I am feeling at such a loss for where to turn to next with my son's symptoms! Here is a little timeline of everything he has gone through in the last couple of years, and I'm hoping someone here can offer some advice as to what is going on with my poor guy! He has been through so much since he was born, and I'm just feeling so frustrated with his Allergist and Pediatrician right now.
Evan at 4 weeks old - Developed SEVERE eczema throughout his body, and mild swelling and redness around his eyes
6 months old - Pediatrician finally ordered blood test which showed he was allergic to egg and peanut (He was still exclusivelly breastfeeding at this time). I cut all egg and peanut out of my diet and the eczema was completely gone within two weeks.
11 months old - Came down with whooping cough. Chest Xray revealed congenital heart defects. :(
1st Birthday - Open heart surgery to repair his heart defects - surgery a success!
still breastfeeding, but also eating solids on his own
12 1/2 months - Develops rash that looks exactly like chicken pox, except that the itchy, liquid blister/bumps pop and then scab within 1-3 days of appearing. Pediatrician argues they are bug bites, which I am positive they are not because more seem to appear after mealtimes.
13 months - Allergist does skin test and it shoes a positive allergy to Garlic, egg, peanut and cats. We eliminate Garlic from the house now too.
14 months - Rash appears again
15 months - Rash appears again. Pediatrician still says they are bug bites (our house is clean and free of bugs!). Allergist says they're an allergic reaction and orders a blood test for gluten sensitivity. We also test to see if he has ever had chicken pox. Both results are negative, and the Pediatirican and Allergist say there is nothing more they can do.
15-24 months - 2-6 bumps appear occasionally, but not too badly
25 months (today) - The "chicken Pox" type rash is back full force. I am in the process of weaning him and have cut back to one feeding a day. At first I thought he must have come into contact with garlic or egg, but my husband swears he only ate Soybutter and Jelly Sandwich, fruits and veggies the day it appeared.
They always appear around the same spots (neck, hands arms, legs and feet). This weekend he developed the rash again! He has about 15 of the bumps from head to toe and is complaining that some of them hurt, and scratching others that haven't popped and scabbed yet. I feel like there is something bigger going on and his doctors are not putting it all together. Do you think he could have Celiac? I did a search online to figure out what this rash could be and everything online leads to celiac rash, or DH. His do not appear in huge clusters though, like some photos I saw. Anyone else have experience with the rash being singled blisters throughout the body? What else could this be? I feel so bad for him and hate that I can't seem to fix this for him!
What type of doctor SHOULD he see? The pediatrician? The allergist? A Dermatologist? Or a GI?