ds3 will be 1 on mon. He was born with imperforate anus. This past summer, he started refusing solids. What we did not realize is his overall appetite dropped. (breastfed, output low normal) He finally started to actually lose weight. We had lots of tests and eventually spent a month in the hospital. During that time, initially his belly would bloat w/ even 5 cc formula an hour. He spent a week or more on TPN. He had a colonoscopy. Orange seeds (2) were found in his colon. At the time they were found i was told it was normal for him to not pass those through a colostomy. Just yesterday, i was told by same doc he SHOULD have been able to pass them.
Anyway so after a month in the hospital, we go home on 20 hours a day NJ feedings. Things went bad at home. After 2 weeks with various bouts of vomiting and bloating, we were readmitted. What happened before and had happened again is his colon was huge and not moving stool. He had surgery yesterday to put in a g-j tube and enlarge his colostomy. I feel horrible thinking this but this huge adult size colostomy on tiny him looks like something out of a horror show :( i suppose i will get used to it. :( We don't know what's wrong really. The other oddball thing is whenever he has been off feeds here at the hospital his potassium is low even though they are giving it via IV.
We know nothing and it is frustrating. Anyine?