As I know there are many here who have BTDT, I would appreciate some advice!
A little history: My DS (now 7 mo) was "colicky" from day 1. I have been dairy free since he was 4 weeks but saw little improvement. Eventually around 10 weeks I realized that reflux, especially silent, was a problem and after trying mylanta and zantac, he started on prevacid and things improved. He became much happier and was sleeping 3 hour stretches, waking only to peacefully nurse right back to sleep. Stools were never really yellow and seedy, more greenish brown and sometimes mucusy, but never with blood, and always very regular (7am every day! Makes EC a cake walk :). I noticed restless, wakeful nights whenever I consumed corn, peanuts, or occasional dairy, so those were cut out.
Fast forward to 5 1/2 months and he was still happy during the day, but he quit sleeping. I am lucky to get more than one 2 hour stretch at night and more than 45 min for naps. He is also very restless/wiggly between wakings, cries and often arches rigidly when he wakes, and seems generally uncomfortable. (he sleeps on a pretty steep incline on his left side, nurses as upright as possible, etc). He also wakes at the same intervals and in the same way if I prop myself up in bed and hold him upright on my chest all night! At first I thought nothing of it - babies go through spurts. But weeks later we are in the same place but very, very tired!
First we tried increasing the prevacid dose on my ped's recommendation. At first it seemed like it was helping for 3 days or so but now I definitely see no difference. He is still on the higher dose for now but I want to stop if it is not helping, especially if he could be allergic to or having a reaction to the medication. We are going to see a GI specialist whenever we can get an appointment (my ped said probably 3 weeks) to look into the reflux and rule out any other GI issues that seem possible. I have actually noticed him doing the coughing/choking/gulping silent reflux thing occasionally recently, which I haven't seen since he was 3 months old.
Since I had already suspected some foods as being a problem, my ped suggested a 10 day elimination diet of only lamb, leafy greens, and brown rice. I have also been using coconut oil and a little non-iodized sea salt (mortons brand) and black pepper. He is still on the prevacid (I need to look up the inactive ingredients!), and I am taking no supplements or anything else. He has had a few solids (reacted to some, others ok) but was not eating much and I stopped to simplify this.
This is the 4th day and the last couple nights it has been difficult to tell if we are seeing an improvement because BOTH lower incisors are currently erupting at the exact same time, and that is definitely causing him some discomfort at night and complicating things! He is still waking quite frequently but it seems to be a little less, and he seems to be sleeping more peacefully between waking. I plan to continue at least the 10 days, but have a couple questions:
Do you think this is likely related to food sensitivities, just reflux, just teeth (this whole time?!), or just DS?? (my instinct says it is either food and/or reflux mainly and that he is uncomfortable, not just wanting to wake up/in a habit)
After 10 days if we see no improvement on my TED, what would you do? I know some things take longer to eliminate from my system/milk, especially dairy but we have been essentially dairy free (including watching labels) for months already. I don't want to go through all this and then give up too early. I am thinking of switching out the rice for quinoa and/or the greens for sweet potato at some point, does this seem like a good idea? How long would you stick with each thing before deciding it did or didn't help? I have read Dr. Sears info about his TED and I know it is said to add one food every 4 days to look for a reaction. So is 4 days enough?
I definitely don't want to keep DS on medications or put him through any kind of invasive testing if I can at all avoid it (especially since he is growing and developing well, and is happy when awake), and I also don't want to try to "wean" him from waking at night if the reason is that he is truly uncomfortable and not behavioral.
Thank you for reading my long novel and for your insight, this seems complicated and we are getting frustrated. It is hard to function on so little, broken sleep!