Thank you to everyone for all your ideas! I put almost all of them to use. Sorry I wasn't so great at checking back with this thread...My daughter is 13months now and she wears the brace only at night! Yay! We got through the tough part! And I wore her all the same!
I never quite stuck with one carrier. When she first got her brace I started using a wrap. Another mama at a attachment parenting group helped me master the "weave and wrap" I was able to thread the tails through her legs with the brace and get her cuddled into me. It was really comfortable. She would nap on me with her head stable and my hands totally free! It helped so much to be able to wear her. I think wearing a special needs baby makes a huge difference in their recovery!
I used the Baby Bjorn for it's ease. Although, it wasn't that comfortable for me. I was able to snap the crotch and thread it through her legs and then clip in the rest. She loved it for chewing on! It was a carrier I could use while traveling but not for long stretches, sometimes her legs turned blue (eek!). I think it was from the weight of the brace and the style of the crotch hold combined.
I also used a Mei Tie for a bit. I cinched the seat down with a bandana. It was nice for awhile. Then it came time to start wearing her on my back. With the help of another person I could wrap her to my back. I LOVE the wrap and all it's options for carries...although, it is impractical at times...when you need an extra hand to get it on.
So next I tried the Pikkolo and the Beco Gemini. Both are great carriers and have similar options for carries. They are both pretty easy for getting on and off. They have a bit more to "thread" between the legs but it is totally do-able! I settled with the Gemini and am very pleased with my choice.
I also use my maya wrap with her in the hip carry position.
Ultimately, the woven wrap, ring sling and the Gemini were the most helpful to me. Every baby is different in what they like. So, hopefully you have a lot of friends with different carriers to try like I did! Otherwise check out PAXbaby.com where you can rent carriers for great prices. I used them for the pikkolo and and the gemini!
I will post pictures soon!
happy baby wearing!