Seizure disorder?

[Melamma]

My 3 year old daughter was born with a Port-Wine Stain Birthmark. She was diagnosed with Sturge-Weber Syndrome at the age of 16 months. She started having seizures at 4 months old, but only started medication last year at 2 1/2 years old. 

I was just wondering if there's anyone out there who has a child or knows a child with a Port-Wine Stain birthmark or Sturge-Weber Syndrome? I'm always looking for parents to talk to and share stories with.

[beachcomber]

I don't know of anyone but wanted to just say hello and welcome.

[harris4kids]

I just registered here and saw your post.  My 3 1/2 year old daughter has SWS and she had hemispherectomy surgery for her seiaures 4 months ago.  She has not had a seizure since.  Angie has glaucoma, extensive port wine stains, and developmental delays.  She is a joy and is an amazing, resilient child.  Please tell me more about your daughter.  Where does she receive her medical care?