D tests (which were either 1 or 2 months apart at my midwife appointments), my D level went down more than 10 points.  10!  In a month (I think)!!  While I'm supping 5,000IU/day.  Is that weird, or what?  I realize that it's winter now, but honestly I wasn't getting out into the sunshine all that much last fall, so that shouldn't have made a huge difference for me.  

What would make my D levels drop like that?  Would stress do it? (This was all around the time of DD's scopes, but I'm pretty sure my symptoms started before that.)  What else?  Infection of some sort?

Wow, I missed that!  Did you learn anything from the scopes?  That must have been really hard and understandably stressful.  

[tanyalynn]

Kathy, how you doing?

[deditus]

Wow Kathy - didn't think hives were cyber catchy like all those colds we pass around! Hope you feel better tomorrow.

[changingseasons]

What's the phosphate blend?

CS, are you doing the lactose free cell salts that PB has?

It's a combo of the 5 phosphate cell salts (nat phos, kali phos... I forget all of them ) Good stuff though. And yeah- I get the lactose free ones from PB. I wish I had ordered them last month instead of this week... man, they really jacked up the prices this year!!!

[changingseasons]

Originally Posted by momofmine 

Originally Posted by changingseasons 

Thanks Emily- that's encouraging.  DD has gotten a little better about it over the past year (like she now let's DP read her a bedtime story or pat her back until she falls asleep), but it's still a huge issue.  Another one of the meltdown situations is if DP tries to unbuckle her carseat to get her out of the car.  She will FLIP.OUT.  It's pretty ridiculous.  Toddlers...

So I was just thinking about all my stupid weird symptoms lately, and just put a connection together.  Between my last 2 vitamin D tests (which were either 1 or 2 months apart at my midwife appointments), my D level went down more than 10 points.  10!  In a month (I think)!!  While I'm supping 5,000IU/day.  Is that weird, or what?  I realize that it's winter now, but honestly I wasn't getting out into the sunshine all that much last fall, so that shouldn't have made a huge difference for me.  

What would make my D levels drop like that?  Would stress do it? (This was all around the time of DD's scopes, but I'm pretty sure my symptoms started before that.)  What else?  Infection of some sort?

Wow, I missed that!  Did you learn anything from the scopes?  That must have been really hard and understandably stressful.  

Oops- missed a page when I posted.

Yep- she had a high number of eosinophils in her esophagus (you shouldn't have ANY there) as well as some furrowing, and eosinophilic inflammation in her stomach and colon. So we have a diagnosis of EE, EG, and EC (eosinophilic esophagitis, gastritis, and colitis.)

[momofmine]

mag bowel tolerance affecting poop?  I quoted the first to ask about normal tolerance.  I can't seem to give ds much of anything, and I don't know if my view is just warped.  about 30mg natural calm will give him runny poop.  At 9mo is that just normal?

And the cavities are looking worse, even just a couple days later.  I'm FREAKING OUT.  I need to stop this, NOW.  today.  yesterday.   last week.  last month.  cell salts, xylitol, butter, marrow, vit D, broth, what else can I do? clay?  all direct to him. avoid fruit?  And what for myself?  He's also biting everything and grinding his teeth.  I'm sure my stress is just depleting milk nutrients and making it worse, too.  SUCKS.

This is interesting, because I notice that with Natural Calm, I personally get to bowel tolerance faster than the mag glycinate.  Is this because one form is better tolerated than the other?  Or better absorbed?  Or what?

I hope you are figuring out the cavity issues, hugs to you both. 

[momofmine]

Yes!!!  I LOVE this idea!!  This would be awesome.  I think sites like gotomeeting are free for ust the basic setting up a conference call.  You have to call long distance but that is fine with me.

I LOVE the conference call idea that we've been talking about off and on for years now...  Even just a time of day and anyone who wants/needs to could call in like the old party lines.  I relate to people completely differently when I can hear a voice/see a picture/meet in person.  Seems more real, yk?  What time would be good to say?  And do it an every day thing, a once a week thing, a once a month thing?  More frequent seems better to me, and no pressure to call in, just support/chatting for anyone who needs it and is available.  Ooh, it could be like the bat signal, give a shout out when anyone wants to set one up :).
 

[momofmine]

Originally Posted by FireWithin 

let's see what else:

love the idea of a conference call.  haven't read ahead will give more info when I get there.

We are spit testing DS2 and my mom. Unfortunately the wind carried the sample from our mailbox and under some cardboard on our porch.  2 weeks later we found it.  Fingers crossed that it doesn't matter.  They haven't gotten back to us to tell us that they aren't working.

I so badly want to find out about b12.  I have stopped all b12 supps because of our family doc.  I want proof that we need to continue it and I think the genetic testing will help

Why are you stopping B12 because of your family doc?  I was reading back on this thread and just thinking we should try B12!  My DS can NOT get to sleep at night.  He lays there, so restless, overly tired.

[momofmine]

Had a fun chat with amy and carren and lisa :)  For the next one, someone who couldn't make it this time choose the time.  And let's try voice only on skype to compare the two.

So, so bummed I missed it!  I also missed the facebook thing, so please PM me so I can give you my name to friend me.  

[momofmine]

Originally Posted by Theloose 

She was drenching 100% of the time.  Giving mag got her dry at night.  Then getting rid of the carpets made her not need the mag to stay dry.  But if we slowed down on the folate over the next few months, she would start wetting again.  I think it must have been antimony in the carpets blocking her from using her mag, and the folate (and b12) was used to clear the antimony.  Now she's fine (a year+ later, at age 4) but I still give her potty breaks at night if she wakes up, just in case.

So, mag and folate and B12 all go together, right?  Is that the big 3?  Wasn't there a combo of three nutrients that are really important to go together?

[momofmine]

Originally Posted by changingseasons 

Oops- missed a page when I posted.Yep- she had a high number of eosinophils in her esophagus (you shouldn't have ANY there) as well as some furrowing, and eosinophilic inflammation in her stomach and colon. So we have a diagnosis of EE, EG, and EC (eosinophilic esophagitis, gastritis, and colitis.)

 

[momofmine]

Okay, phew, I'm all caught up.  Thanks to everyone for the responses. What is UP with everyone getting itchy hive rashes?  I had a crazy rash with redness and bumps and itchiness on my scalp last night too!

I have to say that I usually love the few months of winter we have here, but right now I am over it.  I just want it to be spring.

I'm bummed I missed the call, but I hope we can do another one next week.

Finally I am off to bed.....

[Theloose]

Originally Posted by momofmine 

This is interesting, because I notice that with Natural Calm, I personally get to bowel tolerance faster than the mag glycinate.  Is this because one form is better tolerated than the other?  Or better absorbed?  Or what?

I hope you are figuring out the cavity issues, hugs to you both. 

I think it's a better absorbed thing, that the better absorbed, the more you can take before getting to bowel tolerance.

The teeth are looking worse. Seriously, day by day. They're eroding. I feel so helpless! I upped the cell salts and gave him more D today.

Originally Posted by momofmine 

So, mag and folate and B12 all go together, right?  Is that the big 3?  Wasn't there a combo of three nutrients that are really important to go together?

yeah. And mag/Mo/b6?

Dd's trailing herself on her leftover ice cream sundae. I hope I get some sleep tonight!

[Theloose]

Originally Posted by tanyalynn 

Shannon, how long did it take after you upped the mag to see a difference in the night-wetting?  Last night, he was drenched, but maybe that's just extra activity/extra fluid late in the day.  Today is day 3 of extra mag, 200-300mg beyond the 110 that he's been getting forever (well, like I said, it used to be more in the past).  I've been wondering if something's just a bit off with him, really subtle, and of course I've fiddled with several things lately (didn't someone mention that probiotics taken when someone was taking digestive enzymes were a lot more powerful/effective than taking them before the digestive enzymes? -- wondered if I was seeing a bit of something in both kids once they started sucking down the new batch of kimchee). 

momofmine--the phosphate blend is Tonic E (at least that's the name for the kind with lactose), it's just a pre-made combo of the 5 cell salts that are phosphates. 

DevaM--I think it's just the first day, and being tired out, and maybe the painkillers are still in effect, but Shadow's asleep (it's just past 10pm here, he's usually awake later than this), and since I'm right here (he's on a ragged blanket next to the space heater next to our bed, I blocked off the corner), so I took the cone off since I've been right here and he's barely licked at the stitches.  Bet tomorrow's really different, and I feel bad but we need to get the cone on before we go to sleep, I don't want him tearing them out overnight.  But as the hours pass, the swelling is increasing, looks ugly.  And the stitches are supposed to stay in for 10 days, so it's 10 days of conehead.  Hopefully the dripping stops soon and he can wander wherever. 

I need to get back to basics for myself.  Earlier bedtime, more cooking--my outing tomorrow was cancelled, I'd offered to watch a friend's kids while she and her husband went to a lecture, but her husband's work schedule got changed and they can't go--some things really change your perspective, I know two people, families my kids play with, who've had serious vaccine injuries--see?  My sentence wandered wildly, but I need to get tons of sleep and then focus.  Just focus. 

Oh--and I'm experimenting with DMG with DD, since everything messes with her digestion, and now that I know she tolerates methyl B12 just fine (early on she had issues because she was low in folate cause she was ditching the chewable multivit that she didn't like), I was wondering if she'd do good with a bit more methyl support.  So far, not seeing a difference. 

Lol, I need the focus help too!  I want to say 2-3 days of mag stopped it, then missing just one or two days would bring it back but it would go away the day of when we started the mag up again.

[lil_miss_understood]

My guess about D would be bone-building, CS? It needs to be activated to tell the body to buiold bone, right? And that "uses it up"?

[momofmine]

Originally Posted by Theloose 





I think it's a better absorbed thing, that the better absorbed, the more you can take before getting to bowel tolerance.The teeth are looking worse. Seriously, day by day. They're eroding. I feel so helpless! I upped the cell salts and gave him more D today.



yeah. And mag/Mo/b6?Dd's trailing herself on her leftover ice cream sundae. I hope I get some sleep tonight!

Have you talked with PB again about the teeth?  I would call her.

With the B vitamins, what was the final consensus on taking them individually versus taking a B-complex?  At one point, I know there was some discussion about needing to have the all the B's in concert with each other.  Do some complexes have too much or too little of certain ones?

Do you take a complex to insure basic coverage of all B's, and then take extra B12 and B6?  Or do you just take the individual ones you need more of?

[momofmine]

Another vitamin question.  About Vitamin A  I sometimes give my kids this vitamin:  http://www.giprohealth.com/giprochild.aspx

And I started giving it daily the past week because we are getting over being sick and I am trying to be sure we rebuild.  But I also started the FCLO on a daily basis again (we had slacked off on that), and I give 1/2 tsp.  The WAPF site says that should be about 4650 IU of Vitamin A.  This vitamin has 7,000 IU of Vitamin A, in this form:

Vitamin A (50% (3,500 I.U.) from fish liver oil and 50% (3,500 I.U.) as natural carotenes (alpha, beta, cryptoxanthin, zeaxanthin, and lutein) from D. salina)

So, all together, that would be a total of 11,650 IU of vitamin A daily.  Is that too much for the kids daily?  If I don't give this multi, I feel like they need something to cover the bases.  Like zinc, etc.  Does anyone give a multi or do you guys all just do the individual nutrients?  I guess I just don't know how to match them in terms of what co-factors are needed, etc.

Any thoughts?

[tanyalynn]

Originally Posted by momofmine 

Originally Posted by Theloose 





I think it's a better absorbed thing, that the better absorbed, the more you can take before getting to bowel tolerance.The teeth are looking worse. Seriously, day by day. They're eroding. I feel so helpless! I upped the cell salts and gave him more D today.



yeah. And mag/Mo/b6?Dd's trailing herself on her leftover ice cream sundae. I hope I get some sleep tonight!

Have you talked with PB again about the teeth?  I would call her.

With the B vitamins, what was the final consensus on taking them individually versus taking a B-complex?  At one point, I know there was some discussion about needing to have the all the B's in concert with each other.  Do some complexes have too much or too little of certain ones?

Do you take a complex to insure basic coverage of all B's, and then take extra B12 and B6?  Or do you just take the individual ones you need more of?

For now, we're doing the Thorne basic b complex plus the mega b12 drops from holisticheal.com, DS does well on methyl b12 but Deb has talked a lot in the past about why some kids wouldn't do so well with methyl B12, but hydroxy B12 would be better (and there's another form, adenosyl, which seems less common to NEED).  DS is getting the Thorne B complex #6 mixed in occasionally instead of the Basic, but the amount in the basic should be plenty for most kids. 

I don't want to try to balance individual Bs, and we seem to tolerate a pretty wide range of B vits. 

Originally Posted by momofmine 

Another vitamin question.  About Vitamin A  I sometimes give my kids this vitamin:  http://www.giprohealth.com/giprochild.aspx

And I started giving it daily the past week because we are getting over being sick and I am trying to be sure we rebuild.  But I also started the FCLO on a daily basis again (we had slacked off on that), and I give 1/2 tsp.  The WAPF site says that should be about 4650 IU of Vitamin A.  This vitamin has 7,000 IU of Vitamin A, in this form:

Vitamin A (50% (3,500 I.U.) from fish liver oil and 50% (3,500 I.U.) as natural carotenes (alpha, beta, cryptoxanthin, zeaxanthin, and lutein) from D. salina)

So, all together, that would be a total of 11,650 IU of vitamin A daily.  Is that too much for the kids daily?  If I don't give this multi, I feel like they need something to cover the bases.  Like zinc, etc.  Does anyone give a multi or do you guys all just do the individual nutrients?  I guess I just don't know how to match them in terms of what co-factors are needed, etc.

Any thoughts?

You don't need to include the carotenes in the total count for the daily vitamin A.  I don't know what we'll do once we're healthy, just recently I wrote out the entire list of what I give the kids to give to my DO and wow, it was so long.  For you... a multi is a reasonable idea, but it seems like you could benefit from looking at what's going on and what y'all are susceptible to, and tweaking from there.  You've seen the link between methylation (b12 and folate, plus sometimes other stuff to help it along) and IgE allergies?  Are you still on SCD?  How much folate are you consuming now?  I don't know what veggies are allowed, not many legumes are SCD legal, right?  So you may have to work harder to get folate in (or add in a good B complex, gotta say I love the Thorne, if you wanted to switch the kids to Thorne B complex plus the Thorne multi-minerals, you'd a) not add in any extra vit A in addition to the FCLO, and b) get real folate--not sure what the GIpro health has, and you could tweak a bit more independently). 

[tanyalynn]

Oh yeah, as for us?  Shadow had a really easy evening/night, once we closed the bedroom door last evening so that he wasn't _wanting_ to go out with everyone else, he went right to sleep.  He's barely been trying to chew at his stitches--it was really more licking than chewing, and not much--but we still coneheaded him for the night, he wasn't thrilled.  But he was feeling spry enough to escape out of his little area and go out to the living room (DH left the door open when he came to bed, that was the plan, so we could hear the kids easily) and Shadow found the partial leftover sandwich from Thursday's outing.  And he didn't drip all over the place (got a drain for the liquid and blood that was going to keep seeping out for a bit--thus, his confinement on the old dog blanket near the space heater).  Yay for no dripping all over the house! 

He seems to be feeling fine this morning, totally normal, and I'm still not seeing any dripping though I'm going to keep him in here (I brought the computer in here, and I may just take a nap soon--wow, first time I've been caught up on sleep in over a week, I think) for at least half of today.  He's doing pretty good, he's 11, so not exactly young (50-pound lab/doberman/goodness-knows-what-else mix). 

[kjbrown92]

Originally Posted by tanyalynn 

Kathy, how you doing?

Better. I had taken the original benadryl at 7:30 (2), and took 1 at midnight when I went to bed (friends popped over to play cards). There were still a few hives then, but they're all gone this morning. I was still itchy which is why I took the extra one before bed. I still didn't sleep very well, but I made up for it by sleeping until 11am! I am scared enough that I'm not going to be eating peanut butter, jelly, or that bread for a while. I just feel like it can't be the palm shortening. I eat that stuff all the time.
 

Originally Posted by changingseasons 


It's a combo of the 5 phosphate cell salts (nat phos, kali phos... I forget all of them ) Good stuff though. And yeah- I get the lactose free ones from PB. I wish I had ordered them last month instead of this week... man, they really jacked up the prices this year!!!

Drat. I take those all the time (and DS does too) so we go through them pretty quickly. Drat. How much did they go up? They're magical for me. They make me pee normally, so I know they're working on the nerves.
 

Originally Posted by tanyalynn 

Oh yeah, as for us?  Shadow had a really easy evening/night, once we closed the bedroom door last evening so that he wasn't _wanting_ to go out with everyone else, he went right to sleep.  He's barely been trying to chew at his stitches--it was really more licking than chewing, and not much--but we still coneheaded him for the night, he wasn't thrilled.  But he was feeling spry enough to escape out of his little area and go out to the living room (DH left the door open when he came to bed, that was the plan, so we could hear the kids easily) and Shadow found the partial leftover sandwich from Thursday's outing.  And he didn't drip all over the place (got a drain for the liquid and blood that was going to keep seeping out for a bit--thus, his confinement on the old dog blanket near the space heater).  Yay for no dripping all over the house! 

He seems to be feeling fine this morning, totally normal, and I'm still not seeing any dripping though I'm going to keep him in here (I brought the computer in here, and I may just take a nap soon--wow, first time I've been caught up on sleep in over a week, I think) for at least half of today.  He's doing pretty good, he's 11, so not exactly young (50-pound lab/doberman/goodness-knows-what-else mix). 

We had a cone on our dog way back when (1990) when we got 2 Dobies and DH wanted his dog to have his ears done (I wanted mine left floppy). And he had to have the cone for a couple of weeks. The neighborhood kids all made fun of the poor dog. And to shape them, they used tampons inserted into the ear, then taped them. I can tell you that the drains are not fun. I hope he's doing better today (he'll probably be sore and tired for a little while still, no? I've got to go start braising my sauerkraut for dinner tonight.