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post #1 of 23
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Please delete thread moderator!


Edited by mamamoogs - 8/25/11 at 9:14pm
post #2 of 23

why exactly wont you try the meds?  That sounds terribly painful. 

post #3 of 23

Please listen to your GI get that girl on Miralax or Milk Of Mag.  Long term plan to slowly wean off.  MOM was the only thing we had when my son was diagnosed with Encropresis.  

 

What you are doing is horribly painful to your child.  Not everything can be cured with diet alone or "naturally".  That actually damaged my son worse!  

 

http://www.askdrsears.com/topics/family-nutrition/flax-seeds-and-flax-oil

http://www.askdrsears.com/topics/childhood-illnesses/soiling-pants-7-ways-minimize

 

Don't get me wrong you can do somethings "natural" to  help your child out...but until you get her moving nothing will help her.  You need to get her bowels shrunk. 

post #4 of 23
Thread Starter 

0


Edited by mamamoogs - 8/25/11 at 9:15pm
post #5 of 23
Thread Starter 

we will not put her on miralax we went that route inly gave her the runs and made her terrible cranky,

 

 

@ Marsupialmom "What you are doing is horribly painful to your child"

 

 

 " wow that was incredible harsh we are not trying to hurt our child, but thank you for your concern, our new pediatrician also feels pharms are not the way to go and have you read what is in miralax and have you ever gone  on the miralax boards and read about all the damage that it has caused children?  maybe you should before making such BOLD statements to a parent! My nephew went on some sort of pham med and is unable to have a bowel  movement on his own from taking meds so long he is now 12... that is horrible

post #6 of 23

She no longer feels the pain!  Her system is no longer listening to itself.  The signals are getting mix mecry.gif

post #7 of 23

Then you are being negligent and cruel.  You would not say this if your child had diabetes, cancer, or a broken leg.  You would use pharma in those situation.  Encropresis is a medical situation like diabetes, some ear infections, broken legs, and UTI.  Sometimes you need pharma care and this time is one time for your child.  

post #8 of 23

Have you ever thought there was a genetic component to this?  Have you ever visited boards that deal with this? 

 

My son is 16 and he sits on the toilet as a routine after diner. Why?  Because when you eat your body is naturally moving.  But this was after a long time of being on Milk of Mag. (before Mirilax). Yes, I was hesitant to do this because of the side effects. However, with working with the doctor we could watch for the risk. 

 

Heck, using flax seed oil or castor (flax seed would be nutritionally better) getting your dd pop to a consistency of baby food and then SLOWLY (we are talking months) weaning of.  ML by ML of oil. Stops and Stalls.

 

There is hirschsprung disease.  If she or your nephew has a "mild" presentation is is far more manageable and easier on them to manage it with stool softeners, diet, and routine bm patterns than surgery. However, this will not help if you do not first to "shrink" the colon. This takes a long time.  It also means cooperating with you GI.

 

 

post #9 of 23

Is the pediatrician a board-certified medical doctor? If so, why do they disagree with the specialist (the GI doctor) who has much more training in treating the digestive system?

 

I hope that you can find a solution soon.

post #10 of 23

The reason she doesn't complain is because she isn't feeling the pain anymore, the nerves don't even bother responding.

 

My son has the opposite problem, chronic diarrhea.  It started when he was about 1 and was going strong until March when he was 4.  We took him off dairy and it did wonders, but he still had some issues.  We recently took him off gluten to see if that would help and it really did.  For the first time in his life, he'll complain that his tummy hurts if he eats gluten.  It took several months for these nerves to "wake up."

 

Why did you bother seeing the GI if you were just going to ignore their suggestions?  This is a serious medical problem that you are ignoring, which is not okay.

post #11 of 23
Thread Starter 

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Edited by mamamoogs - 8/25/11 at 9:20pm
post #12 of 23
Quote:
Originally Posted by mamamoogs View Post

thank you all for the advice :) I was looking for something more on the holistic end.  Thanks again all! oh btw yes our ped is a certified MD, also practices alternative medicine we have tried several different meds non of which helped we have had several different types of testing done for several different things (NOT THAT ANY OF YOU CARED TO INQUIRE ABOUT) you assumed we have done nothing , and we are also seeing a homeopathist, also we have seen several GI doctors( all with different opinions and protocol on what we should do, so yes we are very confused none agree with the other) and we have also visited a colonic therapist, so I can assure there is no neglet here or lack of concern!  But thanks for the harsh words and encouragement, I came here hoping to find someone who has experienced with this that could add a little light on alternative medicine. and what worked for them.... NOT TO BE CRITICIZED AND PUT DOWN>>>>  



It's clear that the NATURAL medicine is not working in this situation. Honestly. You need to find a solution for your child. And being blind and refusing to use "pharma" is only going to cause your child more pain. It sounds like you're going from dr. to dr. to find one who will agree with your natural approach and are ignoring the real and true medical advice here. The only one who is suffering from it, is your child.

 

post #13 of 23
Thread Starter 

that is complete bullshit you dont know me who the hell do you think you are making assumption, the reason why we are trying holistic is because the meds didnt work and made her sick... we went to several doctors and tried several approaches   SCREW YOU!   now yes moderater you may delete thread I came here for advice not a bashing WTF!!!!!!!!!!!! is wrong with you people!

post #14 of 23
Quote:
Originally Posted by mamamoogs View Post

we are very holistic and do not take any kind of pharma...

yes you would think it would  be painful but she never complains of any pain which i always found strange but today she said she had a bellyache so we really need to try something else.


Why did you take her to a medical doctor if you weren't open to meds?  Why bother with a gi's expert opinion if you're really not going to trust it?  I have dealt with kids with encopresis, and even when not screaming they are in pain.  Sometiems it builds up and then is immediately painful.  So sad :(

 

post #15 of 23
Quote:
Originally Posted by mamamoogs View Post

that is complete bullshit you dont know me who the hell do you think you are making assumption, the reason why we are trying holistic is because the meds didnt work and made her sick... we went to several doctors and tried several approaches   SCREW YOU!   now yes moderater you may delete thread I came here for advice not a bashing WTF!!!!!!!!!!!! is wrong with you people!



you said right here - "we are very holistic and do not take any kind of pharma..."  no assumptions neccessary.



Quote:
Originally Posted by mamamoogs View Post

we are very holistic and do not take any kind of pharma...

yes you would think it would  be painful but she never complains of any pain which i always found strange but today she said she had a bellyache so we really need to try something else.



 

post #16 of 23
Thread Starter 

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post #17 of 23
Thread Starter 

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post #18 of 23
Quote:
Originally Posted by PhoenixMommaToTwo View Post





It's clear that the NATURAL medicine is not working in this situation. Honestly. You need to find a solution for your child. And being blind and refusing to use "pharma" is only going to cause your child more pain. It sounds like you're going from dr. to dr. to find one who will agree with your natural approach and are ignoring the real and true medical advice here. The only one who is suffering from it, is your child.

 


Please, for the sake of your suffering child, go back the GI, outline your concerns and LISTEN to his responses.  The person being hurt here is your precious daughter.

 

post #19 of 23

I thought it was against the UA to just go through and delete posts?

post #20 of 23

 

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I think it does.  

 

 

And OP I don't think anyone here wanted anything other than for you to get help for  your daughter.  Please update on what help you get her.

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