Thanks again to all of you for you posts!
Sarah, no one has mentioned lip tie - I thought that her lips were correctly flared out, but looking carefully, it seems that while her mouth is open wide, only her bottom lip is really flared out - the top lip doesn't look abnormal, but it's definitely not as flared out as the bottom one. I did take her to see a chiropractor, but no improvement there. I'm not sure where to find a cranial sacral therapist, but could hunt around for references. I'm a bit leary of homeopathy b/c last week my chiro (who specializes in pregnant women), who also does homeopathy, gave me some poke root to try to treat the breast issues, and I ended up throwing up all evening. I also get really nervous about taking stuff while nursing - no one seems to be certain about exactly what is ok when nursing. The chiro seems to think that all homeopathy is not risky, but I feel that every thing I take, whether it is "natural" or not, should be pretty well researched beforehand. I could try hunting for another homeopath who specializes in pregnant/BFing women perhaps...
gemasita and reilly, I wrote to that doctor in Albany late yesterday and haven't heard back. I thought I would try calling in the morning if I haven't heard by then. I tried calling the BF doc here and her message says she is on vacation for the next ten days (and she never mentioned this when we talked last - ug!), so I wasn't able to ask her about the tongue tie/palate/lip as possible issues.
GoBecGo and PatioGardener, thanks for sharing your opinion. The posts of everyone here have made me determined to see someone who really specializes in tongue/palate/lip issues, whereas when I started I really didn't think that these things could really be an issue with her.
tracdeveau, thanks for saying that - it really means a lot to me. I kind of feel like I am a bummer rather than a positive story, since I don't yet have any solution. (I've noticed that if I mention to some people that I am still having major pain and problems with BFing (like our ped, or the woman who runs the BF store in town, etc), they get that aura that suggest that either 1) they think I am crazy and complaining or 2) that they'd rather not be faced with anyone who has a problem that can't be solved.)
I feel like the pain while feeding has actually been getting worse over the last week - it used to be better with the shields, but I feel like it is gradually hurting more and more with the shields now. :(
We also had our 3 mo apt at the pediatrician today, and it seems that up until 2 weeks ago she was gaining 5 oz/wk while we were supplementing with one extra ebm bottle per day of about 4 oz, and then when we stopped that 2 weeks ago she switched to only gaining 1 oz/wk again. The ped didn't seem to believe me that one bottle per day could make such a difference, and said that it was just the normal slow down of weight gain that happens at this age. But I think that the fact that she was only gaining 1 oz per week for the 5 weeks before we began supplementing, and then went back down to 1 oz per week so abruptly with the removal of the bottle suggests very strongly that she doesn't quite get enough without supplementation. Also, while the supply on my left breast is huge, I feel like the supply of the right breast has been going down. When I pump on both sides, I seem to be getting less and less on the right side. So I'm concerned that she still isn't nursing well, even though she looks like she is nursing properly.
I really hope that the solution is something like tongue tie that can be clipped, b/c I'd really, really like this to be a solvable problem! Thanks again for your responses, everyone. :)
Edited by cww - 4/20/11 at 8:45am