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Parenthood Episode

post #1 of 6
Thread Starter 

http://www.hulu.com/watch/217323/parenthood-qualities-and-difficulties

 

This really touched my heart and brought a lot of my questions for Jack's future to light. How will we explain to him about his diagnosis? If you have older children who are on the Spectrum, how did you explain their diagnosis to them?

post #2 of 6

I'm wondering this too and will have to check out that link in a bit.

 

DS is 7 and dh and I just recently realized he has no idea he has autism. I don't know why he would, we don't run around saying "Owen has autism!", ya know? But we don't try and hide it either (we talk about it in front of him but I guess he's just never listened to us). DS was watching the disney channel on day and they had a boy on there who has autism. DS said "Wow- that boy is like me!". DH and I were thinking he thought that because of the autism but then ds went on to say "That boy likes pizza, just like me! But that boy has autism and I don't". Ummmm.... we were blown away. I haven't figured out how to explain to ds that he does have autism. He's just going through a really really rough period right now and I don't know how to handle it all.

post #3 of 6

We have friends that have aspie kids.... they love Bones because many of the characters could fall on the spectrum and they are the "hero"  They are also old enough to enjoy the book "Look Me in the Eyes".  I know they did that books on tape and listen as a family and open up conversations.  

post #4 of 6

Brandon knows he has autism because he goes to a social skills therapy group and asked questions about why he was there.  He is very high functioning (but at one point had a severe autism diagnosis and they didn't think he would ever read or speak...shows what they know!)  We just explained to him that he has a different way of thinking and seeing the world and that sometimes he is uncomfortable around other people, and that his social skills group helps him, and other kids like him, learn to be more comfortable around people.

 

His reactions?

 

"Well, I'm glad I'm not normal.  Normal's boring.  I like being like I am because it's more fun".  LOL!!! (I never told him he wasn't "normal".  He just has it in his head that "normal" = "boring". :lol:

 

and

 

"A$$-burgers? That doesn't sound like any burger I'd like to eat!"

 

Goofball.

post #5 of 6
Thread Starter 
Quote:
Originally Posted by AllyRae View Post

Brandon knows he has autism because he goes to a social skills therapy group and asked questions about why he was there.  He is very high functioning (but at one point had a severe autism diagnosis and they didn't think he would ever read or speak...shows what they know!)  We just explained to him that he has a different way of thinking and seeing the world and that sometimes he is uncomfortable around other people, and that his social skills group helps him, and other kids like him, learn to be more comfortable around people.

 

His reactions?

 

"Well, I'm glad I'm not normal.  Normal's boring.  I like being like I am because it's more fun".  LOL!!! (I never told him he wasn't "normal".  He just has it in his head that "normal" = "boring". :lol:

 

and

 

"A$$-burgers? That doesn't sound like any burger I'd like to eat!"

 

Goofball.

I love that! I've always thought "normal" was "boring"! :)

 

"A$$-burgers?" TOO FUNNY!
 

 

post #6 of 6

My son will be 7 in a few months. He knows that he has autism. He has been able to read since he was 2 and we have books and articles about autism all over the house. We are active in our local autism community and attend autism events. DS is partially mainstreamed, so he spends part of his day in the regular 1st grade  classroom and part in the autism classroom. He knows lot of other kids who have autism. He also knows his other diagnoses: asthma, albinism, and vision impairment.

 

However, knowing the word autism and understnading what it means are two different things. The understanding is a gradual process that we are guiding him through. He knows that autism means that his brain works differently. We talk about how all kids have some things that are easy to learn and some things that are hard to learn. But that autism makes certain things easy and other things hard.

 

DS is at a point in his development right now where he has recently become much more aware of himself and of the differences between kids. Recently he named some children and told me that they are like him beause they wear glasses. Then he named some other kids and told me that they are like him because they have asthma and do breathing treatments. And then he named the kids from his autism classroom and our support group and said that they are like him because they have autism. But then he wanted to know why there is a special classroom for kids with autism and no special classrooms for kids with asthma or kids with glasses. He wants special classrooms for those kids too. So we tried to explain that the kids with autism have specific things they need to learn and that is why they have special classes.

 

It's a gradual process to reach understanding. We know that it's not going to happen all at once. So we try to provide him with the best information he can understand at this point.

 

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