Ok, I know we have a few moms here who are deaf or hard of hearing themselves as well as moms of deaf or hoh kids. I'd love some input from both about making an educational plan for my Bella, who will be one in about a month. I know some may think that a baby just turning a year old is a little early to be worrying about this but I am willing to do whatever I must. Even pack up and move across the country if necessary.
Let me give you some info:
My Bella was born deaf last summer and our goal had been cochlear implants-which has now been done. Just last week, actually. However, during the surgery her ear drum had to be removed due to malformations of the facial nerve making it's placement difficult to work around. Seriously, the malformations were everywhere from the cochlea itself to the hearing nerves being weird. In the end, the implant was placed but we have a narrow chance that dd's benefits from this will be significant enough to really help her develop as well as we'd hoped.
Our school for deaf has been closed and is now outreach only. I don't know if putting dd into a mainstream public school is the best choice. I just don't know what I should know, kwim??
Moms, if you are deaf or HoH, is there anything you wish your family had known or done differently?
If you're a mom of a child who is deaf or HoH, what wisdom have you gained?
I think I'm having one of those days when it's really hard to just keep rolling with the punches.