So September 14 My 3yo had a seizure. I wrote a post about it if you want more info on what it was like. So we went to a ped neuro on 9/21 and she did a VEEG. The next morning she told me the results were normal (and was VERY rude to me and snotty) I was in tears because she was so rude. My gut was telling me that all was not fine and I insisted on a MRI which she was really against. So We did the MRI 10/4 and I get the results back that it is normal which is GREAT but in reading the info it says that she is ordering the MRI because of seizure and abnormal findings on the EEG.
Upset I call and talk to her nurse and she said that she had slowing in the brain (I honestly don't know what that means but I guess it is "normal" after a bad seizure) and she had possible epileptic seizures during the EEG but since I didn't hit the button she is not going to worry about it. I told her I fell asleep around 12 the morning after (and did call back and leave a message telling the nurse again). But why not call when they found something different that what she initially told me.
So DD "spasms" that she was having for a week and a half after the EEG increased drastically (after dying down to a more normal level around 11 days post seizure) and so I called to let them know and they were not concerned. I told the nurse again today about it and she is going to tell the dr and see if she wants to do anything about it. I am guessing I won't hear back. She pegged me as over protective from the beginning and poo pooed me. I am so irritated by all of this.
So reason for my post, should I bring this up to anyone above her and if so who? We have a second option but can't get in till Dec 22. Thanks so much