Need advice for vaccine damaged child

[bygones75]

I'm going to re-tell my story and I apologize ahead for time for its lengthiness.

My son Thomas was born in 2005 after a long struggle.  Many ultrasounds and medications went into his pregnancy.  He arrived a month early, with minor complications.  He had terrible colic, both of the gastrointestinal variety and the nervous variety.  The earlier is endemic in our family, but the latter took us a while to figure out it was caused by vaccines.  Each time he was vaccinated, the constant screaming got worse.  He screamed for up to 8 hours a day.  He had extreme light and sound sensitivity.  I was a nervous and exhausted parent; the pediatrician told me it was all coincidence and we continued.

Around 6 months, a kind friend told me I needed to switch peds.  We did, and within 5 minutes the doc told me my son was having vaccine reactions and we needed to stop.  We did.  He has never again been vaccinated, and I've educated myself.  My second son James was not vaccinated at all; he is a healthy, fun kid. 

Thomas was borderline for PDD but has always managed to stay just off the spectrum.

But he has always struggled.  He never slept.  He has just started to sleep recently, but I'll admit getting only a couple of broken hours of sleep for years took my toll on me.  I quite literally was crazy.  I screamed, I was a bad parent.  My second son had gastrointestinal colic as well and between the two of them, I really should have been committed. 

I'm telling you this because I don't know how many factors contributed to Thomas being the child he is now.  At age 6, my life is a nightmare of trying to deal with him.  The smallest stress sets him screaming, kicking, biting.  While he was developmentally delayed and received early intervention for speech, his other tests were always borderline.  We have a therapist for him, but it's not working.  He torments us for a good portion of the day.  He just started full day school; he mostly held it together in part-time kindergarten.  I thought this was at least somewhat encouraging; that he lets out his anxiety and tension at home with those he's comfortable with.  But now it's starting to bleed through.  He choked a boy last week after the kid inadvertently ran into him on the playground.  It took three adults to pull him off.

His pediatrician is not helping.  He's a nationally known developmental ped, but he has 10,000 patients and we're falling through the cracks.  I literally do. not. know. what. to. do.  The school will put him through assessment after the second month, when the teachers have better knowledge of him.  But until then, can anyone point me in some sort of direction?  We've never had much money, but I will take out a loan to get him the help he needs.  I just don't know which way to go.  Everyone says, "get him therapy".  He's in therapy!!  What's next??

Thank you so much for reading this novel.  I'm hoping someone here has gone through this and found the answers.

[boomer78]

Bygones75: I don't have an advice; I don't have any experience with a situation like this. But I wanted to send  your way.

[Mirzam]

I couldn't not post  , there is quite I bit I would do, but it really is too involved to write it in a post as it would likely be a combo of many different things. The first thing I would do is to look into nutritional healing. His body is a walking wound (so to speak) from the vaccines and if it (the body) has optimal nutrition it will be more able to heal from the wounds inflicted on it from the vaccines. Maybe you could start with GAPs and the work of Dr Natasha Campbell-McBride.

[kathymuggle]

Have you tried posting on the special needs forum?  I would absolutely leave out anything about your suspicions of vaccines contributing to his isssues as that will makesome all ragey and the thread will go OT.  If you keep it to "here are his issues and I need help" you might get some excellent advice.

If you need to vent or cry about vaccines possible role in this - do it here.  It is the safest place to do it on Mothering.

How is everyone sleeping?  If you are still having issues with sleeping have you considered melatonin?  

Edited by kathymuggle - 9/20/11 at 10:33am

[Chloebelle]

The first thing I would do is to look into nutritional healing. His body is a walking wound (so to speak) from the vaccines and if it (the body) has optimal nutrition it will be more able to heal from the wounds inflicted on it from the vaccines.

I agree with this. I don't know if you've seen a Naturopath yet, but that would be my suggestion. Homeopathics might really help. Definitely work on his diet, and keep all chemicals out of the home. Cleaning stuff, soaps, shampoos, etc. Go completely natural. I would add DHA oil into his diet as well.

(((Hugs))) to you. I can't imagine how difficult this must be for you!

[Marnica]

Sorry mama - sounds exhausting. Have you considered taking him to a DAN doctor? Sounds like he may need some heavy duty detox and as PP said, nutritional healing. Have you tried a gluten free casein free diet?

[lokidoki]

I am so sorry ~ it is SUCH ashame that vaccine damages are not widespread admission so that parents of children who are damaged could get the help they so need! I agree with the PP about a Natropath and see about doing some de-tox along with homeopathy.

[peainthepod]

I couldn't read this and not post a hug. I'm so sorry you and your family are going through this. You'll be in my prayers. 

[bygones75]

I want to thank you all for your kindness and the information. It's so appreciated. This is a very lonely place to be and your replies made me cry.

I have not visited the special needs forum, but I will. Even just to get parenting advice on how to deal with the behaviors til we find out what will help heal him. I do think nutrition could help; I will look up the author mentioned. A naturopath is a good idea too. Thomas does see a DAN doctor but outside of a gluten-free diet, he really hasn't done any de-toxing. My chiro tried chelation therapy for him but I did not see change.

My husband is a big lover of chemicals, but they're all leaving our house today. I'm desperate. Anything that could possibly be contributing to this has to go.

Thank you again. I so appreciate you all.