We are really struggling here. DD2 went backwards after the water poo and back to mucus and occasional blood flecks. I have been surviving on lamb, potato and banana for a long time. I cut the vitamins, as they seem to make her worse (these were supposed to be hypoallergenic). I tried her on some probiotics (kirkman inulin free probiotics) and was told by the dietician to try to expand my diet again at the same time so I added broccoli, gluten free oats, salad leaves back in, and beetroot one at a time each day. DD2 got increasingly worse throughout that week (sleep was very disturbed although poo didn't appear chanced) and then passed the most blood she's ever had after 5 days. So again I went back to the baseline (if you can call it that as we've not yet had any mucus free poo for some time).
I am now using the formula (neocate) that she has been prescribed to up my calories and add essential nutrients and good fats etc which I feel embarrassed about admitting to the dietician as I think everyone will think I am going crazy and we are all struggling as a family. At this stage I am now trying to get her to accept some of the formula as I will use it to make up the solids we introduce.
I visited another Ped Gastro and she said "lets get this straight, a little bit of mucus and blood occassionally is nothing to worry about" and advised that I should consider weaning her onto formula and add/start solids! DD2 is generally happy although really finds it impossible to sleep for any stretch longer than a couple of hours and very, very difficult to get to sleep and often fussy unless distracted. Me and my husband are exhausted and I feel like the wheels are about to fall off. I'm scared my poor toddler is seeing her mummy disintegrate before her eyes.
Dietician's advice was simply to avoid Milk/Egg/Soy and Wheat again and expand my diet to only exclude these things. I had a meltdown at our local weigh-in clinic when they asked why she hadn't gained weight for the last 2 weeks (I think that this is likely to happen at around this time as solids are due to be added and I am so tired I can't imagine my milk supply is enough) and said that I keep telling people that I don't feel confident about following their advice based on what's happened previously but they won't listen. They want me to try her on baby rice so am trialling it in my diet again to see if she can tolerate it along with brocolli again.
I am now terrified of introducing solids and keep telling everyone that but having zero support to do that. She has started getting a croupy cough again last night and I think that's evidence that her reflux is worsening (which I understand is quite common in babies with this between the ages of 5-7 months). I can hear her bringing up her feeds into her mouth and she will often cough/choke and wake herself up. She has never been given any reflux medication either (apart from infant gaviscon which is useless if you are breastfeeding), I think because she looks so healthy and happy generally unless trying to get to sleep or "reacting" to a food, then they aren't taking me seriously.
I have tried my best but I don't know how much longer I can do this for. She won't take the formula or cup anyhow so I have to breastfeed her regardless of what I want or what is best for her and it's the only way she will settle to sleep (it's always been the only way she can settle to sleep). I am just hoping we can find a diet of solids that she can tolerate...