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High risk mamas? - Page 2

post #21 of 38

livacreature, great to hear!


famofour, I have a couple of autoimmune disorders that are related to each other (type 1 diabetes and Hashimoto's), but nothing related to Lupus or APS. That sounds really difficult. A new diagnosis is always daunting; I can only imagine how much more so during pregnancy. I'm so glad your OB was able to be of comfort.


I got bloodwork back today and everything is looking good, though my iron remains stubbornly low and my thyroid numbers are inching off target. A1c was 6.5, down from the 7.1 it was shortly before conception, so that's pretty good news. The time period of the test would have covered a good chunk of time before pregnancy, too, including the holidays, and since my numbers have been excellent ever since I found out, I am confident that I am doing well. I am aiming to have the A1c under 6 by next blood draw. I kept it sub-6 throughout my pregnancy last time, and it definitely made everyone panic a lot less.

post #22 of 38

As someone with recurrent miscarriages, APS was certainly on the table as a possibility.  However, after all our testing, we don't have a reason. 


With anti-coagulents, and really careful prenatal care, especially in the third trimester, APS affected pregnancies have great outcomes.  It's going to be an intensive ride, but it will likely work out just fine.  I would liken it to a more complicated twin pregnancy.  Lots of verifying, occasionally suggesting a premature birth, but mostly fine. 



I'm in a weird place, personally, because I'm a homebirth midwife, and I'm planning a homebirth, but I've got a few things going on, medically.  I have kidney issues that put me at higher risk of pre-eclampsia, and I have "unusual" immune labs, although no diagnosed condition.  This is my fifth pregnancy, and the only one to progress past 7 weeks.  I've had 4 ultrasounds so far, and two more scheduled before 13 weeks.  It's certainly not the care I imagined when pregnant for the first time.  But I'm very grateful for it. 

But I miss optimism. 

post #23 of 38

Jane: Wow, a homebirth midwife with a high-risk pregnancy, that must be hard. I totally know what you mean about "missing optimism", it much easier said than done to be positive.


The word "intensive" makes my stomach sink, but I remain hopeful that despite any intensity, I will still have a lovely, calm birth which bears a lovely, calm child. 


LivaCreature: I really wish that this APS would've been caught sooner, so that I could be more prepared for the injections and the complete despair I felt after finding out. But, I am pregnant with a baby and I am happy for that and grateful. Whatever I time I get with this little once, is time well spent and appreciated.

It sounds like you're doing so well! My professor in college has Hashimotos (diagnosed when she was 25, in the early 80s) and went on to have five children and not a single miscarriage. All over pregnancies were high-risk, but undamaging.


I started my Fragmin (Heparin) today. I hope I get used to injecting a needle inside of myself. 

post #24 of 38

Thanks for the thread -- I'm a high-risk pregnant mama.  Because of a luteal phase deficiency, I struggle with my progesterone level in the first trimester.  I'm always well supplemented, but my levels sometimes crash around 8-9 weeks causing a loss.  After a couple of my losses, my MFM suspected a clotting disorder like Factor Leiden V, but test results came back fine.  He keeps me on a baby aspirin throughout every pregnancy because he said I could be reacting to the high doses of progesterone (clotting is a side effect) or I may have some issue for which there is not a test (totally my luck!).  To closely monitor my hormone levels, my doctor orders blood work for me every Monday and Thursday for the entire first trimester.  Draw #4 is tomorrow -- only 12 more to go after that!


I have a history of pre-term labor, so I take weekly 17P Hydroxyprogesterone injections beginning at 16 weeks gestation.  I also have a history of cervical incompetence with two failed transvaginal cerclages.  One failure led to 15 weeks of bedrest with our oldest daughter Gracie, the other failure led to the death of our son Zachary.  After Zachary died, I had a transabdominal cerclage placed, so while my cervix is now essentially irrelevant in a pregnancy, I'm subject to bimonthly monitoring by sonogram to watch for potential risk of rupture.  My first sonogram is Friday to look for the placement of babies in relation to my cerclage.  If all goes as swimmingly as I hope, I'll have an amnio around 37 weeks, and deliver by c-section around 38 weeks sometime in early October.


Glad to meet you all!

post #25 of 38

Hi Mamas!

  I am high risk as well due to a rare Factor VII bleeding disorder.  With my Daughter I also had to be induced for preeclampsia (?HELLP) at 35 1/2 weeks.  They gave me a ton of plasma when I delivered and I am hoping to avoid that this time.  Anyone know the incidence of recurrent preeclampsia?

post #26 of 38
Thread Starter 

Overall rate is 20% but it varies hugely depending on when you developed it and other risk factors. So, a woman who develops mild preeclampsia at 41 weeks is at less risk than a woman who developed severe PE at 36. Clotting disorders are a risk factor.


I passed my GTT, thankfully!

post #27 of 38

AlexisT, great news about your GTT!


Steedalyn, I've heard that the rate is about 20% as well -- but I think it's really dependent on your individual risk factors. Your HCP could probably give you the best estimate.  I hope you stay healthy and avoid induction this go round!

post #28 of 38

I had a super-great ob appointment this week.


1) I have been told repeatedly by care providers that I would pretty much be an automatic c-section if I ever got pregnant.  The ob I'm seeing said that their type 1 diabetic moms, so long as there are no other complications, are about at 25% for their practice.  She said that they address problems as they are, but in her experience, they can create a lot of problems by doing a one-sized fits all approach for a disease that can be unpredictable.  :-D  Also, the NICU is on the same floor as the maternity wing, so if there are issues, you can visit and bond as soon as possible.


2) The lab FINALLY sent over my blood work.  When I was three weeks pregnant (general routine, no prenatal draw) my A1C was 6.9 (much better than my 8 in July!) and my seven week was 6.1!  I'm super excited by this.  Everything else was totally normal.  They did full work ups on some random things per my request (blood cancers are very common in my family, generally striking people in their 20s and 30s, and all of those were good and normal too).

post #29 of 38
Thread Starter 

Bumping this thread!


How's everyone doing? My BP has been so-so--controlled well, but no drop. Quad was fine (although false-positive AFPs are a bad predictor, and I missed the screening window with DD so I have no history to go on). Color doppler looked good (or at least he said, "everything looks good"). Baby is big. Then again, my severe pre-E baby was 8lbs1oz at 37 weeks, so even when my placenta hates me, it can still suck my blood.


OB said I'm looking at NSTs from 32 weeks.


I'm starting to hope that I might dodge the bullet this time... but I know that optimism is my downfall. I always get what I don't expect. So if I expect superimposed PE again, I won't get it, right? (Actually, I really don't expect anything remotely like last time because I'm being monitored so much more closely. Realistically, I'm more worried that I'm going to start showing warning signs and they'll decide to deliver me at 37 weeks before it can get bad again.)

post #30 of 38

Im considered high risk due to my weight and B/P which was running upwards of 190/100s.


Im happy to say that thanks to finally getting my ass in gear with taking my meds I have gotten it down to the mid 120s/80!

Im really proud of myself but Im worried it will skyrocket again :(

post #31 of 38

so far I am staying not-high-risk. GD doesn't develop this early anyway, and I am confident that I do not have underlying type II. I found a MW practice that I am very comfortable with, who know a lot about helping moms with gestational diabetes, and are fine planning a HB for a GD mom who will be 37, assuming I am healthy and have good blood sugar and, obviously, no other problems. I still am waiting to get my medicaid coverage (starts June 1) so I can get routine bloodwork and also my own glucose meter. But I've been spot checking with my mom's meter (she has type II) and numbers look great- very normal. If things go well, this will be my second homebirth (third midwife attended birth).


Hugs to those of you dealing with more severe problems. It sounds like you all have supportive health care providers, and that is really important.

post #32 of 38

I am very high risk. I developed blood clots that traveled to my lungs during to previous pregnancies. I have to be on injectable blood thinner during pregnancy and for several weeks post-partum. Currently I take two injections a day and go once a month to have my clotting levels taken. I have had a barrage of tests over the years, there is nothing they have found wrong with me. Nothing comes up really off during pregnancy and everything is fine with me not pregnant. The Perinatologist that I have now suspects that I am hypercogaulable during pregnancy due to the increased hormones. 

post #33 of 38

Hi high risk peeps,

I was considering starting a thread to ask if anyone else has Kell antibodies. But I'll join here if I may... I've been designated high risk due to the fact that I have a Kell negative marker on my blood type. Something like 98% of everybody is Kell positive, and I've formed Kell antibodies due to exposure to Kell positive blood during a previous miscarriage and/or the following transfusion. My antibodies have the potential to attack the baby's blood and bone marrow, causing fetal anemia, which can lead to a range of unpleasant outcomes. I didn't even know this existed until it got flagged on my labs. 

It's frustrating to lose my chance to have a low intervention midwife birth. And its frustrating to have something wrong that I can't do anything to prevent or fix. Starting next week, I'll have biweekly ultrasounds to monitor baby's blood flow and then more intensive monitoring and treatment if needed. 

It sounds like we definitely all have the worry in common... hug.gif

post #34 of 38

Hi everyone,

I am high risk also, I just found out during our 20 week ultrasound that my 4th baby girl has isolated mild ventriculomegaly where her brain is dialated to a 12-13 mm when normal is below 10mm. I have another ultrasound on the 14 to see if it has gotten worse. So, I'm high risk now. Fun Fun. I sometimes wish I could be on bedrest because I work full time and it would be nice to work from home and not have to pay for daycare for my 3 other children. 



post #35 of 38

I just found this site and thread.  I am due at the end of October and am type 1 diabetic.  I have been diabetic for almost 23 years now on an insulin pump since my freshman year of collage so that has been about 13 years.  I have two wonderful children ages six and four and am expecting my third.  I am struggling right now with removing myself from the medical system and attempting a home birth.  For my daughter's birth I was to trusting allowing to many interventions which eventually caused me to end up with my daughter stuck in the birth canal sideways (here head not her whole body) due to her not being ready and the Dr. breaking my water without even asking, my sons I was out right lied to and after arriving at the hospital dilated to nine had a c-section despite my refusal which caused me to be separated from him for the first 36 hours of his life.  Needless to say I am not keen on repeating any of this.  I know I have potential risks, there are potential risks to my baby but both my other two (despite my son's heart defect which is hard to accept even though his cardiologists assure me it most likely had nothing to do with my diabetes since it is not something they usually see with diabetic moms and since my A1C was below 6 at the time of conception) were completely healthy at birth.  Both had normal blood sugars, were breathing on their own not needing any intervention with apgar scores of 8 and 9.  I suppose I am wondering how other high risk mothers are planning on limiting the problem causing interventions.  Yes I wear an insulin pump but I live my life in such a way and care for myself in such a way that I am much healthier then most of my age counterparts and I get tired of being treated like an outdated statistic.  I am sorry for the rant.  I guess I am also just fed up with Dr's at the moment as my last A1C came back at 6.2 when the one a month earlier was 4.8 and I have had maybe five blood sugar alarms in the last month over 150 so when I questioned the results I was blown off, doing my own research I found that anemia may be to blame so when I asked I found my hemoglobin at 7 weeks was 11, a little low but no one would listen to me.  Okay really now I am done with my rant.  Any advice or input is appreciated!

post #36 of 38

Welcome, leifschon!! Wow, we are quite the type 1 focused DDC! You are joining me and livacreature, and we had another T1 woman who lost her pregnancy early and is now in the Nov DDC.


Do you know about the yahoo group just for T1 pregnant women? If not, you may want to join there as well. There is a woman who has had a homebirth, and another woman who is currently planning a VBA2C. Let me know if you don't know what I'm talking about but would like the link, and I will send it to you.

post #37 of 38

I did not know there was a T1 specific group I would appreciate a link.  I want so bad for this to work, to many of my friends from diabetes camp have horrible birth stories and while mine are less then ideal my babies were completely unaffected by my diabetes but I was able to manage my diabetes during labor.  I am amazed the correlation between hospital staff controlling bloodsugars and baby having extremely low bloodsugar after birth.  My friends that were able to manage their own only one had brief bloodsugar issues with baby.  Anyway, would love the link.  Thanks!

post #38 of 38

Link sent via PM (private message)!

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