I am feeling mighty alone as I begin to navigate having a special needs child. My newborn (2 weeks old) son has limb anomalies, of all four limbs. I have been scanning through the special needs forum, but there do not seem to be many who have experienced raising a child with severe physical disabilities. Are you out there?
We know that my son will never walk without bilateral amputation and prostheses. His hands will likely also require surgery to enhance function (he is missing bones/digits with large clefts). He also has a congenital heart defect that will need surgery before his orthopedic issues can be addressed.
I am desperate for stories about children who have had similar deformities at birth. It's hard to know what to expect.