I think I posted about this before, but I'll start over here.
Ds1 is in 10th grade and as of January, we finally have figured out all of his issues: narcolepsy. Only problem is that the doctor won't officially put N in his records. His records show "Idiopathic Hypersomnia". The why of it is a long story and we will be re-doing the testing soon so try to change it to N officially.
Ds needs to take a Rx med each day as well as take a scheduled nap each day at noon. There are other accommodations recommended by his doctor, such as extra time for tests and deadlines, late start time, and freedom to take breaks during monotonous lectures.
The principal and special ed teacher both say that he does not qualify for a 504. They base this on the fact that ds is a high IQ gifted student who keeps his grades up for the most part. (Occasional C's. D's and F's are rare, but not completely foreign.)
The doctor wrote yet another letter detailing exactly why ds NEEDS these accommodations. As a mom, I am not happy with "good enough". I have known since kindy that ds doesn't perform to his fullest potential, but his decent passing grades are good enough for the school. If the school won't give him a 504 from this last letter, the doctor is putting him on homebound for 11th grade so that he can try to get through the rough teenage bad-sleep years without having to be up at 6am for school 5 days a week.
Oh, additional details...I can't recall how long the school has to meet with me after I first hand in the doctor's recommendation, but it took them something like 5 or 6 weeks. Also, they told me they are willing to let him nap without a 504, but he can't be behind a closed door, so he will have to choose between the clinic (right off the front office, very public and noisy, and the door would be open) and the preschool classroom (snuggled in on a mat between a couple of random 4yo's).
They also refuse to allow a later arrival time. I was told that ds is running out of available absences and that even with doctor's notes, they will report us to the truancy department before long.
What do I do?