baby with one kidney has level 2 reflux

[mami2]

Hi there~ just wondering if anyone has a baby with only one kidney who also has kidney reflux?? If so, any advice.. My baby is 2 mths. old and was born missing her left kidney.  We recently did a VCUG to make sure that there was no reflux in her only kidney and we found out that she does indeed have level 2 reflux (meaning urine goes back up into the kidney)... we are seeing nephrologist & urologist next week, but I'm just wondering if anyone has experienced anything like this... if so any advice/ thank you much!

[kristandthekids]

My daughter ended up not having vesicoureteral reflux but that's one of the things they diagnosed her with when she was having her chronic infections. (And I myself have had only 1 kidney since childhood.)

It's my understanding that most children grow out of it and only a few end up needing surgery to correct it. Antibiotics are used to control the UTIs in the meantime.

[ellebuch]

hi. my baby was born with multicysitc kidney. basically she has two kidneys, but only one of them works because the other is full of cysts.....

I have had very mixed messages from the doctors. some say that a doing a VCUG on her isn't necessary, whereas others say that it is. so  i don't know what to do. :(

she's had a ton of ultrasound scans and a dye scan (to confirm there;s no kidney function in the cystic kidney.) and so i'm a bit fed up of them all!

i may get her tested if i keep worrying about it. i think (from memory, one of the docs told me) that most cases of VUR are mild in kids. but of course if it's severe it can cause further damage to the remaining functioning kidney, which would be a disaster.