My son was a colicy boy since birth, you could here him burp up and swallow, but since he was gaining weight like a champ our ped thought he would grow out of it. He never really stopped screaming. Cutting out dairy helped with the gas. He would sleep for about 4 hrs at a time. He's been to 2 different GI's, had an upper GI - due to gurgling at night, which was normal. He had a 24 hr ph probe which was also normal(to rule out his lack of weight gain during his 6 month, now dramatically slowed). He still wakes throughout the day and night from a sound sleep, his hands fly up to his face and he rubs his eyes/nose area at this point the screaming starts and can last anywhere from 5 to 55 mins. If I can get him to latch on usually we can stop a long screaming spell. He cries, throws himself around in our arms(won't sleep without being held) and is generally difficult to hold into. Sometimes he doesn't even appear awake. Hubby has thought maybe an issue with allergies or sinuses hence the face rubbing? He is generally a happy, trouble causing 8 month old who has a horrendous time sleeping, often now sleeping 45 mins to 2 hours at a stretch. Do we just keep waiting for him to grow out of it or take him to another specialist(an ENT)? Anything else we can try with him?
So if it's not reflux, what is going on?
A recently recognized cause of poor sleep when other things have been ruled out is Sensory Processing Disorder (aka Sensory Integration Disorder). Instead of me describing it here, you can read about it online. I've seen it in several babies with a similar story as yours. It's diagnosed by an Occupational Therapist who specializes in SPD. There are treatments involving sensory therapies that can really help. Also, if you haven't gone gluten free in your diet yet, you should try that. I've seen gluten sensitivity thru mom's milk be a culprit in SPD. Also, intestinal yeast overgrowth. You could try probiotics (which maybe you already have) or other natural yeast treatments. A trial course of nystatin from your doctor could be done, or get a stool yeast culture to check for yeast first. This is how I start with infant SPD.