I posted a thread awhile back and am coming back with new questions. I will spare the long and nasty health history of my DD3, but we quit nursing at 4 months and I quit pumping a month later after a failed breast milk trial. This was after 2 months of failed TEDs which we now are figuring out was probably due to a severe eosinophilic disorder vs allergy. This has been SUCH a devastating ride for me. DD1 nursed 4 years, and DD2 for 2.5 yrs until DD3 came. She became so violently ill while nursing and no change helped at all. She has thrived on an elemental diet and at 8 months tolerates no food, and eats just Neocate. The Drs believe we are looking at an eosinophilic disorder. Most the Drs I have taked to that specialize in this tell me that part of the time babies can tolerate breastmilk with no diet change by mom, sometimes with mom eliminating some trigger foods, and sometimes they just don't tolerate it at all. 4 months of screaming placed DD in the just dont tolerate it club. I have kicked around trying to relactate for last couple months. Yesterday I spoke with a specialist that had a couple patients that eventually were able to tolerate BM that mom had frozen. So I have decided to give relactating a shot and see if we can make that work. I just feel like I need to give it a final go, as the emotional toll that parenting without nursing has taken on me. This whole process, with a sick all the time baby, no nursing, etc, is really sucking the life out of me. I feel like I need to focus on something positive even if she can't tolerate it, SOOOO.....here is where I am...
Haven't nursed her exclusively in 4.5 months. Haven't nursed at all in 3.5 months. Haven't pumped for 2.5 months. I can express a single tiny drop when I try. I have a stack of domperidone, fenugreek, blessed thistle, alfalfa, mothers milk tea and oatmeal here. I own a SNS that irritates the heck out of DD. BUT...she latches on just fine. Since I started entertaining the idea, I have let her latch on for a short time each night when she is half asleep and looking for a binky. She will latch on when awake too, until she realized she won't get anything, then she just laughs at me. :)
So my challenges...because of her condition, I can't really use the SNS as my supply builds. I need to get enough to be able to feed her at one time, the document the reaction. I DO have a freezer full of milk labeled "milk/soy free:, "big 8 free" and "TED" milk. So I am contemplating giving her some of that as the trial to see how she does. Can I relacted taking sups and pumping like crazy, until I can get her back to the breast and know it wont make her sick? (or that is does and be done)/ I do have a hospital grade pump here.
Any thoughts, experience, etc, would be great. If it matters, my DD2 was born in Nov 07, nursed until DD3 came....so my body had been lactating for 3+ years when I quit pumping. I hopeit remembers. :)
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