I haven't been around since Ruby June was born, and this is why:
I don't remember if I have talked very much about my older daughter Meadow, and her issues. She was born with congenital glaucoma among other issues, and has had over a dozen surgeries to try and correct her vision. She has partial vision in one eye, and is doing very well, but her first year was a whirlwind of drs, specialists tests and surgeries. her other issues are musculo-skeletal, and she has undergone extensive testing to figure out if she has agenetic syndrome that would occur in our future children. The consensus was that it was a random mutation, and would be unlikely to happen again. We went into this pregnancy knowing there was a very very slim chance of it happening again, and I was nervous, but truly believed that things would be fine.
Well...they're not. Ruby June was born with cataracts, which is a congenital eye condition related to the problems Meadow was born with. So far she doesn't appear to have any of the muscular or skeletal problems, and cataracts is much easier to deal with than Meadow's eye issues. But it still means a long road of surgeries and clinical follow ups over her lifetime, and she may never have normal eyesight.
Her first surgery is set for next Wednesday, and luckily it is at a hospital only 2 hours away (Meadow;s hospital is 9 hours away).
So, we could use your prayers and support. I don't know what this means yet, I am just enjoying each day and taking it as it comes right now. I am grateful that there is so much the doctors can do for her, but I just hate that she has to go through it at all. Thanks for listening - I'll update after the surgery.