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Need more Eczema help! - Page 2

post #21 of 25
Thread Starter 


i know its been horrible for us. It was so hard to watch him suffer and be able to do nothing. I am trying to figure up what I want to drop first tomatoes and potatoes, or bread, and the rice flour bland I use. I will look into the skin smoother also we need a good moisturizer. The natural doctor gave me a natural brand of multivitamins by a company called standard process. I actually haven't used them because they have wheat in them and ds is allergic and I don't want to risk a reaction but he is taking the flax seed oil, and the probiotics that doctor recommended.

Quote:
Originally Posted by taigalux View Post

after i finally eliminated tomato and virtually all nightshades (i can eat a tiny bit of potato or pepper without my son reacting) the itching stopped 100%! i went from constantly trying to keep him from scratching to zero scratching. i hope your son sees such good results. i know it's crazy difficult (we are also gluten, dairy, soy, egg, pork & sesame free for 5+ years) - hang in there! btw, we also only use vinegar, baking soda, hydrogen peroxide to clean and natural fragrance free detergents (I've heard that 100% soap flakes as laundry detergent is best for really sensitive kids). we tried so many creams / moisturizers with not much luck until we got a special Chinese herbal cream from our TCM doctor - it seems like a beeswax base so it really it just for putting on the eczema, not an overall skin moisturizer - for that our favorite product is called Emily's Skin Soother.

what brand of multivitamin and vitamin c did you get for your son - i am looking for recommendations. 



 

post #22 of 25
Thread Starter 


That is sooo true!!! You just don't know what is in the other food. My son has reactions every time I eat regular food. I wonder why it gets so bad at night, that when ds goes nuts scratching also. Its weird he can have a good day and still scratch like a mad man at night. We just started the probiotics, and flax seed oil so I am hoping to see a change soon. I don't know how much more i can change my diet its so limited right now, but I will look into it. I thought I was going insane when my son would not sleep just non stop itching all night long. Then we got him on the steroids medicine(not the cream) and he was a totally other baby dh was like lets see if we can get him on that for a while, but after reading the side effects I actually regret I ever had him on it plus it gave him horrible diaper rash(it was given to him for his lungs sounding wet) but its been a crazy journey and I just cant wait til life is normal again.

Quote:
Originally Posted by deminc View Post

Poor baby! And poor mummy!

 

If you've not seen any changes after so long, you may want to consider changing your list of food for a week and see if it makes a difference. It can be quite hard to track the food if you are using prepared food like rice bread etc. This is because they contain a mixture of flours, any of which could be the substance you are reacting to. For example many rice bread has either corn or tapioca, and people can react to them. I know a little girl who is allergic only to tapioca. I second the thing on tomato, it is also a problem for us after a couple of days.

 

It's a good idea to check out environmental factors. Dustmite is a factor for us and secondary infections esp fungal infections was really hard to get a handle on. We've cleared the fungal infections, we have a anti-dustmite regime, ds's skin look so much better now and his sleep improved greatly, BUT I just can't get it to clear 100%. We took out tomatoes, and all flour products that may have possible contamination -  I think we're at 99% now and he only wakes up once a night now! I think if this keeps up, my eyebags may actually recede.  He's turning four soon, but the first year was terrible. He was too little to scratch, but he cried all night through the night EVERY night, and he was so tired he would fall asleep in the middle of the cry and suddenly wake up ten minutes again and start crying all over again. After one he began scratching with a vengeance and I would be scrubbing bloodstains out and crying. Things are so much better now.   

 

As you take food out, you should consider what food you can add in otherwise it is quite unsustainable. A mother advised me that whole food is always better in terms of allergen control. She was so right.  

 



 

post #23 of 25

Poor little munchkin :( My son has very severe eczema too - our story is very similar to yours. We went from doctor to doctor to doctor, were prescribed steroids, tried homeopathic meds and I did an elimination diet too. Eventually, the doctor that was able to help was www.draron.com - I was very hesitant using an 'internet doctor' - but after checking his credentials (he is a childhood eczema specialist) and double checking the cream he prescribed (which as a small amount of steroids) - we used his cream and the difference it made was instantaneous.

 

we have also had skin prick tests to figure out what the allergen is and egg and peanut have come up - I have completely eliminated these from my diet. I must say that although his skin got better with the ED, we never reached baseline (after doing the ED for over 4 weeks, I lost a ton of weight). The main help has been Dr Aron. I also have my son on probiotics and flaxseed oil, whilst I take fish oil supplements myself (high dosages).

 

I hope that's a bit helpful.

post #24 of 25
Thread Starter 

We took ds socks off his hands today. Hes been sock free for the whole entire day!!!!!! SO we took ds to a homopathic doctor and he said to give him coconut oil, flax oil, and cod liver oil, and hes been doing great all day long we started like 4 days ago. The doctor is saying that in 10 day I can start to let more food into my diet again!! Yea!! SO excited had to share!!

post #25 of 25

SOCK FREE! So happy for you and your babe!

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