DS has a valve defect and im having trouble coping!

[Mowgismama21]

We found out when he was a month old that he had a murmur ( Innocent murmurs ran in my family so I wasn’t worried) But when we saw the cardiologist at 6 months things turned in the other direction, they said it wasn’t an innocent murmur, and they were going to do a ultrasound. They found the defect and after a few weeks we were told he would he would have to have surgery when he is about 2. Then we moved to California, (Ds was born in NC at Camp Lejeune) and I had a second opinion done with the family cardiologist, I got the same diagnosis, I am having such a hard time dealing with the fact my little boy will be having surgery done next year. My DH and I are seperated but we still talk and he see’s his son every week ( he just doesnt live with us) I am raising our son alone and I feel so scared I am going to be going through this by myself. Is there anyone who had to go through this by thereself? 

[AnnieA]

Hugs mama! Having a little one with a heart condition is very scary. I am sorry you are having to go through this alone. I am having a hard time and I have my husband to help! My 6 month old will be having her second open heart surgery in the next month. You should check to see if there is a local chapter of the Mended Little Hearts group. They are always very supportive, especially of the families that are in hospital.

[montanamomof3]

I am so sorry that you are going through this...((hugs))  My son was born witha cleft  lip and palate and has already gone through 2 surgeries and 3 hospitalizations.  His 3rd surgery is May 15th.  I know that our situation can not compare to yours, but I still remember the day that I was told of his cleft.  I am now only getting to the point of excepting it for what it is.  When you find out any type of not so good news about our precious little ones, it is almost like going through a grieving process.  I was so depressed about it for so long.  My husband does not live at home because of his job.  Thankfully he has been able to attend the last two surgeries, but the next one we are thinking he will not be able to.  I am having a hard time with this.  But for me I have found some support groups online.  It helps to be able to talk with other parents going through the same situation.  Stay strong mama...remember it is ok to cry.

[pbjmama]

Perhaps a doctor or social worker at the hospital could put you in contact with some sort of support group or even other parents with children facing surgery?