DS was born at home and except for a small period of tachycardia, the delivery went well. We discovered he was posterior tonguetied, had significan oral motor deficiencies, and a high palate when he was failing to gain weight around 5 wks. For that we did OT with a speech pathologist to get him nursing well and he improved, but still was FTT.
He has always been a 'soft' baby, but not lagging in gross or fine motor skills. He rolled over, crawled, walked right on time, but he was always weak, and would fall easily, he seemed to not have strength. I never connected the dots but a friend commented after holding him that it was unusual to her that he didn't 'grip' his legs around him when she held him on her hip. Now I realize that is probably another area of hypotonia.
We started with a speech pathologist when I saw he was missing speech milestones and she agreed he had the oral motor delays still. We are seeing improvements thanks to her exercises and he can almost drink from a bottle normally (before his top lip would be rolled under with zero tone, now there is some). Cognitively, he's fine. He mumbles and babbles constantly but there are no audible words.
What's bothering me most right now is his activity level. He NEVER EVER STOPS MOVING. And I refuse to accept the standard response of "Well, that's a toddler for you..." or "He's a boy, it's normal". No, this kids will climb to the top of the sofa 1000 times in a row if I let him and not tire or take his attention away. He is a danger to himself. He has no fear of heights or danger. We've stopped going to the park because he climbs to the highest slide (20 ft ) and goes down with the elementary kids (and he's been doing this since he could walk).
I'm not looking for sympathy, just a place where I can vent and not be told "he's just a XX or blah blah." I'm totally exhausted.