Didn't know where to post, so please move if necessary.
DD was born at 35 weeks and was diagnosed with gross motor delays. She gets OT/PT 3 days a week. She has been hospitalized for a week due to RSV. She has had no previous hospitalizations. While in the hospital she was on bipap (for 3 days) and had a central line which made holding her very difficult. We held her as much as the doctors/nurses allowed, but it was drastically less than she's normally held. She was in respiratory distress, so essentially she's been laying down or being held for the past week. She has not had much choice about the uncomfortable/painful things that have been happening to her body.
Before this illness she had just mastered standing and could take 2-3 steps. She had about 10 words. She had a bright and bubbly personality.
We probably won't be released for 3-4 more days. I know she is still recovering, but it seems like her little personality has changed. She also has no interest in doing the gross motor taks that she had just mastered.
Since she's off bipap now my partner and I spent most of the day holding her. My plan is to wear her constantly and give her as many choices about her body as make sense.
But my question is, what should I expect when we get back home?