I came across this forum while searching for patch testing for allergies - and wow, what a great deal of information I'm seeing! I have three boys, Ben (4 yrs), AJ (almost 3) and Thomas (8mos).
Ben had an ulcer discovered at 9 months old through a upper GI (he has had 3 total) and all biopsies for EE came back 'normal'. He has been on an extremely high dose of acid reducers and still appears to be refluxing (swallowing/gulping). We discovered a milk allergy when he was 2 (through blood and skin pricks) and it was removed from his diet until he was 2 - at that time we did a milk challenge and he passed and has since been in his diet.
AJ also had an endoscopy at 5 months old - results came back normal for EE through UGI. He was on Alimentum at the time of the scope - did show slight GERD. This child was inconsolable. No amount of medication helped him. He had dysphagia and feeding issues and did not eat solids until 18 months old (still does not eat purees). AJ continues to have reflux symptoms (chest pain and swallowing) and has had fecal impaction several times through X-rays. His stools are smelly and we have to give him mirilax daily.
Thomas has also been on alimentum his entire life (given the experiences with the other boys we were nervous not to) but the 'high doses' of medication have not helped him either. His upper endoscopy also showed normal biopsies for EE. We have been putting 'oatmeal' in his cereal to help with the thickening (were using Thick It but his stools were very odd) and I"m wondering if he has an intolerance. We just switched to Elecare last month and this week did patch testing (still waiting 24 hours to see results) as a recommendation from another feeding therapists. Thomas also shows some aversions to eating with gagging. The allergist said that if the person was on a hypo allergenic formula at the time of the biopsies they may show a false negative? I'm now concerned for my two older boys who can't seem to get help from "GERD" with high doses of medication.
Anyone have any similar experiences? Would love for you to share!!