Originally Posted by Valerie.Qc
I'm home with medication and a tube going from my kidney to my bladder. The stone was crushed with a laser. I'll have a follow up in 15 days. Hopefully everything will be clear and I won't have to go for a lithotripsy (destruction of the stone by ultrasound).
My plans of dancing for rain won't happen... Hope the rain come anyway!
Hope you feel better and don't need anything further. Hope your daughter feels better too so you can actually rest!
Originally Posted by Maiasaura
How old is she? My gods, that sounds like my 10yo ds. Every freaking day.
She is 4. She has speech delays so I feel like she can't always express what she wants or understand our true meanings at times. If I say she can't have/do something, she freaks saying "I like it!" or if I put something away that she wants she will cry/whine "I lost it" I tried to give her honey yesterday to help her throat feel better...she wouldn't take it. I managed to get a little bit in and she forced herself to cough so hard she makes herself gag. It looks like she will be sick all over the place. Not a good thing since she often won't eat or well (she is 27lbs and 4 years old). Her one true love is tv (which I won't let her watch). I might let her see 30 mins a week. She also likes to read, which I appreciate.
Originally Posted by vydalea
Singin: does your daughter meet with an occupational or physical therapist at all? How is the new wee one? I'm sure balancing him and the constant protests from DD has got to wear on you at times. sending you cleansing breaths of calm!!
Hope everyone is having a good week. I've been trying to get out in the sunshine and nice weather during the moments it's here and still haven't done any fall decorating although the ideas are piling up as I walk through my neighborhood and see everyone's festive pumpkins and mums and harvest-y paraphernalia in their yards and on their porches. I'm loving our 70 degree weather. Spring and fall are so heavenly!!
She had a physiotherapist and we have been discharged from them. We also saw an early interventionist, still have a speech language pathologist, had an orthotist (she wore braces called AFOs).
Getting her in the car was like this: I want to go to "bibliotheque". Help me. Lift me. Help me. (she starts to climb in on her own as I put DS in his seat) Mommy. Mommy!!! (she puts her book in the car seat). Oh no! The book is on the seat! She climbs on top of the book (and due to the hyperflexibility - aka hypotonia she is all twisted). I'm stuck!!! My foot is stuck!!! Starts crying. Doesn't even try to move. All this within 30 seconds to a minute. Of course I am talking to her the whole time and still have to tie her in (one small benefit is she can't undo herself while we are driving). Then we get to school and I have to walk her through every.single.step. of what she needs to do. Take shoes out of her locker, take off her current shoes (which she needs help, hand over hand). Put outdoor shoes in her locker. Put on her indoor shoes (even with velcro, this is a fine motor skill she doesn't have). Open her backpack (this takes time because zippers are a fine motor skill). Take out her lunch bag and her agenda. Put them in the bins where they belong (they go on this cart and the teacher wheels them all inside the classroom). She can't reach the short hooks they put in the kindy lockers so I have to hang up her coat and backpack.
I'm just exhausted. I have taken her to about a million specialists, including agreeing to a genetic test for a syndrome called CHARGE. I have worked with her through physio homework, speech homework, etc just trying to get her to be able to do things. I put her in preschool because she wouldn't socialize with the kids (still didn't work) and even now she won't talk to the kids at school. She likes school...with the exception of recess because she has latched onto her teacher. These days I have less patience. Thankfully DS is generally pretty easy. Of course, DD likes to ask for a million things and gets upset if I am nursing him and she wants a drink, help to go to the bathroom (she is too short, even with a stool to get up there), me to get some toy from her shelf, or whatever it is. It has honestly been nice having her in school because I feel like I can breathe and DS can have some focused attention (granted he still likes to nurse and sleep, with some quiet alert periods.
DD likes to squash DS's face or poke him to wake him up - he doesn't like that. She doesn't get it. Considering setting up the crib ONLY for DS to have a safe place for me to put him down away from his sister (we co-sleep in our bed and DD can climb up, so that doesn't work). Or she likes to poke him or try to jump on him while he is nursing, even if I am actually reading her a story.
Today I tried to get her to sleep. She whined that she was thirsty and then hungry (but of course didn't eat because she wanted food we don't have - cheerios). "I'm really really hungry" - If I was really really hungry, I would probably just eat whatever was there.
Anyways, long rant to say, I am considering an OT at the moment and talked to the pediatrician who agrees.