The Family Hope Center - Reviews?

[mrsbernstein]

My dear son was born at home 3 months ago...breech.  And suffered Extreme Hypoxia.  He was rushed to a NICU and was immediately placed on the cold blanket for 72 hours.  

Long story...shorter.

After 39 days in NICU, we came home.  He has a feeding tube and takes very little from a bottle.  He is so far ahead of what Hospital #1 told us he would do...but still far from his potential.  He eats (thru a tube), sleeps and poops.

But he does not interact wtih us at all.  He will not put out his thumbs...and has various other muscle concerns.  

We have sought both Traditional and Alternative help.  And feel like we're running from pillar to post.  Every Dr and therapist gives us a set of exercises and whatnot to do with him...but none are coherant.  In fact, one therapist's directions, directly contradict what another told us.  

ENOUGH!

The Famiy Hope Center in PA came before me two days ago.  Right now, the $1K for the seminar and $3500 for the eval would be a stretch...but it IS doable.  My husband is pretty on-board.  I thought my mother was...and today, it seems, she is dead-set against.  I am at my whits end!

Yes...I realize we have all of the pieces HERE where I live (NC), but none of the pieces are working together.  Our Cranial-Sacral therapist refers to it as "collective, but not collaborative".  Does that make sense?

I would LOVE to find a team of Drs who are POSITIVE and are working TOGETHER for my son's betterment.  Have I found it by finding The Family Hope Center?

Thank you!

Mrs B

[beachcomber]

That's so hard to come by no matter what your child's need or diagnosis is. We struggle with it here and we have a pretty good system set up for Autism in BC (Canada). I hope you can find what you seek!!

[jtkkmom]

I have not used the Family Hope Center, however, I am doing a similar program through ICAN. I am thrilled with the results that I am seeing. My daughter is doing very well in all areas & in some areas such as math & especially reading is way ahead of her typical peers. She turned 4 a few months ago & was recently evaluated at a grade 2 level in reading. Check out my blog which us in my siggy if you want to hear more.

We did a home neurodevelopmental (ND) program for the first 3 years, then for the last year have been with ICAN. Our cost is quite a bit cheaper. I think my original consult was about $650 or so & the follow up less than $500.

If you want to learn more before making a commitment, there are also a number of books you can read. This is how I got the information to do my own program.

Here is a link to another group that is very knowledgeable about ND programs.

http://community.babycenter.com/groups/a6729133/unlimited_potential

This is a link to someone else's blogpost on how to find an ND which will give you some other organizations to check out if you are interested.


http://dsdaytoday.blogspot.com/2011/06/get-your-own-neurodevelopmentalist.html

My parents were always supportive, but a little unsure at first. Now they can't stop bragging about how smart their grand daughter is!

If it will help convince your mom, show her my videos page. I have videos of my dd reading from age 2 until 4 years & swimming at age 4 too.

Good luck & congrats on your baby boy! Please feel free to ask any questions you may have:)