PANDAS

[mama2six]

Does anybody have any information about PANDAS?  We are in the beginning process of our daughter being diagnosed, and by beginning I mean, leaving our family physician who is not interested in looking into this disease and I've been in touch with the director of the PANDAS resource network and looking through their list of physicians and hoping to find somebody and start treating this.

[sbgrace]

My closest friend has a daughter being treated for this. They went with a specialist doctor who does treatment at a distance (phone, orders labs, prescribes, etc. from distance) because no one near them was aware of it at all. She's doing well. They caught it fast. I know she also had some websites as well. If you would like her contact information, the doctor information, the websites, etc. could you pm me? I am sure she would be very happy to provide you with information and her experiences.

[mama2six]

I'm new to posting, I've read a lot in the past but this is the first time I've posted anything. What's "pm"?

[kanga2roo]

Where do you live?

[sbgrace]

Pm is private message. I'm sorry. I sent one to you. You can reply to it or email me (I provided my email address) and I'm happy to give you any information that might help.

[3TsMom]

My son does not have PANDAS but his doctor frequently treats it.  People travel from all over the place to see them, they do a large portion of their practice over the phone/email, etc.  They require you to travel for the initial visit and then if insurance covers the treatments they are required to see you once per year I believe (I'm local to them so I'm not 100% sure on that part).  I will PM you their contact info just in case you are interested in it.