My little guy was born 5-29-11 at 28 weeks gestation. He's still in the NICU, in an open crib and off oxygen since July 11th. Last night he weighed 4lbs. 15.8oz.
He had been getting 26 calorie HMF for almost a month and just over the weekend, he was moved back down to 24 calorie fortifier.
I've been pumping non stop and he's been getting nothing but fortified breastmilk. I'm starting to get frustrated with some things and I thought maybe if I put it all out to people who have been through similar, I might be able to get some different/new advice.
He started trying to bottle feed July 7th. I wanted him to start with a bottle since he was gagging and having events while feeding and with a bottle, I could regulate how much he was getting. I've had preemies before and am comfortable with being able to switch him to breast once he's capable of eating without issues.
So, anyways...for the first few days, he didn't do much. Then he started to take 10,15, 20ml once or twice a day. He took 22ml just last week with almost no problems once he figured it out. He just doesn't want any part of eating by mouth. He is very, very gassy and is always pooping. It's not yellow curd type breastmilk poo but more green-ish/grey curd which I assume is from the fortifier being added. He now has a bloody rash that is getting slathered with different creams and cleaned with mineral oil and not getting any better. He had a rash when they first started adding the 26 cal fortifier and it cleared up but it's now back.
Every time I go in to try and feed him, he's grunting and bearing down with gas or to poop.
I finally talked to one of the doctors today and asked if we could try giving him straight breastmilk for a day or two to see if it helps with his gas and constant pooping. She basically said that if it was a lactose intolerance that I wouldn't be able to breastfeed him so taking away the fortifier wouldn't make any difference. I asked for him to be bumped down to the 22 cal and again, she said something about it not making a difference.
The nurses today said that he should be showing some interest in eating by now (he was 35 weeks gestation this past Sunday) and we talked about me taking some stuff out of my diet. He does wake up and appear to be rooting for some feedings but it takes him a half hour to take 10ml. He's getting his feeds (54ml) mostly through the tube, over an hour. Today they're shortening them to 45 minutes. Yesterday he was given a 3rd blood transfusion in hopes that it would help slow his heart and breathing rates and his hematocrit was on the low side (28.something).
I'm just frustrated with it all. He is in the "annex" which is a separate area from the regular nicu. He's been there since July 1st and it's supposed to be for babies who are just about ready to go home. We see babies coming and going almost daily and the only thing keeping our guy there is that he won't eat.
So, am I missing something? Am I too hopeful and not being patient enough?