Transient Erythroblastopenia of Childhood

[firewoman]

My daughter was diagnosed with Transient Erythroblastopenia of Childhood (TEC) this week and I am hoping to find others who have experience with this blood disorder.  If at all interested in Bridget's story you can read it here:http://www.mothering.com/community/forum/thread/1307642/rare-blood-disorder-tec-anemia  It is a VERY long post.  I'd like to get some information from other families to compare notes.  The doctors don't know very much about it and while her prognosis is full recovery I really don't like not knowing what caused this to happen.  I may never know but talking to others who have been through it would make me feel better.

[mgibson4678]

My son was diagnosed with it when he was about 20 months old. We finally had his tonsils out when he was barely four and I could count on two hands how many times he has been sick since. He is nine now.

[rtbd66]

I just stubbled upon this post, and I am glad that it was a while ago and is now in your past.  My daughter had this 11 years ago and it was a horrible, stressful time.  Today she is a beautiful, strong, smart, sweet and confident 13-yr old who recently took first place in PA State gymnastics on beam, and third all-around.  I often think that it was this sickness that gave her an awesome fighting and determined spirit.  She doesn't give up!  I pray your family is fine.