Bowel issues. How do you handle them? (underwear, pull ups, other ideas???) Anyone on a 504 for...

[KCMichigan]

I have a DD that has a digestive disorder (severe motility issues, chronic constipation, severe reflux) and is not bowel trained.

Now FINALLY at 5.5 yrs old she is pee trained. YIPEEEEEE!!!!

We used to do Pull-Ups. What now?? I dont want to 'lose' the pee training if she is wearing pull-ups.... but the poop is just so yucky and messy and hard to clean when she has a poop accident (which due to her current medications is several times a day--- loose ones, so no shaking it out and simply changing undies).

Her Drs (including a GI) has been less than helpful on ideas on how to retain the pee training and making it easier (and less embarrassing) for her to get cleaned up for poop.

Suggestions??

She is SO PROUD to be in undies for pee...but with little to no bowel control, she gets very very embarrassed when she has accidents.

We do timed sits at home, periodic clean-outs, and daily medication. But we have been unsuccessful in getting her on a poop schedule  so that it is predictable and she really has no idea when or how much she will go when she does have an accident. (no hiding in the corners, no crossing of legs, etc-- it just happens).

An insert? A special type of undies? 

She is off to K this summer (starts in late July here) and we are planning on a 504 for her....but anyone BTDT? How well did it work and how good was the staff at bathroom issues? Any teasing problems?

She is age appropriate or above in her other skills-- so there is no way she would get an aide or IEP.

Thanks!

[MotherWhimsey]

I don't know what you guys are willing to do or not, but my son has an appendicostomy that has been awesome for him. He has poor motility and would get backed up and start puking. He was enema dependent for a couple of years and eventually we did the appendicostomy because enemas were mentally too hard for everyone. We flush him every day through the appendicostomy and that keeps him cleaned out. He never did really have accidents before because he couldn't poop often on his own, but he did shart constantly if he got too backed up. None of that happens now. You try to flush them at about the same time every day (around here we start at 5) and theoretically that trains the bowel. Even if it doesn't, they're still not getting backed up. It's been a really good thing for my son. Since we can manage his colon now, it has improved the function of the whole digestive tract and he doesn't have vomitting episodes as often anymore.

[GAMZu]

My son has similar issues, although we haven't figured out the cause yet. He is turning five and has been pee trained since before age 2. But since he was pooping several times a day, I put him in pull ups/diapers, and he un-learned peeing in the toilet.

I recently discovered a seller on Etsy who made me exactly what I needed. I don't know how open you are to cloth pull ups, but this is what I now use-

(These are actually for my daughter, who I am hoping to begin training, but my son has the same type.)

They are underwear that are made from two layers of flannel with microfiber sandwiched in between. There are snaps on the sides for accident clean-up. This seller also makes trainers from prefolds, if that's something you have.

I love these trainers. They absorb one accident, keep poop contained, easy to snap open to clean... and just so useful and cute!

I guess I am not allowed to post links to Etsy shops even if they aren't mine, so if you think this is something you'd be interested in, just PM me!

I'd love to know how the GI got to the bottom of the problem. I  took my son, and she just prescribed Miralax to clean him out, even though he isn't constipated at all. I want to go to a different GI, but I hate experimenting. :(